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  • 23 January 2016 at 2:51 pm #10191
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Top Dem: Obama to Sign Executive Order Controlling Prescription Drug Prices

    President Barack Obama will sign an executive order that will limit what pharmaceutical companies can charge, Congressman Charles Rangel, the dean of New York City’s congressional delegation, announced Tuesday night.

    YMMV

    23 January 2016 at 4:45 pm #10204
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I sincerely hope Obama can pull it off.

    Things are warming up. Here’s another article about asking US taxpayers for a solution:

    After 18 months spent slicing and dicing 20,000 pages of Gilead Sciences ($GILD) documents and emails, a Senate investigation concluded that the drugmaker put very high price tags on its hep C cures Sovaldi and Harvoni, knowing full well that would keep some patients in need from affording them. Now the Senate sponsors of the inquiry are asking payers and public, based on what was learned, just what can the government do to discourage untenable drug prices without stepping all over pharma innovation.

    The letter from Republican Sen. Charles Grassley and Democrat Sen. Ron Wyden points out that taxpayers should have a say on drug prices since much of the cost of paying for the drugs falls to taxpayer-paid programs which have been strained by their high prices. They are seeking “thoughtful feedback” by March 4 to questions in which they generally asked:

    What is the impact on the market when you have a single source for a breakthrough drug?

    Are payers getting all the info they need to gauge what the costs and patient volume will be and what the potential improvement a therapy will provide?

    Where does the concept of “value” play into the debate on drug pricing?

    How can more price transparency be achieved without deterring innovation?

    And finally, what tools exist or are needed to address high drug costs, particularly for low income patients, and Medicaid programs?

    http://www.fiercepharma.com/story/yes-gilead-put-superhigh-prices-hep-c-drugs-what-can-you-do-senators-ask/2016-01-22

    And here’s the official letter from Wyden & Grassley to the “Healthcare and Patient Community”
    http://www.finance.senate.gov/imo/media/doc/012116%20Wyden%20Grassley%20Sovaldi%20Report%20Feedback%20FINAL4.pdf

    23 January 2016 at 5:10 pm #10207
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Hopefully, these developments and REDEMPTION generics will be the multi-pronged attack needed to force change.
    Mike

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    23 January 2016 at 8:08 pm #10212
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I hope David Cameron’s listening :lol:

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    24 January 2016 at 1:17 am #10227
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    I read this sentence from Dr James’ link and my jaw just drops in astonishment.

    “Medicare Part D, created under President George W. Bush in 2003, underwrites prescription drugs for those participating in the federal program, but prohibits the government from negotiating with pharmaceutical companies for lower prices.”

    So the Pharma’s get to name the price that they charge for drugs used in the U.S. Medicare program and the government gets no say in it? :ohmy:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    24 January 2016 at 1:25 am #10229
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yes GAJ, truly gobsmacking. George W’s legacies live on in so many disastrous ways.
    The system is broken.
    And now US Senators asking their public how to fix it.
    So to all our American friends, start writing – time for people power!

    24 January 2016 at 1:36 am #10231
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook
    Gaj wrote:

    So the Pharma’s get to name the price that they charge for drugs used in the U.S. Medicare program and the government gets no say in it? :ohmy:

    It’s gets better and betterer ….. Donald Rumsfield who was in W’s cabinet at the time happens to be a large shareholder in Gilead sciences who helped develop Tamiflu. Remember the drug the worlds gov’ts were encouraged to buy at exhorbitant prices and never used :) It’s a pity the unknown knowns wern’t unknown then.

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    24 January 2016 at 3:02 am #10240
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    The “no price negotiation” part of Medicare Part D is probably the worst example, but consider:

    Donald Rumsfeld was Chairman of Gilead from 1997 until 2001 before resigning to become Secretary of Defense.

    Several Gilead / Pharma benefiting events occurred during the time D.R. was part of G.W.B.’s inner circle.

    The US DOD begins to stockpile Tamiflu (a barely effective drug) not long after D.R. becomes Secretary of defence.

    http://www.huffingtonpost.com/david-h-newman-md/tamiflu_b_4400584.html

    https://www.vaccines.mil/documents/870TamifluReleasePolicy.pdf

    and although Tamiflu was purchased from Roche, Gilead licensed it to Roche so were a significant beneficiary:

    Gilead receives a blended royalty on sales of Tamiflu, tiered from 14 to 22 percent based on Roche’s annual net sales.

    http://investors.gilead.com/phoenix.zhtml?c=69964&p=irol-newsArticle&ID=783456

    YMMV

    24 January 2016 at 3:39 am #10244
    Thyme
    • Topics: 1
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    • Novice
    • ★
    @thyme

    Article on that fine fellow Donald Rumsfeld
    http://www.national-toxic-encephalopathy-foundation.org/rumasp.pdf

    Aspartame yumm

    GT 1b HCV 34yrs
    VL abt 2,000,000
    F1-F2
    AST34 ALT45
    Day 37
    ALT 14 AST 20
    UND
    EOT 4weeks UND

    24 January 2016 at 4:14 am #10245
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Old Rummy was an angel compared to some of the characters running Congress now.
    M

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    24 January 2016 at 6:25 am #10269
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    And i don’t trust ANY of them. Especially that ‘Obama’ fellow. ;)

    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    18 February 2016 at 2:59 am #12133
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Jeffrey Sachs, Professor of Economics at Columbia University, Special Advisor to UN Secretary-General Ban Ki-moon, spoke on Radio National this morning. Although the title is “Growing criticism over Hillary Clinton’s links to military and financial establishments”, go to 8 minutes to hear his criticism of the US paying $1000 per pill for medicines that cost $1 per pill to produce.

    [audio src="http://mpegmedia.abc.net.au/rn/podcast/2016/02/bst_20160218_0815.mp3" /]

    18 February 2016 at 4:58 am #12148
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    This is great news! As long as the government doesn’t go too far (I have faith, even cutting the price in half would be a major achievement in USA :( )

    Pharmasset, the company Gilead bought that created the drug was going to charge $35K for 12 weeks of Harvoni. While still expensive, in the US I think most insurance carriers would pay for it for most patients.

    But Twinvir (generic Harvoni) is under $1500 for 12 weeks, shipped via DHL to your door :cheer:

    If you are in USA, email my friend at curehcvnow@gmail.com for details ;)

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