Home Forums Main Forum Patient Stories New to Forum A very good thing

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  • #18709
    rememberdecember
    • Topics: 1
    • Replies: 17
    • Total: 18
    • Acolyte
    • ★★
    @rememberdecember

    Hi all

    i’ve been a member of this forum for about 10 days and started treatment through Dr Freeman/FixHepC 3 days ago so I thought it was time to say hello. My details are in my signature.

    There must be hundreds of thousands of doctors around the world but only a handful have had the balls to do something about the morally bankrupt prices big pharma are charging for DAAs. Dr Freeman and has his colleagues have the drive, knowledge, capabilities and cojones to have brought this thing into being. A pretty special combination of qualities!

    Most doctors go about their jobs in a very subscribed way, afraid to put their head above the parapet for fear of being slapped down by their regulatory bodies or line manager or, worse, a lack of true passion for their cause. There are many people for whom a job just a job but I strongly believe that if one chooses a career in healthcare then one must do it because they want to help people and not just for the social status and/or financial renumeration the job entails; the latter two of which I suspect are the main driving factors for most people going into medicine (if they are completely honest with themselves).

    I don’t say this to dis doctors in general. I suspect that if I was one I’d probably be in the lethargy camp. I do it moreover to praise all involved with FixHepC. If I was in charge of things I’d award them the Nobel prize for science.

    Patrick


    45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
    Null responder interferon/ribavirin 2008;
    4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but…
    6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.

    #18710
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Welcome Patrick
    I’m also a peginf riba relapser who found this awesome place and am stoked to tell you that I am now already ten weeks past tx and still UND!!! …… this stuff works and if it stuffs up the retreating is easy too I understand from pals who have experienced that too. Most people here have fantastic empathy for we peginferriba peeps and you will get great support. This is super easy by comparison it was like “gosh where did those 12 weeks go” for me
    The first few weeks I had migraine and night sweats but came up UND by day 30ish so I guess those small sx were just the drug working, after that there wasn’t anything much a bp issue that was easily resolved.
    I wish you well for the ride and a great result we nearly all seem to be clearing with these meds even if some extend tx or whatever it’s all good.
    Keep us updated and there’s so much great info on here, watch out for mgalbrais blogs of latest news etc most informative
    Cheers and welcome again from Ariel

    #18714
    rememberdecember
    • Topics: 1
    • Replies: 17
    • Total: 18
    • Acolyte
    • ★★
    @rememberdecember

    Many thanks Ariel. Agreed: compared to I/R DAAs are a walk in the park!


    45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
    Null responder interferon/ribavirin 2008;
    4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but…
    6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.

    #18719
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Welcome Patrick :+1:


    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    #18720
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Looks like, you, Meg and I are all starting tx around the same time. Congratulations on taking the plunge Patrick! May you always ride with the sun at your back.

    #18732
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Three musketeers! I’m seeing the three amigos And HCV is el guapo

    Fitz Meg and Patrick go get em!

    #18738
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    You got this. Looking forward to sharing your celebrations


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #18762
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Thanks Beaches, and Ariel! No time like the present!!!

    Para todos los amigos y amigas aquí!

    https://www.youtube.com/watch?v=93ErqysWqaM

    #18768
    rememberdecember
    • Topics: 1
    • Replies: 17
    • Total: 18
    • Acolyte
    • ★★
    @rememberdecember

    Thanks all for the good wishes. Let’s do this.


    45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
    Null responder interferon/ribavirin 2008;
    4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but…
    6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.

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