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I just want to say hi and introduce myself. I’m a 52 yo female and have had chronic HCV G3a for 34 yrs, Fibroscan 2 1/2 yrs ago put me in F0-F1. Never had treatment. I’ve been a public outpatient in a Liver Clinic in a Brisbane Hospital past couple of years. I didn’t qualify for Interferon treatment and wouldn’t have done it if i did! My Specialists change regularly and Thank God for my last one because the one I had for a few visits had Very Strong Religious Views re the HepC patients he was seeing. He lectured me on our disgusting western lifestyles and how appalling we all were. I cried my eyes out the whole time. He’d decided he couldn’t watch this anymore and transferred to another area. I had heard about Greg Jefferys and was reading his biog, gathering info for my recent visit down there. This new Dr was Great and after years of being told to ‘wait it out’ I finally had someone tell me Don’t Wait Any Longer! My brother has the same as me BUT he has cirrhosis. The Dr gave me the info on this website, told me to research it and if I wanted to proceed he would provide script and monitor me, along with my GP.
I’m planning on the Sofusbuvir + Daclatasvir combo. I’m waiting to get appointment to organise this. He’d said before I would likely need 24 weeks rather than 12 of treatment – not sure Why?
My brother has been trying to get into a clinic where he is in NSW but he’s waited all year. I’m sending him info about this Club and hoping his GP can help him. I feel very inspired and motivated by all the stories I’m reading on here and hope that my journey will be a success too. I’m sick of living with this virus and fed up with being judged
Thank you and Good Luck to you all 
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThank you James Freeman, once i returned from that appointment i looked up this site and read that article and hence decided on the Sof + Dac treatment – noted it did say 12 weeks was recommended. I’m waiting to get back in to see my GP because she wanted to call the Specialist and discuss things with him. I was hoping she could write the script so that I don’t have to travel to Brisbane – it’s a big hassle a whole day, bus journey lots and lots of sitting around and putting my son in Respite Care
I’ll know within a week anyway.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThanks Coral, so what is the GP2U you mentioned re Dr Freeman? I feel like I’ve spotted it written somewhere else but can’t remember.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HHi Chejai,
Just read your story & am disgusted at the treatment you got from that specialist, what a creep, how dare he treat you like that.
You’ll find Dr James the complete opposite, he’s very compassionate & kind
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I don’t know why people like your past specialist choose to work in this field if they have those opinions.They should be wanting to help people instead of putting them down. Anyway, glad you’re on the right road now, you’ll find the generics very easy to get through.
Soon you’ll be free of the virus
Love Cindi x
Thanks to Joy and you Coral for that info. I spoke to my Medical Centre yesterday, my GP has been off this week, so I don’t know if she has contacted the Specialist in Brisbane yet to find out if he can send the script or if she can write it herself. I now have to wait until next week to see her. This GP2U option sounds interesting – what does it cost? It might be a way for my brother to do this. I’ve sent him the genotype treatment article and other sections from this website to take to his GP because he’s fed up waiting to get into the Liver Clinic down there. He has cirrhosis and is not well at all but really wants to do this.
I’m relieved to have Dr Freeman say I will only require 12 weeks instead of the 24 my Specialist had thought. I’ve been reading the posts on Sof + Dac side effects to get an idea what I might be in for. I have to plan my son’s homeschooling for next year and factor in my treatment/health issues.
This is a great site and everyone is so supportive. I was registered with another HepC forum a couple of years back and a particular person was unnecessarily unkind to me so I left.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThanks Coral, I’ve decided i’ll see what my GP says next week and what my brother’s says when he gives her all the info I printed out and if we get more ‘wait until…’ answers then i’ll go the GP2U route. Because I know from experience the Hospital clinics pretty much shut down over xmas school hols period and i won’t get to see the Specialist until Feb. I’m sick of waiting.
Sounds like your sides aren’t too bad. Given what i’ve been living with for so long now, fatigue, nausea, severe bouts diarrhoea, migraines, peripheral neuropathy and joint pain – surely can’t be worse
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HThank you Joan. It is amazing to read people having good LFT’s after such a short time on treatment. I have never had mine in Normal range since 1st contracting it. I am interested in other chronic symptoms people have had for years BEFORE treatment. Fatigue and nausea seem typical. I frequently register high levels of Urea and my Cholesterol level has been steadily rising over the past year – can’t be explained by diet or hereditary factors – my Dr can’t explain why? Severe bouts of bright orange diarrhoea that was lasting up to 5 days, I couldn’t leave the house. I’ve been prescribed Lofenoxal. I use Inner Health capsules daily – that helps. I understand we are all individuals and will react to the treatment side effects differently.
I just want to get started on it
Thanks again for sharing.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HHi Sarah, I used to pay privately for a Gastro Specialist (at Caboolture) he was the one who sent me privately for a Fibroscan. Realising I needed a Psych assessment and ongoing monitoring and I couldn’t afford it he referred me to the Royal Brisbane – their Liver New Clinic. I had to wait a long time – more than 6 mths? to get in. being public. You don’t get any choice about who you see hence the ‘nice’ Dr with highly prejudiced views
It was decided I was not eligible for Interferon (Yay! didn’t want it anyway) but ‘new’ drugs were on their way and I needed to stay in the system. So, I’ve been waiting in the system for the past couple of years or so. Finally, got a great Specialist that encouraged me, somewhat conspiratorially, to contact this site, do some research and offered to give me a script and monitoring. I’m just waiting to see my GP this week who’s supposed to have contacted him to discuss my plan.
So, if you go public then you get no choice who you see. If you want to know the name of the private Specialist who did my Fibroscan I can tell you but you will still need referral.
Good Luck
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50H
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