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New member Intro 6 years 10 months ago #13016

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Hi Tom, You are doing all the right things. :) I am in the US and also got my script from GP2U and my meds from Kingswood. Rusty their IT guy will call you about an hour before your appt with Dr Freeman and make sure you have your skype setup properly. You need to send copies of recent labs and such. Then you can pay with your credit card to Kingswood and once all that is done it took exactly 10 days to be delivered to my home. I am in my 9th week and was undetected at 4wks!
I wish you the best on your journey to SVR :+1: #flower
GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
The following user(s) said Thank You: Tlondon

New member Intro 6 years 10 months ago #13018

hello.

I m jinsung kim(you can call me jay kim) from south korea.

Many korean hep-c patients are using hopetavir(incepta's generic sovaldi) and Twinvir(incepta's generic harvoni).

i am GT1a. I tried hopetavir and rivabirin for 12wks before twinvir came out. results was good during treatment, but didnt get SVR4 though..

now i am on 2st week of twinvir.

In korea, we have simillar community like fixhep-c. but there is few GT1a. so i want to share treatment stories and tell you korean stories too(many koreans, especially GT1b, GT2, are getting close to SVR).

we koreans mostly have 1b, 2a.

those who get treatment by sofosbuvir+interferon+ribavirin(1b) and sofosbuvir+ribavirin(2a) hit SVR12 even SVR24 alrealdy.

but still no SVRs by sofosbuvir+ledipasvir(1a, 1b) due to the time issue.

In korea, most people use incepta's products.

Thanks for having me in. :)
hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
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New member Intro 6 years 10 months ago #13024

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Adam is a good guy, that's where i got mine. Things weren't quite as settled a few months back though for mail to the US, so I had to call up Adam and tell him I was a guy coming from a little ways out of town. So, I drove up to his shop, picked up my meds like you would at any Walgreens or Rite-Aid, and after 10 days of running around Australia got on the plane and came home. But I took my first pills as soon as I got them same day.

He's a good guy, you will be fine.
GT 2b; since 80's, no prior tx, sofosbuvir and daclatasvir compounded from API's at Kingswood Pharmacy in Sydney, started tx nov 6,2015, undetected at 4 wks, UND at 8 weeks, UND at 1 week after EOT, UND at 4 weeks after EOT and UND at 8 weeks after EOT. " I feel GOOD!! I knew that I WOULD!"

New member Intro 6 years 10 months ago #13043

Hi Jay,
You have found the place for info about generic hcv treatment. Incepta is good. Twinvir for 1a. If you are in your 2nd week of tx, 99.99% if the virus us probably gone. $1600 is not unreasonable, but it is above the going price. The guest-house folks are probably making around $600 a pop.
Talk to Parvez or Leon here. Send them a PM or email me and I will give you theirs
Welcome.
Mike
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: jay kim

New member Intro 6 years 10 months ago #13044

Thanks. I feel so much more relieved since I finally figured out how effective Twinvir is in this forum.

I will talk to Parves and figure out how to get safe medications with more reasonable price.

Jay
hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
The following user(s) said Thank You: mgalbrai

New member Intro 6 years 10 months ago #13045

You can't go wrong there.
M
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

New member Intro 6 years 10 months ago #13143

Bilirubin total...Does anyone know if Bilirubin total 1.5, Bilirubin direct .03, is really bad?

Thank you, Tom

New member Intro 6 years 10 months ago #13144

Check out this in "HCV Symptoms"
TOPIC: LOW < T BILIRUBIN


My lab's T Bilirubin norms are: .2-1.5 mg/dl
My latest result was .5
I don't know if that helps, but there it is.
Mike
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24

New member Intro 6 years 10 months ago #13146

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Hi Tom,

Please see below. Raised Bilirubin is common with HCV and usually drops with treatment. You appear be within the 'normal' range, if a bit high, pretreatment so not "really bad".

It is normal to have some bilirubin in the blood. A normal level is:

Direct (also called conjugated) bilirubin: 0 to 0.3 mg/dL
Total bilirubin: 0.3 to 1.9 mg/dL


www.nlm.nih.gov/medlineplus/ency/article/003479.htm
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Tlondon

New member Intro 6 years 10 months ago #13239

Can someone tell me if Hepcvir or Twinvir is better for 1a. I have a script for Hepcvir but I also have an appointment scheduled for the trials through Monkmed which would likely prescribe one of Incepta's brands.

Thoughts..advice...suggestions?

Thanks Tom

P.S. I know these questions might seem a bit redundant but I am ready to pull the trigger so to speak and want to make the best possible choice for treatment.

New member Intro 6 years 10 months ago #13247

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Hi Tom,

Is your script for Hepcvir or Hepcvir-L? Hepcvir on its own isn't enough as it only contains Sofosbuvir. You require both Sofosbuvir (400mg) and Ledipasvir (90mg).

Now, I'm not a doctor (or a marketer as you will see :P ) but:

Both Hepcvir-L and also Twinvir contain Sofosbuvir and Ledipasvir as the active ingredients in the same quantities so it shouldn't make any difference from a treatment perspective. Things may have changed slightly but as far as I was aware the Redemption trials supply multiple brands as the aim of the trials is to prove a range of generics. I would assume that Monkmed as the coordinators of the trial would supply randomly by patient. However, they may take into consideration things like anticipated customs reaction to particular brands or country of origin depending on where the patient is located, so political reasons rather than medical. ;)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: mgalbrai, Tlondon

New member Intro 6 years 10 months ago #13248

Hi Tom, MonkMed as far as I know, offer licensed Indian medicines. For Genotype 1a, it is Hepcivir-L. As Gaj says though, things 'may' vary from country to country, I suggest you ask them directly and you may also be offered an appointment with one of the MonkMed Drs to advise

I'm sure it will all go well, MonkMed are excellent and good communicators.

Best wishes for your treatment.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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New member Intro 6 years 10 months ago #13249

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Sorry, miss read the post.

I would think your script should be written for any combo of sob/led and you'll then
receive what ever generic Monk Med sends.
Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.

New member Intro 6 years 10 months ago #13285

Whatever you get from MonkMed and REDEMTPTION will be exactly what you need.
No matter the brand.
You are about engage in some serious virocide.
Your biggest issue right now, if you are anything like me, will trying to stay sane during the shipping stage.
M
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G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: LondonGirl, MonkMed

New member Intro 6 years 10 months ago #13297

MonkMed works with GILEAD licensed medications only. For REDEMPTION-3( Sof+ Led) it is Cipla Hepcvir L and for REDEMPTION-2 it is Mylan MyHep(Sof) and MyDacla(Dac). Because the medications are from reputed pharmaceutical companies( E.g. Cipla is big name in UK and Mylan is a US manufacturer) doctors of respective countries have been more forthcoming to monitor patients as they are more comfortable with brands they prescribe for other ailments.

All REDEMPTION participants avail MonkMed doctor consultation services at no additional cost for duration of treatment of 12-24 weeks and if required any post treatment.

This link has some of our esteemed participant's kind words about us.

fixhepc.com/component/search/?searchword...hrase=all&Itemid=271
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