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New member Intro 3 years 6 months ago #16134

  • Debs
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Thanks Mike, very succinct! :) :+1:
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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New member Intro 3 years 6 months ago #16136

  • Ariel
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Welcome Mike good luck with tx and yes what Mike the other said :) :+1:
From Ariel who is now clear of HepC thanks to FixHepC go for it Mike :+1:
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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New member Intro 3 years 6 months ago #16138

  • Gaj
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Hi Mike,

I believe shipping to the alternative UK address would be your best option due to Irish customs laws. Importing 12 weeks medication at a time there is okay with appropriate documents and prescription complies with that requirement.
With your co-infection the Redemption trials via an initial consultation with www.gp2u.com.au is a good option as Mike suggests. Participation in Redemption also provides ongoing medical support from the Monkmed team per below post from them:

fixhepc.com/forum/new-to-forum/327-new-m...html?start=135#13297
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 6 months ago by Gaj.
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New member Intro 3 years 6 months ago #16140

  • mgalbrai
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We need another Mike.
Then we could be like the brothers Darrell on the old Bob Newhart Show.
Or, like the three "Joses" in one of my classes:
Hose A, Hose B and Hose C...
Summer is almost here....
This old teacher is going batty...
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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New member Intro 3 years 6 months ago #16143

  • DrJames
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We could just rename everyone to Bruce

YMMV
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New member Intro 3 years 6 months ago #16149

  • Hazel
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[
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
Last Edit: 3 years 6 months ago by Hazel. Reason: trying to delete. wrong thread
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New member Intro 3 years 6 months ago #16161

  • Dubaichic
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Hello,

I'm here finding help for my boy. I managed to secure him generic sof-led just two days ago.

He is what you call naive - low viral load and no involvement thankfully.

He's on a bit of an emotional roller coaster which I completely understand.
But I'd like to help him to get beyond it.
Without sounding crass or cliche'd.

He's become very indecisive and who wouldn't being faced with this awful disease.

Any tips or point me in the right direction I would be grateful. Thank u
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New member Intro 3 years 6 months ago #16165

  • DrJames
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I am assuming your boy is <18. If so you may find getting in touch with CJ helpful:

fixhepc.com/forum/patient-stories/311-yo...e-dragon-slayer.html

is the story of he treating her 15 yo (now 16 yo son) with DAAs. He is SVR12 and it was a more comfortable run than the Interferon/Riba he was offered (actually he would still be on treatment with that, and with a 50:50 chance of cure).
YMMV
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New member Intro 3 years 6 months ago #16169

  • Dubaichic
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Hello

Thank you for your reply. He is 26years old and thankfully came home and explained what had happened.

He's a very young 26yr old.

He started the meds, I'm trying to encourage him to eat much cleaner, so cut out junk and pop etc.
But still eats too much fried foods.

He has fatty liver which runs in our family but no other stuff going on. I checked his blood work and it looks great right now.

I was unsure what the blood work would be for his 4/52? I read Cre and thought I've not seen that before, can I ask please is this creatinine?
I've ordered FBC, viral load, liver function but am unsure about the Cre?

Thank u! So grateful for this site and thankful to Parag who suggested it.
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New member Intro 3 years 6 months ago #16170

  • mgalbrai
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Hi D,
Most of us had HCV longer than your son has been alive and we're still scrapping around causing mayhem and mischief.
If he can digest fried food with no issues, that's a good thing. My sudden-onset, sometimes violent dyspepsia, led to my eventual HCV diagnosis.
The thought of fried anything literally turns my stomach.
I'm glad he's onboard with this. It's not a complicated or hard treatment.
m
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forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
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New member Intro 3 years 6 months ago #16171

  • Dubaichic
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Thank you!

I have already lost a son to cancer and the thought of watching my son suffer with hep c is just devastating. So this gives me hope.
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New member Intro 3 years 6 months ago #16172

  • Gaj
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Hi,

It sounds like your son has only had it for a short time which is good news as HCV usually takes decades to cause serious damage. In which case if he can cut back on pop and junk food during treatment it won't hurt but the main thing is that he makes sure he takes his pills regularly. I think most of us have experienced strong emotions initially on treatment whether from the medication or the chance of a cure but usually that settles down with time.
As Mike says, it is a straightforward treatment and he has everything in his favour from his age to the length of time he has had the virus so you both can relax and be glad that we now have these medications available to treat him before the complications set in. :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
Last Edit: 3 years 6 months ago by Gaj.
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New member Intro 3 years 6 months ago #16182

  • CJ
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Hi Dubaichic,

Sorry, only just seen your posts.
I'm sorry for you, the loss of a child must be dreadful.

Your boy with HCV will be ok.
My son is 16 and Dr Freeman helped him.
He had the Sof/Led and sailed through, no side affects and it worked brilliantly, so try not to worry.

Please tell your son this, and if you would like to chat at all I'd be really happy to.

Just PM me and I'll send you my phone no.

Where abouts are you?

We are in Sydney.

Hope it all goes well for you and your son. I know it's frightening, but really, it's an easy treatment, and it works!!!!
:cheer: :cheer:

Love Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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New member Intro 3 years 6 months ago #16192

  • Bob in ireland
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for Dr James F - am halfway through sof/dac did additional riba for the first month- then stopped it- would you recommend taking it for thest few months or month of treatment as a security measure against any mutant viral strands ?? or can it be taken alone for a month at EOT ?
any feedback appreciated
best wishes from
Bob in ireland :)
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New member Intro 3 years 6 months ago #16193

  • DrJames
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Hi Bob,

I presume you stopped the Riba because of the sides. It takes 21 days to drop by half so you will have had nearly 6 weeks worth. It's not something usual, but will certainly have done no harm. Monotherapy with any drug, even Sofosbuvir is a bad idea so don't take it after treatment.

Given you've stopped it I would stay stopped secure in the knowledge you hit the virus hard at the start.
YMMV
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