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TOPIC: Starting tx tomorrow night

Starting tx tomorrow night 9 months 3 weeks ago #25881

  • SHarmon
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Got my three boxes of Harvoni generic and will be starting treatment tomorrow night so that I get a day to get used to it before work and to get rid of things that I should eat while on treatment and replace it with "approved" food :)
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Starting tx tomorrow night 9 months 3 weeks ago #25885

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Congratulations Sharmon on your decision to get treated and to take control of your life. We hear from patients all the time that within just one week of starting their treatment, they feel much better than they have for years. Please also remember to drink plenty of water and to get plenty of rest, best of luck.
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Starting tx tomorrow night 9 months 3 weeks ago #25895

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On day 4 today and no side effects yet. Drinking lots of water and keeping my multivitamin and Omega 3 and Zinc tab 12 hours on either side of the tx. Doctor was contacted for 4 week blood work and my family doctor and the MD at the liver center are deciding who will manage the treatment.
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Starting tx tomorrow night 9 months 3 weeks ago #25897

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On day 4 today and no side effects yet.

And the first few days tend to be the time where we see a bit of a flu like illness in some people, so, fingers crossed it continues to be a big yawn.
YMMV
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Starting tx tomorrow night 9 months 1 day ago #26008

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4 more pills left for the first 4 weeks and no side effects so far. I have 2 alarms set for 7PM and all doses have been taken within an hour of this time. I've tripled my water intake and the initial weight loss has stabilized (13 Lbs in the first 2 weeks). I have my referral for my 4 week blood work due on the 19th. Quantitative RNA /Ferritin levels / CBC . No AST for this one but I will get that for my EOT bloodwork. Much higher energy levels and no compulsory naps after work.

I am using disposable razors now and 3 days tops and they get trashed , tooth brush for the last four weeks is a pack of 20 cheapie ones pitched after 3 days of use as well. My main brush (Sonic Care is sorely missed and I bought new brush heads for it when I finally get to use it again.). L-Arginine and L_Lysine intake is through natural source only (red meat , fish and chicken) Just in case. No energy drinks and no supplements except Centrum 50+ , Omega 3 , 50 mg zinc and 1000 IU of D3 12 hours away from the dose.
Last Edit: 9 months 1 day ago by SHarmon.
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Starting tx tomorrow night 9 months 1 day ago #26009

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I'm looking forward to hearing about the results of your first test!
YMMV
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Starting tx tomorrow night 8 months 4 weeks ago #26026

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Hi Sharmon,

Four weeks already and no side effects has to be good. You are taking such good care of yourself - well done you. Post those results when you get them. #flower

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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Starting tx tomorrow night 8 months 3 weeks ago #26093

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Went for my 4 week test on Monday and will get the RNA results from my doctor on the 27th but the online results available that are abnormal are :

Platelet count = 132X10*9 /L (155 bottom of normal)
Monocytes = 0.9 x 10*9/L (0.8 is top of normal)

Ferritin is normal at 84 thankfully
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Starting tx tomorrow night 8 months 2 weeks ago #26136

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fingers crossed for you
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Starting tx tomorrow night 8 months 2 weeks ago #26164

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Have to wait a little longer , Ontario has a stranglehold on the test facilities for PCR testing (Only one is allowed to do the testing). Maybe by Friday I will know I hope.



Can a mod please move this into the appropriate section ?
Last Edit: 8 months 2 weeks ago by SHarmon.
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Starting tx tomorrow night 8 months 2 weeks ago #26168

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Hello SHarmon,

Sorry to hear you're results are dragging. There is a lot of anxious waiting during treatment. It should be fine.

Patient Stories looks like the right place for this thread.
YMMV
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Starting tx tomorrow night 8 months 1 week ago #26176

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Thinking of you Sharmon,
I hope you have your results soon and can make plans for the rest of tx and be HCV free. Sending love and happies to you, hoping that you are doing okay with the anxiety of waiting it’s always a bit of a grind imho
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Starting tx tomorrow night 8 months 5 days ago #26239

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No results less than 5 weeks before testing in Canada because of a monopoly on testing that a single lab paid the government for 3 years ago. No testing except if you have an actively infected partner or jump through hoops to force them to. I will have to go to the US at EOT to get the final test done so I can get my answer before fall. A little disgusted with the Canadian health system at the moment. 1 year wait times for treatment after a 6 month wait after testing. Add a 2 month wait time for testing to make testing all but useless for during treatment progress. I will give the results once I get them back , not holding my breath for the Canadian system to wake up any time soon.
Last Edit: 8 months 5 days ago by SHarmon.
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Starting tx tomorrow night 8 months 5 days ago #26240

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Hi Sharmon,

I find this odd about your not being able to get tested. I am also in Canada and I have had no problem getting tested by PCR on numerous occasions.

I had a PCR when starting treatment ,again at the 4 weeks,8 weeks and just the other day at 12 weeks and will have another at EOT.

Plus all my results have been posted to me online within 4 -5 days of the test being done.

Sounds to me like possibly your doctor is not properly advocating for you?

I wish you the best of luck..

S
Diagnosed: 2001 GT1a , HCV since mid-70's.
Biopsy 2010 F1
Fibroscan and Fibrosure 2018 F2

Treated in trial 2010 with Dac/Peg/ Riba and Relapsed.

Resistance test 2017. Have Ns5a Rav Q30r/H58d enhanced from doing Dac.

Start Tx. Jan 18th/18 w/ Vosevi /Riba 12wks. plus 6 wks.Viekira Pak +Sof/Riba(From Dr Freeman @GP2U)

VL start: 1.6mill.ALT 125 AST 88
Wk. 4 Det @LLOQ <15.
VL Wk.8 UND Alt &Ast 22
Wk. 12 UND
EOT:UND

EOT+12 >>>UND (SVR12)! ALT11 AST13
Nov6/18 SVR 24!
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Starting tx tomorrow night 8 months 4 days ago #26242

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I’ll be waiting for your results too
Hang in there and I hope like Songbird says you get good medical assistance with obtaining your PCR RNA asap
Love from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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