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6 years 9 months ago #211

Had to check where you were at because I thought you were waiting for meds to arrive but I've confused you with someone else, dointime.

Uh! What is going on in the UK? I've posted a bit on a UK forum. I thought it was bad here but the UK seems to be in the dark ages on this stuff. They still seem to be prescribing interferon combos at a furious rate. What's up with that? Yesterday's drug AFAIC.

I'm in Tassie and happy to extend the same offer as emilio. You can come stay here if you want. Plenty of room. TBH I have a bit of a kind of "survivor guilt" over all this. Doesn't feel right that I can get on with the rest of my life while others hang in limbo or worse.

The initial resistance to people going with generics has pretty much disappeared here. I'm being monitored through the local public hospital (I think they're actually finding it quite helpful to be getting lots of experience with people on the new drugs before they finally get funded). Apparently even BMS who supplied my Dac under compassionate access know people are getting the Sof from India and China and no longer care. Although I think that's largely because they're being cut out of the action by Gilead's pricing.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12

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6 years 9 months ago #212

Hi Chester,

Many thanks for the offer to stay. So kind, survivor guilt notwithstanding. Yes, I think it is marvellous what is happening in Oz and Tasmania. Feels like a renaissance taking hold over there in the midst of a sea of darkness all around.

Sometimes I even find it funny how closed UK society still is. For example I found out that there are no compounding pharmacists here for individuals to access. Why? My guess is that Big Pharma doesn't want people making their own formulas at a fraction of the cost. So I looked all over the internet to see if i could get hints and tips on the basics of successfully encapsulating the Chinese APIs myself. The most useful advice didn't come from pharmacists or herbalists, it came from the illegal substance users who are well used to manipulating small amounts of various powders. I now know how to scoop, weigh and fill the caps and have been duly warned not to try it while on LSD. :)

dt

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6 years 9 months ago #213

I believe the testing only takes 24 hours and is all done in Tassie, compounding might add another day or so. I've just been reading up on the contraindications particularly in regard to the Daclatsavir and interactions with CYP enzyme. : fixhepc.com/forum/experts-corner/108-dac...ractions-cyp3a4.html . Shit I'm still on AD (Sertraline) from my last tx mainly due to laziness and not wanting the hurt, along with knowing that I'd treat again soon. I'm waiting to hear back from James about this as there seems to be weighting for each drug and it's interaction. Might need to start weaning or it may be okay? Not sure? I'm on 50mg daily. Em


Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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6 years 9 months ago #229

Hi Stranger
You can capsulate them yourself. Easy. I cap Turmeric as well as Moringa. For less than $50US, you can do it yourself. So much for our trip to India.

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6 years 9 months ago #230

Hi panamajo

Yeah they can be filled with a range of stuff, however, given that my APIs are being tested I thought for an additional $70AU why not get it done at the same time. Yeah that would have been good and I'll work out who you are don't tell me. Thinkin australasia lol Em


Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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6 years 9 months ago #235

Hi panamajo - fancy meeting you here!
Yes our trip to India seems less likely by the day. Amazing what can change in a few short months. Time to get the lab gloves on methinks,
dointime

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6 years 9 months ago #287

Hi guys,

For those in the UK why not buy direct from The buyers club offered by Dr Freeman?


Sob/Dac from Oct 29 2015
Geno 1b
Fiberscan 9.9 Pre treatment
Fiberscan 7.4 week 10
VL 1.3 million pre treatment
Week 2.5 VL 96
Week 5.5 VL 17
Week 10 VL UD
SVR 3 UD
SVR 16 UD
Cured:
All liver functions in normal ranges.

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6 years 9 months ago #290

Hi Dointime. Well, I did it, I ordered from Mesochem. I was going to email you today. :cheer:

Last Edit: 6 years 9 months ago by panamajo.

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6 years 9 months ago #292

Hey panamajo

Good for you. I was having a little private bet with myself that you would. I know that you were in a hurry to treat.

One of the things I like about the Mesochem option is that it goes straight from the hands of Mesochem into the hands of Fedex. While that is not a guarantee of supply line integrity, it's better than the India option where you get it from the hands of a distributor and who knows where it's been before that on its way from the manufacturer. I mean, not that you can't find a trusted Indian supply, just that you need a little more faith.

Best wishes for your tx. Please email me anytime, let me know how you're getting on.
dointime

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6 years 9 months ago #294

Dointime. If interested, write to Dr Freeman, he gave me great service. I think you will do best if you go through him to get your meds.
Joanne

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6 years 9 months ago #308

Hey Emilio,

Have you got your Mesochem Dac tested from Australian lab and if so would you mind sharing the test report please?

Thanks
Ahmad

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6 years 9 months ago #312

Hi Amad

Dr Freeman has advised this should tomorrow so i will upload the results then. Em


Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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6 years 9 months ago #355

Hi everyone,

Given that my mednis here in oz safe and sound ive headed up the coast for a weeks break before i commence my tx. Still waiting on api testing results and will upload once i receive. Still on the forum ocassionally, but having break from our world for a few days. Em


Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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6 years 8 months ago #603

Hi Everyone

Meds are tested compounded and due to public holiday in Victoria today (Friday) and then in NSW on Monday my meds won't arrive until 7/10. That's funny, 3 days to get from China to Australia and 8 days to get from Tasmania to NSW, obviously the public holidays have made good old Australia post look average. Baseline liver testing today, so I wait patiently until next Tuesday. Em


Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.

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6 years 8 months ago #604

check out the article below which was in the Sydney Morning Herald today:

www.smh.com.au/national/health/fixhepc-t...20151002-gjzud9.html

Em


Geno 1b F2/3 snce early 80s. Treated in 2008_9 for 63 weeks on INF/Riba. Commence Sof/Dac on 6 October 2015 and completed 18 weeks of tx. UND at 4-6 weeks, UND at EOT, SVR 2, SVR 6 and SVR 12 on 6 May 2016.
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