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6 years 8 months ago #2722

Sure Jolie it has given us treatment power, but these drugs do need expert advice. Please don't do any drug combinations without expert advice. Drugs interact with each other. You could end up with organ failure if not following the experts. We do this is cause the drugs are far too expensive not the drug combinations are wrong. I am a 3 non responder with cirrhosis, a hard to treat category, even though desperate to clear this virus, I wouldn't mix medicines. kindly

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6 years 8 months ago #2726

Please don't worry, I won't be mixing anything myself. Said that the med I have in mind is already approved with combination of Sofo it,s called Velpatasvir. The trials have been all already completed, best so far tx for Geno 3,
I already suggested it to Doc James as possible Redemption 4'


Geno 3, Fibro 8.7 pKA, tx experinced in 2005 - Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 - down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA - UND. - down from 2 ML
9 weeks HCV PCR RNA - UND.

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6 years 8 months ago #2729

ok i have my eye on velpatasvir if the stuff i am taking doesn't work. i would try and persuade greg or the doc to source a decent , reputable supplier. kindly

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6 years 8 months ago #2730

No you can't get Semiprivir separately. My gastroenterologist was initially open to the idea of prescribing it for use with Sof if I couldn't get anything else and chucking away the interferon as it would still be saving the government money. But on reflection, he had concerns it might be considered fraud and then the comp access dac was available so it was a moot point. I was talking to someone from Hep NSW the other day and told them they should lobby for Semiprivir to be listed separately as it could be helpful in some hard to treat cases. Doubt they'll do anything about it though.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12

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6 years 8 months ago #2731

I remember reading on Greg's blog that Semiprevir is available on it's own, from the chemist with a script from your doctor. So I dug it out, under Sept. 3:://hepatitisctreatment.homestead.com/hepatitis-c-treatment.html

Perhaps the good doctor could clarify.


NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.

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6 years 8 months ago #2734

I thought velpatasvir is the GS 5816 drug that has been trialed recently. All these "svir's" getting me confused.

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6 years 8 months ago #2739

Joy wrote:

I remember reading on Greg's blog that Semiprevir is available on it's own, from the chemist with a script from your doctor. So I dug it out, under Sept. 3:://hepatitisctreatment.homestead.com/hepatitis-c-treatment.html

Perhaps the good doctor could clarify.

See here:

www.pbs.gov.au/medicine/item/10197q-10200w

Click on authority required. James has previously said he can't prescribe it. Think he said that only 2 docs in Tassie could one of whom is my gastroenterologist at RHH liver clinic. If you look at the PBS entry including the "Note" section you'll see there's all sorts of hoops to jump through in regard to the prescribing of it.

God I am so effing sick of typing with one finger on my left hand.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
The following user(s) said Thank You: Joy, zhuk

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6 years 8 months ago #2740

What happened? Shouldn't the cast be off soon? Did they do surgery?

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6 years 8 months ago #2741

Sorry all, I stand corrected. Didn't realise you were still in plaster Chester. Good job! ;-)


NSW Australia. Genotype 1b 30+ years, F0-F1, VL 91,000 Feb 2015 (740,000 in 2010), Tx naive.
Ordered Sof/Dac from Buyers Club 21 Sept, received 14 Oct.
Virus UNDETECTED at 3 weeks AND 12 weeks (EOT) AND SVR4 AND SVR12 AND SVR24. :-)
A thousand thankyous to Dr James and the amazing FixHepC team.

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6 years 8 months ago #2743

Hmmm very restrictive criteria Chester. And it must only be prescribed with Intf & Riba on the PBS - not helpful

Hang in there em, I'm sure there's a combo out there which will work. Lots of knowlegable people on here all looking our for you.


GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

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6 years 8 months ago #2744

klhilde wrote:

What happened? Shouldn't the cast be off soon? Did they do surgery?

Comes off Tuesday thank god. I can use it for a lot of things but the cast won't let my wrist flex so still not much good for typing.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12

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6 years 8 months ago #2745

sorry about the difficulty but its for genotype 1. The GS 5816 is genotype 3, whatever kind of "svir" it is. kindly

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6 years 8 months ago #2746

Chester wrote:

klhilde wrote:
What happened? Shouldn't the cast be off soon? Did they do surgery?

Comes off Tuesday thank god. I can use it for a lot of things but the cast won't let my wrist flex so still not much good for typing.

Good to hear you're on the mend mate...once the cast is off you should improve. I had shoulder surgery 3 months ago but unfortunately have nerve issues now, looking at MRI/nerve conduction tests in Dec


GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26

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6 years 8 months ago #2748

Your first problem with velpatasvir berri will be finding a generic maker who doesn't need a script for it. Don't think it's TGA approved yet so no one in Oz will be able to prescribe it. Think the FDA has either just approved it or is close to doing so.


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12

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6 years 8 months ago #2750

Thanks, my current treatment is for 24 weeks. By the way I have been really struggling physically with this treatment. Couldn't exercise as usual, nanny naps, particularly after eating so tired I had to sleep. Now at the 8 week mark. Complete change. Very strange. kindly

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