Home › Forums › Main Forum › Patient Stories › Afraid to take the meds due to severe anxiety

Viewing 15 posts - 91 through 105 (of 118 total)
1 2 3 … 6 7 8
  • Author
    Posts
  • 22 April 2016 at 4:58 pm #16019
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    #woohoo!

    Fantastic news Hope. :+1: #flower :cheer:

    I hope you stuck your tongue out at your doctor in front of everyone in the waiting room!!! :P

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    22 April 2016 at 8:10 pm #16035
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    I was too happy to do anything :) anyway we talked on the phone ;)

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

    23 April 2016 at 1:22 am #16040
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations Hope
    I’m very happy for you waiting is tough and even more lonely with a rude medico to put up with
    You got this now which is just so fantastic
    I just woke up to your awesome news so happy for you
    Big hug
    Splashing happies for you Hope
    #flower #flower #flower
    Love from Ariel

    23 April 2016 at 8:33 am #16053
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Congratulations Hope!

    #woohoo!

    Onwards and upwards. #flower

    23 April 2016 at 11:08 am #16062
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Oh Hope, such great news.
    SO happy for you!!

    ….Would’ve been fun to do what Gaj suggested :lol: :lol: ;)

    xo

    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    23 April 2016 at 11:29 am #16064
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    That’s so good, Hope.
    So that nasty excuse for a medical expert can go to the far queue     :P :woohoo: :cheer:

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    24 April 2016 at 11:46 am #16112
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Hope,

    That is such fabulous news. What shocking behaviour from your doctor but a great outcome for you.
    I was a slow responder but never lost faith that I’d kick it in the end. Well done you! :)

    Coral

    18 May 2016 at 11:31 am #17396
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    Hey all, I’m not opening a new thread, but if I would, it would say something like “Hope’s reached EOT”.

    It’s been quite a ride for me. Only last 3 weeks were a bit easier.

    Now I have a perfect blood picture, I’m hepC free and I’m REALLY hoping it stays like that. So it mos def was worth the troubles!

    Hitting some alcohol, garlic, mangos and fresh orange juice now :)

    Thank you all for caring and turning the world in to a beter place!

    Forever grateful to Gregg and Dr.Freeman #love

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

    18 May 2016 at 12:16 pm #17398
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Fantastic HOPE congrats on EOT and HepC free
    I’m so happy for you it’s been a bumpy ride and I wish you smooth sailing to SVR now
    You sound wonderful yay! No more meds
    Splashes of happiness for you
    Ariel #flower #duck #love :+1: #flower

    18 May 2016 at 12:19 pm #17399
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj
    Hope wrote:

    Hitting some alcohol, garlic, mangos and fresh orange juice now :)

    Wow, you drink interesting cocktails Hope! :P ……but ‘salut’ to you reaching EOT. :+1: :cheer:

    Looking forward to hearing of your successful SVR. #rainbow

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    18 May 2016 at 12:23 pm #17400
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Hi Hope, so very good to hear from you. #flower Yes most definitely an interesting ride for some. :woohoo: Congratulations on achieving a perfect result. :) Very much worth the ride hey! :+1: Wishing you the very best for all SVR’s X #love

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    18 May 2016 at 1:25 pm #17405
    Tricia
    • Topics: 1
    • Replies: 38
    • Total: 39
    • Treatment Warrior
    • ★★★
    @tricia

    I’ve only just read this thread and it’s such a beautiful read. Incredible support by everyone and way to go Hope with your perseverance and successv :+1:

    This post by LondonGirl is just brilliant, love it, so positive & comforting to anyone feeling anxiety about the meds.

    LondonGirl wrote:

    I agree with Life, my biggest side effect has been cheeriness :cheer: #love

    reg nurse and wife of:
    genotype 3 (probably since ’75), f4, cirrhosis, Tx naive
    Oct ’15 – Dx hcc
    Pre Tx — VL: 330,000……, AST 202, ALT 137, Bil 24, ALB 30
    04/11/15 -Sof & Dac
    30/11/15 -VL: 80……………., AST 28, ALT 18, Bil 12, ALB 32
    06/01/16.-VL: not detected, AST 29, ALT 16, Bil 13, ALB 34
    01/02/16 -VL: not detected, AST 28, ALT 16, Bil 13, ALB 36

    .

    18 May 2016 at 5:51 pm #17423
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    Hope, you wrote:

    I also have high glucose which I never had before…apart from my high level of iron. Anybody else got this?

    I’m on a low carb diet, my intake of sugar is low, and I drink plenty of water…[/i]

    Hi Hope

    My fasting glucose level has shot up to 11.9 … unfortunately, it wasn’t tested immediately prior to treatment … the last time it was tested, in 2012, it was 6.2 and then 6.0.

    I too am on a low carb diet, drink plenty of water … and I exercise every morning.

    I was wondering if the increase in blood sugar affected your treatment? Also, how long did it stay high?

    At first I was pretty worried about it. However, I’m feeling really good, and feeling better as time passes, with no side effects. So, I’m hoping that the raised blood sugar may only be temporary while on treatment.

    Regards
    GT2

    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    18 May 2016 at 10:51 pm #17441
    Hope
    • Topics: 3
    • Replies: 30
    • Total: 33
    • Treatment Warrior
    • ★★★
    @hope

    Hi GT2, my glucose was high only around week 4, by week 8 it was ok and EOT it’s fine. I didn’t worry that much about it and it passed… worried more about high iron but that passed too. Funny thing is that usually iron is not monitored during hcv tests so I’d say manny might have it high but don’t even know.
    Monitor it and hope it’s gone soon :)

    thank you for all your wishes folks…a lot of beautiful ppl here #love

    GEN3 for 20+ years
    November 2015: Bilirubin 6, AST 0,88, ALT 1,74, gamaGT 0,17, HCV RNA 43800 (previous 478000)
    Fibroscan form 4,3 do 6,9 (measuring twice a year)
    Started Sof/Dac on 23.2.2016
    Week 4: S-Bilirubin: 12, S-Bilirubin dir: 4, AST: 0,30, ALT: 0,36, Gama GT: 0,17, Fibroscan: 4,4, still HCV RNA positive (no VL measured)
    Week 8: S-Bilirubin: 8, S-Bilirubin dir: 3, AST: 0,39, ALT: 0,39, GamaGT: 0,14, UND 🙂
    16.5. EOT, everything like it’s supposed to be 🙂
    6 month after EOT still UND 🙂

    19 May 2016 at 1:07 am #17445
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Well done Hope!
    I am delighted to hear such good news from you.
    You will join all SVRs clubs soon.
    Happy EOT and only UND!
    #love #love #love
    star_80_anim_gif-2.gif

    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

  • Author
    Posts
Viewing 15 posts - 91 through 105 (of 118 total)
1 2 3 … 6 7 8
  • You must be logged in to reply to this topic.