Ariel takes the Plunge

This topic has 518 replies, 47 voices, and was last updated 6 years, 9 months ago by Ariel.

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17 September 2016 at 2:03 am #23041
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
this is for you Ariel

I love listening to Apocalyptica
you introduced me to beautiful cello sounds
by
putting this vid up a while ago
#repeat

so beautiful

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
17 September 2016 at 4:56 am #23048
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Wow, wow that is amazing!
I like Metallica and think they are underrated

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
17 September 2016 at 5:08 am #23049
Ariel
- Topics: 3
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- Total: 1,063
- Guardian Angel
@ariel
Have a listen to Apocalyptictica doing Enter Sandman Beaches
A
17 September 2016 at 5:32 am #23052
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 September 2016 at 1:23 am #23084
Ariel
- Topics: 3
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- Total: 1,063
- Guardian Angel
@ariel
And his face is pretty much how I felt when I got my call from my GP on Friday late avo to say I have SVR24 UND…ty beaches. Long live metal heads
18 September 2016 at 6:56 pm #23109
fitz
- Topics: 9
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- Total: 499
- Guardian Angel
@fitz
Woohoo! CURED!!! Congratulations Ariel!

Time to break out the bubbly!
19 September 2016 at 9:38 am #23127
Ariel
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- Guardian Angel
@ariel
Thankyou Fitz for your good fishes, errr I mean wishes illy:' />
I always love these gifs you find they are fab…I found this I think it pretty much sums up the happies I feel from being free. A very funky mermaid this one!
21 September 2016 at 10:01 pm #23191
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Dear Ariel

What fabulous flippin’ news – As you guys say “I’m stoked for ya” !!

Biggest hugs and congratulations my friend across the seas.

When you come to London next, we’re having that glass of champers, no matter what and somewhere nice too

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
23 September 2016 at 3:03 am #23218
Ariel
- Topics: 3
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- Total: 1,063
- Guardian Angel
@ariel
Thanks so much LG Yes I am STOKED and I am still waiting here at the finish line for ya
Re Mandatory champers …. considering I will break my zillion year no booze drought, then after the 24 hour flight I will stagger out at Greens Park Station okay? dragging my case with dreadlocks, take a shower, go to a salon and spend thousands of pounds on a makeover, because we roll that way yeah, say hit up Knightsbridge? illy:' /> illy:' /> illy:' /> Yeah, I reckon we go cray cray. Let’s start in London, Harvey Nicks Roof Garden a la Pats and Edina, Two stops, Eurostar then TGV to Nice, champers in Negresco, a stroll along Promenade des Anglais playing dodge the draguers at dusk? illy:' /> ( How does Ariel know these good champers places?)
See LG you’ve got me dreaming, I can see our convertible whizzing around the road up to Monte Carlo from Nice now…oh gawd lol…we are wearing our flares with your liver on them!
23 September 2016 at 10:53 am #23231
LondonGirl
- Topics: 16
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- Total: 1,364
- Guardian Angel
@londongirl
Absolutely fabulous darling!

Jeez, I’m laughing out loud right here on my own, funniest post I’ve read ever Ha!

it !!!!

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
23 September 2016 at 3:30 pm #23234
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Look out, Europe

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
16 November 2016 at 12:58 am #24307
Ariel
- Topics: 3
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- Total: 1,063
- Guardian Angel
@ariel
Hello forum
Reporting in after SVR24 etc a while back because I have an important query
Now that’s in my past and I have stepped back and re-evaluated my situation after losing my professional career to interferon after the patching up post cure such as $3,500 on teeth that were perfect pre peginf, having all scans and colonoscopy etc blah blah I have realised how much money this has cost me and I am forced to sell my home.

So:

I’m also now extremely tired again in phases
I’m not in a reinfection risk cohort
I’m not a drinker or druggie as a person here once pinned on me very vindictively.

I’m a regular mum and white collar.
Recently I started feeling very tired again
I’m better than before cure but not like a regular person

I’m absolutely positive that peginf has stuffed me up.
The deafness is unbelievable
I suffer such loud tinnitus 24/7 it’s like several dog whistles all at once at high decibels it never stops
I still suffer anxiety
My shoulders feel like concrete
I do transcendental meditation which I have practiced for 25 years
I do yoga

I have had periods of emotional feelings since SVR that are most peculiar and unexplained

I hope I haven’t got Hep B
I read on here that Harvoni causes hepB !!!!!!!! I want the truth about it please.
I was immunused it came with my professional role. But how do I know if I had had HepB before as I was never tested? I did have a medical procedure in a third world country in the late 80s remember and I got HepC that way they think so how would I know nobody ever checked me.

What are the symptoms?

SO I have been immunised for Hep B but IF I did have it before that and cleared it spontaneously could I have it now?

I would appreciate a straight up answer to this query so I can request a blood test if needed. I will NOT be having one “for my peace of mind” or any other histrionic reason only if this is a real risk a proven risk and my post here is considered respectfully.
Thank you for your consideration of my query.
Wishing all well
Ariel
16 November 2016 at 1:08 am #24308
Tommy
- Topics: 16
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- Total: 104
- Guardian Angel
@tommy
http://www.raps.org/Regulatory-Focus/News/2016/10/04/25946/FDA-Adds-Boxed-Warning-to-Hepatitis-C-Drugs-Warns-of-Hepatitis-B-Reactivation-Risk/
Harvoni doesn’t cause hep B. But, if you have hep B while you are on Harvoni or other DAA it can cause HBV reactivation.
It seems a very very small number of people reported it. I hear nightmare stories of “post interferon treatment” almost daily from various hep C blogs and forums.

Genotype 1A
ALT 473
AST 226
Virus Load 3,119,030
Results as of May-2016
5 week viral load/undetected as of 12/02/2016
Liver Biopsy Results from Feb 2013
Portal/Periportal chronic inflammation and mild interface hepatitis (Grade 2)
Focal Lobular chronic inflammation (Grade 1)
Portal/Periportal fibrosis (stage 1-2 trichrome and reticulin stains utilized)
Negative Iron stains.
16 November 2016 at 1:42 am #24309
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Ariel my dear
First off I am feeling so devo for you. It is Not Fair. Hopefully any plans you have come to fruition.
Tommy is right. The DAAs do not cause Hep B. You are not a risk. Doctor James has posted information about this issue that even I could understand. It is a storm in a teacup.
Sending love and hugs

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
16 November 2016 at 1:47 am #24310
vitrus
- Topics: 1
- Replies: 35
- Total: 36
- Treatment Warrior
@vitrus
Ariel, don’t worry and keep the resistance.
Just solve the problems one-by-one. Job? Get a new one/get yourself into something highly in-demand and interesting.
Undiagnosed disease? Get blood tests done, make a list of appointments to different doctors and undergo diagnostic procedures. If it were hep b, get treated against it. If it is something else, get treated against it. You probably should start with the job, then doctors. I don’t have a house and recently got my very first job. It all starts somewhere.
Health is the most valuable thing and one should fight for it. Many people have different health problems and it is normal to withstand difficulties. You will beat this! Just work on it step-by-step.

It is unlikely that you have hep b, because immunization is effective. But get tested. Most likely though, the culprit is something else, so work hard to find it.

Gen 1b
VL pre treatment 29000 ME/ml
AST 32 ALT 94, F0
Started treatment 13 January 2017
Generic sofosbuvir/velpatasvir (Incepta)
VL 9 days into treatment <300 (undetected)
AST 13.8 ALT 22
Side effects: mild dehydration, not a problem at all if I drink water at night, nothing to worry about
Diet and gastric ph are very important with velpatasvir. One must think what and when to eat to keep gastric pH low. Side effects disappeared 2 weeks after, unless I ate anything < 4hrs before the pill. SVR60.
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