Actually to the best of my knowledge the Buyers Club has never shipped outside of Australia.
It’s my (possibly mistaken) understanding that Dr. Freeman negotiated with MonkMed.com specifically to handle international shipment of the REDEMPTION eTrials meds.

I’m more concerned about the website/forum going silent with nobody here to help the new people showing up, and no activity to keep currently active members engaged.

And actually, yes there is still potential need for generics in Australia … we’ll see when the details come out. But I bet many people would pay for their own second 12 weeks of Darvoni to avoid using Riba. And also if the standard treatment calls for 8 weeks people would be fools to not buy another 4 weeks out of their own pocket. We’ll see.

What are you saying Kevin? That our government shouldn’t offer treatment to everybody because that will kill off our interest in getting them to people overseas? ‘Cause that’s kinda what it sounds like mate.

We never had to help anybody but ourselves to the generics in the first place you know. But we did anyway.

(And if I just reported Chapel’s post to a mod it was a big finger accident. Sorry.)

Well, in terms of people currently on this site, I think it will be a cold day in hell before any of us feel other than utter and complete loathing for Gilead.

I can tell you that in none of the Australian media I’ve seen has Gilead even been mentioned let alone held up as benevolent Big Pharma. I really can’t see that playing well in this country. It’s all been about whether the government should be given credit or if it’s just political spin. Personally, at the end of the day I don’t really care. “Heaven” to use the doc’s analogy would have been to tell Gilead to take a jump we’re going with generics for everybody. But that was never going to happen. It’s not like the hep c drugs are the only patents they own. They’re too powerful and we’re too small. Your government is the only one who could fight that battle and have any chance of winning.

What did people want our government to do?

I think we have to look at this as an opportunity. As I said previously, this changes the zeitgeist. We can use this to change it more widely. People need to start saying to their governments “Hey why aren’t you offering treatment to everybody like them! Why have you agreed to the outrageous demands of these drug companies!” What’s more, because the deal covers all the drugs it will be interesting to see how it plays out. Maybe not as much a bed of roses for Gilead as you might think. Should we spend health dollars on genotype testing when we could just skip it and use Dac?

When life gives you lemons, make lemonade. This appears to be a bit sweeter than lemons. More like oranges.

Let’s make orange juice.

Throughout my involvement with FixHep I have received extraordinary care by Dr James, Greg Jeffereys and the FixHep team. I have witnessed selfless effort to address the toll of HCV.

Many of us are of an age where we can painfully recall the cruel treatment meted out to HIV sufferers, the focus then being on the gay community. Individuals also waited for meds, and better meds, maintained themselves as best they could at huge personal cost and a horrifying toll. Finally, in the face of such inhumanity the collective mobilised themselves. An inspiring testament to our capacity as human beings – to look after each other.

Though HCV sufferers are greater in number we appear to have been less effective advocates of our cause – perhaps because due to our isolation in diversity and lacking a critical mass within a mutually supportive network, an active and existing subculture. It seems when individuals have “stumbled” upon an HCV forum – they have bonded in sharing their challenges with physical treatment and psychological alienation. However, the HCV experience being the primary basis of this bond – after successful treatment many individuals do just move on, some remain for a number of years and others longer. I imagine that this may be determined by the ongoing value of the shared experience and/or a desire to assist others.

Klhinde, my feeling is that individuals’ motivation to remain on this or any site is more likely to be based on the intrinsic satisfaction experienced around these issues rather than the sourcing of generics through Government agency. In fact the only occasion when I have seen a forum diminish has been as a result of interpersonal conflict or over controlling moderators. Though admittedly at no time have we been without the bonding dynamic of painful or absent treatment – so perhaps time will tell a different story.

I see a number of individuals here who feel strongly about the HCV cause and many of us know there is a long way to go before others throughout this global village have no need of treatment or some sanctuary. But if by some remote likelihood in the future; such support becomes sustained only by those remaining inflicted and this forum eventually winds up – no amount of wanting or anger against the greed which we experienced; will change how members lives’ demand or their spirit leads them.

Perhaps on a more pragmatic note; it seems it may be some time before everyone receives treatment; during which many mayl not wish to wait and there may always be some who wish to manage their health independently. Additionally, and more sadly numbers will re-generate whilst this disease is not managed globally; as is required for its ultimate containment.

Everyone is equally deserving of treatment, even people who used to, or currently inject drugs. There are no undeserving patients and we must be careful not to stigmatise people whose experience is different from ours. We all suffer the stigma of hep C because of its association with injecting drug use so let’s not add to the stigma by using discriminatory language or suggesting that some people are more deserving than others because their experience is different.[/quote]

Hi Seymour,

I agree. This is very poorly worded on my part. As an ex user myself, my intent was to say that drug use or non-use did not make someone more or less deserving of treatment and that we all have something to give to society as can be seen in the valued and caring people I have interacted with on this site. And that this needed to be conveyed to anyone intending to influence, and any being influenced by, divisive tactics such as heppers vs pathology costs. But yes, in cold light of day it it could be read as almost the opposite.

G

Nobody in Australia can legally buy or import any listed meds without consulting a doctor and getting a prescription. My GP refused to prescribe as he was not familiar with the treatment options but was happy to order tests. I then consulted a suitably qualified doctor (Dr Freeman) with the results and was prescribed the appropriate treatment.

More than anyone else, it’s the accountants that are pushing for the shorter treatments. With the price of generics that is much less necessary.

Read the trial results for yourself, or read what Dr. Freeman himself has said on the subject in this forum. There are quite a number of incredibly well informed people here … we’ve been reading for ourselves rather than cowering before authority.

I can tell you this for a fact: Four and three months ago respectively, neither my GI doctor in the US nor my GI doctor in Thailand were aware of the differences in treatment recommendations between the US establishment and the EU establishment. I told my specialists what was going on, not the other way around.

Edit: For clarification, this was in response to Seymour way up the thread.