Viewing 15 posts - 46 through 60 (of 70 total)
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  • #24907
    Avatar photodoxner
    • Topics: 0
    • Replies: 36
    • Total: 36
    • Treatment Warrior
    • ★★★
    @doxner

    That are fantastic news sumblues, wish you all the best for your journey #flower :+1:


    Genotype 1a, since 1990
    Results 2009: ISHAK 2, METAVIR Score 1, Fibrose Stiffness 6.4 kPa
    Results 20/12/2016: HCV RNA (2016) >10 Mio. / AST 60 / ALT 88 / GGT 248
    Starting Therapy: 29/12/2016 with Panovir (Incepta, for 84 days)
    Results 18/01/2017: CV RNA quant. PCR * < 10 / AST 23 / ALT 31 / GGT not tested Results 02/02/2017: AST 25, ALT 38, GGT 54, HCV RNA UNDETECTED

    #25039
    happi
    • Topics: 0
    • Replies: 23
    • Total: 23
    • Treatment Warrior
    • ★★★
    @happi

    Congrats Sumblues.

    Did you use the quick purchase at Beacon?
    Thanks

    #25040
    happi
    • Topics: 0
    • Replies: 23
    • Total: 23
    • Treatment Warrior
    • ★★★
    @happi

    I am considering ordering from Beacon.
    Has anyone ordered using the quick purchase? How was your transaction?
    Has anyone completed the Sofosvel treatment/?
    Any info or comments will be appreciated. I am a novice at this forum thing.
    Thank you all,
    Happi

    #25042
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    I did and am very satisfied. The bank transfer has to be done just right. Then you will receive the meds in days. Where are you located?


    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    #25043
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi happi and welcome, :)

    Beacon’s direct links can be found here https://fixhepc.com/forum/daa-access/439-beacon-pharmaceuticals-sof-dac-sof-dac-sof-vel-combo.html

    Hopefully some of our members will give you feedback on their experiences with Beacon and Sofosvel. As splitdog says, when you are dealing with international bank transfers it pays to double check with your bank that the transaction is fully completed at both ends to avoid the delays that sumblues had initially.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #25049
    happi
    • Topics: 0
    • Replies: 23
    • Total: 23
    • Treatment Warrior
    • ★★★
    @happi

    Thank you all for your replies.

    I am in in United States. I failed generic Harvoni from China last year and am now looking for another treatment.
    I am thinking Sofosvel is probably the best option for me at this time. I have been watching and reading all i can on this and other sites.
    Beacon seems to be the easiest to order from and is comparable in price. I am on a fixed income, so when I order, I want to be reasonably
    sure I will receive meds and they are real. I want to get the meds as soon as I can, because our incoming President has made statements
    about changing laws and such and they may make it harder to get in from overseas.
    Any input about treatment and progress will be greatly appreciated..
    Thanks again to all,
    Happi

    HepC Gen 1A
    Viral load 3,000,200
    Alt 40
    Ast 41
    F2-3

    #25050
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Without knowing more about your previous tx, how you responded while taking and whether you reached undetected status at any stage, it is difficult to advise. If you read Dr Freeman’s post to another member in the below link you will see he recommends that those seeking retreatment aim for two out of the following three choices of “longer, stronger, add Ribavirin.” Sofosvel may qualify as one (stronger) of the two things you need to do so you probably need to consider including one of the other two suggestion to give yourself the best chance but I’m not an expert.

    https://fixhepc.com/forum/fixhepc-admin/1453-detectable-after-being-undetectable.html#23341

    I understand that you are on a fixed income but retreatment is something that should preferably be undertaken with expert advice and in your situation it is particularly important to give yourself the best chance of succeedIng this time. If you don’t currently have access to advice from a local specialist then I would recommend that you consider a Skype consultation with a doctor at GP2U https://gp2u.com.au/about_us/our_people.html
    You would need to provide as much medical history as possible and it would cost you something like US$70 but I believe it would provide you with sound medical advice and assurance about the best course of action for your individual circumstances.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #25059
    happi
    • Topics: 0
    • Replies: 23
    • Total: 23
    • Treatment Warrior
    • ★★★
    @happi

    Thanks for reply Gaj,

    I have a liver Specialist now. I did not last year when I treated with generic Sof/Led from china. I got to <15 in 5 weeks,but never undetected. Post Tx , it came back with a vengence and doubled my viral load in a matter of weeks. I've talked to Dr. Freeman also, about retreatment, and he has suggested 3DAAs as well. My Dr. now on current blood tests says that Epclusa would be my best hope for a cure at this time. That's what I'm going to do.Sof/Vel is just two, going to add a third in. I will also monitor my tests and if i don't become undetected by 12 weeks, I'll continue treatment longer.

    On another note, do you know this Alimul ( Leon) at Incepta Pharma. Is he trustworthy on shipping meds. He has Sof/Vel also called panovir. Any info you folks can give will be appreciated. I know you are not DRs, but you know more than the GI I had last year.

    Thanks again,
    Happi

    #25061
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi happi,

    Glad to hear that you have medical support and it sounds like you have a plan in place. :)

    Alimul Razi is also known on this forum by the member name ‘Parvez’ and his contact details can be verified by looking at the Incepta thread in the Pharma’s Market section https://fixhepc.com/forum/daa-access.html

    I haven’t personally purchased medication from him or the company he works for, Incepta (nor from Beacon) but neither have I heard of anyone not receiving what they ordered when dealing directly with the contacts listed for these two businesses in our Pharma’s Market section during the 15 months I have been a member of this forum.


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #25063
    sumblues
    • Topics: 1
    • Replies: 47
    • Total: 48
    • Recovery Champion
    • ★★★★
    @sumblues

    Hey Happi, Beacon was great to order from, BUT make sure your bank knows how to wire money, because my bank said they did and they actually use another bank so things can get messy and stressy on both ends. It’s been over a month and the bank money wire blunder is just getting smoothed out. Stress and Hep-C don’t mix. As they say dot your I’s and cross your T’s. B)

    #25065
    happi
    • Topics: 0
    • Replies: 23
    • Total: 23
    • Treatment Warrior
    • ★★★
    @happi

    Thanks Sumblues,

    You are taking the Sof/Vel correct? Good luck on TX and keep us posted as to your progress. I’m just trying to figure out where to order from now. I have a treatment plan in place. Since this is my second treatment, I want to get it right.

    Are you experiencing any side effects now? Are you in USA?

    Thanks,
    Happi

    #25066
    sumblues
    • Topics: 1
    • Replies: 47
    • Total: 48
    • Recovery Champion
    • ★★★★
    @sumblues

    Yea Happi taking Sof/Vel and really the only side effects are sometimes headaches. But what has been working for me is lots of small meals and more water and yep USA. B)

    #25087
    Avatar photodoxner
    • Topics: 0
    • Replies: 36
    • Total: 36
    • Treatment Warrior
    • ★★★
    @doxner

    Hey Sumblues, Headaches are bothering, but seems a part of the therapy for many of us. Maybe you can check your blood pressure, which can be a little high. As mentioned in the other topics, mine was very high lately (170/10!), which can explain the pressure in the head/headaches. Sometimes I was feeling my head almost exploding, I also recognized after taking the meds that I have a strong high tone in the ears, somekind of a tinnitus (mostly in the evenings), better the mornings. But with the knowhow that the medicine is so effective let the side-effects be so much easier to support.

    Keep on, send you some energy ;-)


    Genotype 1a, since 1990
    Results 2009: ISHAK 2, METAVIR Score 1, Fibrose Stiffness 6.4 kPa
    Results 20/12/2016: HCV RNA (2016) >10 Mio. / AST 60 / ALT 88 / GGT 248
    Starting Therapy: 29/12/2016 with Panovir (Incepta, for 84 days)
    Results 18/01/2017: CV RNA quant. PCR * < 10 / AST 23 / ALT 31 / GGT not tested Results 02/02/2017: AST 25, ALT 38, GGT 54, HCV RNA UNDETECTED

    #25088
    Avatar photodoxner
    • Topics: 0
    • Replies: 36
    • Total: 36
    • Treatment Warrior
    • ★★★
    @doxner

    Hi Happi, my Panovir from Incepta came in to Switzerland in 5 days. Was shipped so quickly and the results of Panovir are just stunning and unbelievable (Genotype 1a, since 30 years, VL over 10 Mio.), started my therapy 29.12.16, last bloodtest 16.1.17 already undetectable (HCN RNA <10). So don't worry with Incepta and Panovir, you can be lucky to get the Meds of Incepta quickly. If you have any further questions about Panovir or so, don't hesitate to contact me. Best luck ;-)


    Genotype 1a, since 1990
    Results 2009: ISHAK 2, METAVIR Score 1, Fibrose Stiffness 6.4 kPa
    Results 20/12/2016: HCV RNA (2016) >10 Mio. / AST 60 / ALT 88 / GGT 248
    Starting Therapy: 29/12/2016 with Panovir (Incepta, for 84 days)
    Results 18/01/2017: CV RNA quant. PCR * < 10 / AST 23 / ALT 31 / GGT not tested Results 02/02/2017: AST 25, ALT 38, GGT 54, HCV RNA UNDETECTED

    #25090
    sumblues
    • Topics: 1
    • Replies: 47
    • Total: 48
    • Recovery Champion
    • ★★★★
    @sumblues

    Hey doxner, yep my BP is a little high and I get some of the other side effects too, but is good that everyone posts them that way we know the good is happening. Another day man :woohoo: it’s good to feel good again !!!! B)

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