Day 1... here we go

This topic has 85 replies, 27 voices, and was last updated 6 years, 11 months ago by erica.

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2 December 2016 at 12:37 am #24552
MtGoat
- Topics: 5
- Replies: 74
- Total: 79
- Recovery Champion
@mtgoat
Hey Edge, best of luck to ya. I had some trouble with headaches the first couple weeks, but forum friends convinced me to drink more water. That did the trick. It can be hard to remember if you don’t feel thirsty.

Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
2 December 2016 at 1:06 am #24554
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
It’s in the bag buddy. Ho Ho Ho

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
2 December 2016 at 1:13 am #24555
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
”James-Freeman-facebook” wrote:

776/778 people with SVR12 go on to SVR24 so it is 99.7% certain to be gone at SVR12

I am happy with SVR12 bit will get my LFs checked annually. Probably suffering from too-good-to-be-true syndrome.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
2 December 2016 at 2:32 am #24561
Donna
- Topics: 1
- Replies: 70
- Total: 71
- Recovery Champion
@donna
Salad ( lettuce ) is great for aiding sleep….
3 December 2016 at 11:53 am #24583
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
I’m pleased to hear that things have settled down a bit for you Edge. Yes – fingers and toes are crossed for you. I’ll ditto the advice about keeping hydrated with water. Every so often I get a massive headache on my current treatment and I can always trace it back to not drinking enough water during the day.
9 December 2016 at 2:40 am #24643
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Hi edge,
You have got this my friend!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
13 December 2016 at 7:43 am #24686
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Edge- this is the place and now is the time. Like everybody said “you’ve got this my friend”.
.

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
20 December 2016 at 7:47 pm #24767
Edge
- Topics: 1
- Replies: 19
- Total: 20
- Treatment Warrior
@edge
Greetings friends. What a long wait it has been to get my 4 week bloods back. Can confirm I am now UND!!! Thank you to everyone who has shown their support so far – it has meant a lot, and to Dr Freeman for providing access to this fantastic trial.

Just 19 more weeks to go until EOT!!

Is the consensus still to do 24 weeks if relapsed after 48 weeks of peg interferon/Ribavirin? When I initially spoke to Dr Devsam, he mentioned that it might be possible to only do 12 weeks if I was UND after 4. I’ve got the pills though, so for the sake of an extra 3 months I might as well take them? Thoughts?

Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
20 December 2016 at 9:58 pm #24768
1a2x
- Topics: 1
- Replies: 10
- Total: 11
- Acolyte
@1a2x
Congratulations on your first UND! Well done

Please add details about your fibrosis level. It is an important piece of info for making a decision about the lenght of your treatment.

G1a 2004.
Peg/riba 2006, SVR 24.
Control PCR in 2010 – around 4.000 IU/ml.

Confirmed genotype 1a. Fibroscan F0-F1 (2011).
PCR between 10 – 250 IU/ml (July 2016)

Ledifos (SOF/LED) September 2016
ALT/AST 20/21
08th October – 4 weeks ALT24 AST18
05th November – 8 weeks ALT17 AST16
29th November – EOT 🙂 AST 20 ALT 41
22 February 2017 – SVR 12!
ALT 14, AST 14
20 December 2016 at 10:06 pm #24769
Edge
- Topics: 1
- Replies: 19
- Total: 20
- Treatment Warrior
@edge
I had a fibroscan in 2014 which showed normal (5.9KPa) result.

Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
21 December 2016 at 2:55 am #24772
Hieupham
- Topics: 9
- Replies: 50
- Total: 59
- Recovery Champion
@hieupham
Congratulations Edge! There is a decision support tool here. Just enter your blood results
https://fixhepc.com/decision-support

Cheers!

Nishkama Karma
C√πng nhau lo·∫°i b·ªè Vi√™m gan C tr√™n kh·∫Øp th·∫ø gi·ªõi!
21 December 2016 at 3:03 am #24773
Gaj
- Topics: 29
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- Guardian Angel
@gaj
Hi Edge,

Congratulations on being undetected at 4 weeks. That must give you a feeling of confidence.

I ran your information through the SVR calculator https://fixhepc.com/getting-treated/svr-calculator.html and it does recommend 24 weeks and suggests a 99% probability of SVR for 24 weeks against 94% for 12 weeks. BUT I’m not a doctor and I also don’t know what other factors you may have discussed with Dr Devsam. I think if I was in your situation I would finish the full course to give myself the very best chance unless I experienced strong side effects in which case I would discuss the options further with the doctor.

Hah! Hieu beat me to it, think I need another cup of coffee this morning.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
21 December 2016 at 5:45 pm #24784
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Hi Edge,
Great to see the big UND at 4 weeks. Others have provided good advice about the calculator and the need to discuss treatment lengths with your doctor. My personal view is that if you have the pills and are managing any side effects I would finish the course.
24 December 2016 at 5:13 am #24798
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Great news, Edge! Congrats on your UND. result! Good things are surely in store for you
3 January 2017 at 3:33 am #24890
Leesa
- Topics: 1
- Replies: 4
- Total: 5
- Novice
@leesa
Hi all, I have not written a post before but have found reading everyone else’s experiences so helpful. I live in NZ and am Hep C gen 3, which recently discovered I had managed to get over 30 years ago. For a long time I have not felt well so was actually kind of relieved to discover the cause of all my health problems (itchy skin, tiredness etc). I did not hesitate to contact Dr Freeman after I researched my options. The doctors I have dealt with here in NZ were very supportive. My specialist from Auckland said they would take it if they had hep c – can’t get better recommendation than that!
Anyway, am now nearly 2 months into Sofosbuvir and Daclatasvir combination and am feeling fantastic. Will admit though had a couple of crap weeks to start with and did sleep a few days away but now have energy levels that I had forgotten existed haha. First bloods have just come back but haven’t talk to doctor yet to get full picture – from what I can see looks heaps better. I feel very blessed that this cure has become available just when I was diagnosed because past treatments do not sound that great! All the best to everyone on this journey
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