First dose today, the journey begins....

This topic has 230 replies, 29 voices, and was last updated 4 years, 7 months ago by Sven.

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21 September 2016 at 9:54 pm #23190
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Catching up with lots of good news this week, delighted for you Sven

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
22 September 2016 at 4:54 am #23204
Fara
- Topics: 1
- Replies: 82
- Total: 83
- Guardian Angel
@fara
Congratulations Sven on your undetected results, great news!

HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
22 September 2016 at 5:36 am #23205
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Gaj wrote:

Over the last 11 months I’ve noticed there really doesn’t seem much consistency in the way different labs and doctors report these results.

But being told “undetected” twice by the doctor is the real deal. Happy for you Sven! Happy for you Sven!

To all, first thank you for the huge display of encouragement! Thank you!
I agree with you about testing consistency, its like each has their own way of doing it. On my testing why couldnt they have just said 15iu/ml undetected or UND? Instead they have more patient verbal contact with us asking, what is it? Oh well, Im very happy to be where I am.
I said 3 months ago I thought I was going to go just like all my brothers and really I was resigned to do so. I thought it is what it is and there is nothing I can do. I sure as hell was not going to give GS $100k to do the program! (my wife would need it more down the road if I wasnT here). But now I’m on my way to hopefully SVR , I’ll take those odds any day.
In good health my friends

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
22 September 2016 at 9:13 am #23211
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Atta boy! Sven give them nasty dragon eggs hell! They deserve it! Attitude is a great ally in this fight and you got it brother!
Knock ’em dead!
Meet ya at svr12

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
22 September 2016 at 7:10 pm #23215
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
Sven wrote:

I find it strange, but he said if it was detected it would say <15iu detected. I asked why it doesn't say undetected and he said, isn’t that obvious

So, the arrogance of power! Glad you persisted and got the answer you were seeking Sven.

BTW – no one told me I could do it, but I called the lab that did my tests and requested they mail the results directly. They did so, and I had them about a week after I had gone in to have blood drawn. A lazy two weeks after that I got a letter from my specialist with the results.

Here’s the upshot, Brother. You are getting well because you had the will to buck the system, and you took the initiative to save your own life.

If there’s a lesson from all this it is that if we wait for the system to save us, odds are that we’ll just get sicker, until we either become so grievously ill that they have to treat, or too sick to treat, period.

If we want to get well, WE must take the initiative, and your story is a testament to that, Sven!

In good health, brother.
23 September 2016 at 3:13 am #23220
Ariel
- Topics: 3
- Replies: 1,060
- Total: 1,063
- Guardian Angel
@ariel
Congratulations Sven, I agree you are undetected, you must be! I read all the replies about the <15 vs UND, you are on the right track see you at SVR Sven, Happies from Ariel
23 September 2016 at 10:01 am #23230
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Fitz,Matt,Fara, Gaj,London G, Ariel …..et al….,wow I have people in my corner, frign beautiful!
You know the world really is a great place and there are “more” good people here than bad, I feel I’ve met everyone one of them here, we’ll not really but it seems that way!
I’m 13 days away from EOT and it looks good from this view. The time I’ve had here is A huge milestone in my life, and in my wildest thoughts I had no idea this dude named Mike G would show up at the perfect time and tell me ” you’ll be HCV free by Summer’s end”. I must say he was right on. He had to be sent by Swedish Gods Thor & Odin and they protected his bounty of dragon slaying meds. Well again not really but it’s sounds great. So open your ears and hear my scream
O D I N !! O D I N! Set me Free!

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
23 September 2016 at 3:37 pm #23235
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Those nasty pieces of virus have definitely met their Swedish……

Sorry guys BAHAHAHAHAHA

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
24 September 2016 at 9:53 am #23247
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Here is the letter below, just came yesterday.

So I am not unhappy, in fact I am very happy to feel the way I do! But why don’t they have consistently in HCV testing? I live not far from a big city and is this test the best they can do? Now I’m not expert but from what I read they use a qualitative test to confirm Zero virus, correct? So are they not telling me the truth?
So wouldn’t I want to continue on with treatment if I was qualitative detected? Maybe someone can chime in here and help me see the light or let me know if I should demand a qualitative test or ?
Thx

————————— —————————- —————————- ——————————

Hi

So sorry for the delay in replying to your email.

To explain a little on the HCV PCR quant results. The test is sensitive down to a quantity of 15. This means that if there are less than 15 virus in your blood the test would not be able to detect that. This test is more sensitive than any other test available to us. This means that the results are listed as <15 IU/mL meaning there was no virus detected but they can't rule out the possibility that there may be fewer than 15 virus still there. This is why we wait 3 months after you have completed treatment to check the viral level. If there are any virus still there it will start reproducing as soon as the medication is stopped and by 3 months it will have reproduced enough to be well above 15 and would then be detected by this lab. There is no test available to us that can confirm ZERO virus.

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
24 September 2016 at 10:07 am #23249
rohcvfighter
- Topics: 50
- Replies: 338
- Total: 388
- Guardian Angel
@rohcvfighter
Hi Sven,

as a simple citizen, such answers make me cry.
In the constant concern of modern people to always say “politically corect” things, you get such scientific letters.

I would interpret the letter as : you are undetected, but there is a tiny tiny probability some virus might be present, so if you get the same result 12 weeks after EOT, you are cured.

But that’s juet me, Misa no doctor .
Cheers,
RHF

In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google ‚Äúmedicamente generice pentru hepatita C‚Äù.
HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
By sharing this Youtube video you might save someone‚Äôs life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
24 September 2016 at 12:20 pm #23251
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Misa no doctor .

That’s all right, Sven’s doctor sounds more like a lawyer anyway.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
24 September 2016 at 12:34 pm #23252
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
I think it’s called covering your arse

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
25 September 2016 at 3:00 am #23265
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Update: Qualitative test being performed this week in my area. Both Doc’s ( GP2U Doc & Gastro Doc here) believe I’m undetected but this will make it 100%. If I’m detected I’ll continue therapy for another 12 weeks, if I’m UND were good to go.
I will update as soon as I know,
In good health my friends

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
26 September 2016 at 7:33 am #23278
Sven
- Topics: 6
- Replies: 327
- Total: 333
- Guardian Angel
@sven
Fitz wrote “If there’s a lesson from all this it is that if we wait for the system to save us, odds are that we’ll just get sicker, until we either become so grievously ill that they have to treat, or too sick to treat, period”.

My friend those are words to live by. You and all the other people here literally made our own path and left a trail for others to follow. The world is full of people waiting to be told what to do and when to do it, we here at fixHepc are the ones who leave a trail for those who can’t make up their mind.
Thank you for the wise words.

In good health to all my friends here at fixHepc.

Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count – 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
26 September 2016 at 8:36 am #23279
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Hi Sven and Fitz,
This is so true, and not only in the context of our health!
I apply this principle to my career and since my kids have finished school have taken responsibility for my own professional development and paid for my own training rather than wait for the gods above to decide I’m worth spending any of the miniscule training budget on. The ROI is definitely there.
Over the past few months I’m definitely realising the benefits of this strategy as my energy increases, the brain fog diminishes and my mental capacity grows.
The moral of the story? Don’t let other people’s opinions control your life

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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