- This topic has 306 replies, 32 voices, and was last updated 7 years, 11 months ago by
.
-
Sixteen days after entering the REDEMPTION 3 Trial, I have my medications in hand, picked up from the post office this morning.
After living with this disease for decades, words alone are not enough to describe the sense of wonder I feel that this is possible, or the sense of gratitude I feel for the opportunity to just get well. Honestly, its a bit overwhelming at the moment, and I must thank Dr. James Freeman, for his humanitarian commitment, for finding a way, laying the groundwork, and making a cure possible for me, and for all of my brothers and sisters around the world who so desperately need it.
I feel so incredibly lucky, and once again, so incredibly grateful……
This morning when I returned from the post office, I took some time to document opening the REDEMPTION 3 package, and examining the boxes and medication. Then I took the first of 84 tablets
The cost for the medication through REDEMPTION 3, was just shy of US $1,600, including the medical consultation with a prescribing physician from Monkmed.
Photos follow:
Wow Fitz that was so cool to look at the pictures! Very nice packaging and such a prompt delivery.
I also felt radiant when I received my meds from Greg Jefferys last week and had so much respect and gratitude in my heart for all those (of you) who came before me on this journey. Best of luck to you and wishes of a gentle tx.
BTW…Love hanging here with you fun dragon slayers.
Hey fitz,
Happy for you that you got the meds! We have (had) similar stats, I am Gt1a (was?) started at 6.5 million VL, took generic sof/led (Twinvir). I know how you must feel, I too was diagnosed over 30 years ago. I’ve lived single, and celibate and scared for years. I know this is a big day in your life!
I’m all done now, and feel great. This is going to change your life! Rock on!
Good for you Fitz! Your post summarized all I felt just a short 5 weeks ago. Our labs are very similar. Happy to report to you I am feeling so much better and at 2 weeks my liver enzymes are normal, viral load of 27. You now have life to look forward to! Keep us posted.
Thanks Greedfighter, and Defeat10! I appreciate the support.
2nd day of treatment, and no significant fx so far beyond a little brain fog this afternoon. I called my specialists office for the 2nd time in two days to arrange for labs (bloods). For the second time in two days, a second nurse (gatekeeper), who’s job it apparently is to keep patients from consulting with their physicians, questioned me about INDIA(!!!!), and opined from on high, that if I were a part of a trial, whoever was conducting that trial should be monitoring me! After I told her who was heading up the trial and pronounced Dr. Freemans name for her no fewer than 3 times, she insisted upon mispronouncing it again, apparently believing it to be an INDIAN(!!!!) name.
Undeterred, l left a message to have the Dr. call me about scheduling labs. That was my day
Hi Fitz
It’s a great feeling isn’t it… finally starting treatment … after all these decades of feeling crook and progressively getting worse with age. It makes me mad when I read that you had to wait a year to see a specialist just to have your treatment request denied. These guys are playing with our lives.
You’ve made the right decision to participate in the REDEMTION 3 Trial. It’s a no brainer. It’s a guaranteed cure path. I look forward to following your progress over the coming months … and celebrate your SVR12 …
Cheers
GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9 
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Feel free to re-post the cartoons on your forums in the US … the more other HCV sufferers know about this site the better!
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂I’ve been posting, here, and there, and everywhere! I had a little time today, and must have put up 20 notices in 20 different markets. Last check, 7 were still up. Its a numbers game. I put em’ up. They hunt them, and take them down. In the meantime, what has been seen, can’t be unseen. Tomorrow I’ll spend a little more time, and put up a few more notices.
This is the only Hep C forum I currently belong to
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂
- You must be logged in to reply to this topic.