Home › Forums › Main Forum › Patient Stories › Fitz starts REDEMPTION 3 Trial
- This topic has 306 replies, 32 voices, and was last updated 7 years, 11 months ago by fitz.
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19 July 2016 at 4:57 pm #21072fitz wrote:
Sorry Jeff. Still not quite fully understanding your intended message I’m afraid. I value directness, so just come right out and hit me over the head with it if you have to. I promise I won’t run away.
I’ve noticed you Aussies (and Kiwis as well) sometimes tend to speak in exceedingly polite and indirect terms (especially when you are disagreeing with something,) rather than coming right out and saying what you are thinking. This is certainly a matter of cultural style, but for we Americans who tend to be right up front with things, it can be a bit daunting attempting to unravel your pleasant code to get to the heart of things.
It’s just that we use more complex words and sentence constructions than you seppos are used to
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby19 July 2016 at 5:07 pm #21074beaches wrote:fitz wrote:Sorry Jeff. Still not quite fully understanding your intended message I’m afraid. I value directness, so just come right out and hit me over the head with it if you have to. I promise I won’t run away.
I’ve noticed you Aussies (and Kiwis as well) sometimes tend to speak in exceedingly polite and indirect terms (especially when you are disagreeing with something,) rather than coming right out and saying what you are thinking. This is certainly a matter of cultural style, but for we Americans who tend to be right up front with things, it can be a bit daunting attempting to unravel your pleasant code to get to the heart of things.
It’s just that we use more complex words and sentence constructions than you seppos are used to[/quote]
We don’t have a pejorative to respond, and honestly I wouldn’t use it if we did. I rather like you Aussies.
19 July 2016 at 9:25 pm #21085Hey fitz! Just getting back from being off the grid for the last week! What great news man. Never a doubt. I’m glad yer back and in better form than ever!
MK
P.S. I still nose a guy if ya need ‘im…Hey fitz! Everyone! Just thought I’d add my comments since I’ve been playing catchup here and posted the above before I got to theses last several posts
First of all, fitz, kudos for putting your feelings out here for all to see. Some, myself included, can more readily relate to your viewpoint on how our care providers come across, intended or not, others, may relate to Jeffs. Either way, we should respect each other’s views and try to allow for the differences in experience. I see that here so often and it is heartwarming.
I have to also admit that here in America, people expect you to get to the point. Don’t dilly-dally around, we’re busy. We have more important things to do than stand around trying to decipher what you’re trying to say.
Sorry, Aussies, Kiwis, Brits, n’ others who might wanna savor every syllable issuing forth from your lips to our ears … we just ain’t got the time ….
Hope y’all take this in the fun in which it’s intended (that’s my disclaimer). to ALL!
GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”20 July 2016 at 1:39 am #21090Says he of the marathon post
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby20 July 2016 at 6:23 am #21103fitz wrote:Sorry Jeff. Still not quite fully understanding your intended message I’m afraid. I value directness, so just come right out and hit me over the head with it if you have to. I promise I won’t run away.
I’ve noticed you Aussies (and Kiwis as well) sometimes tend to speak in exceedingly polite and indirect terms (especially when you are disagreeing with something,) rather than coming right out and saying what you are thinking. This is certainly a matter of cultural style, but for we Americans who tend to be right up front with things, it can be a bit daunting attempting to unravel your pleasant code to get to the heart of things.
Hi Fitz,
I am starting to see your point. Maybe Aussies are a bit too subtle when we talk about stuff.
There is an exception to prove this rule though – when we discuss the the well thought out, dumb as shit actions of Australia’s very own fuck-wit academy, the TGA (I refer to the geo blocking thread).
Yours
Jeff
20 July 2016 at 6:41 am #21107
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂20 July 2016 at 6:45 am #21108This thread was started as a treatment journal, and we are getting off into completely non-productive discussion.
Back on topic.
Test results should be in within the next couple of days. I will post these when they become available.
Fitz
ETA: GT2 and Jeff were posting at the same time I was. Thank you guys! Great cartoon GT2. Love it!Jeff, I appreciate your candor, and share your sentiments completely!
20 July 2016 at 7:12 am #21114Gaj wrote:Never ask an Aussie what they REALLY think!
On the contrary I think its about time you Aussies speak your mind and take the jack boot off your neck.
If your government can attempt to shut down access to this site, the bought and paid for cowards in our administration probably aren’t far behind. However, that is a subject for the Geoblocking thread, where I suggest we continue this discussion.
23 July 2016 at 3:42 am #21238Just received my 6 week results by telephone. “Non-quantifiable <15"
Antibodies are still present.
Cryoglobulin tests are in as well. Cryoglobulins = "Not detected"
Results will be mailed out Monday. I will scan and post the lab report when I get the hard copy. Thank you Dr Freeman(GP2U Telehealth) and Dr. Debasis (monkmed.com).
23 July 2016 at 3:47 am #21239Looking good there Fitz!
23 July 2016 at 4:03 am #21240Great news on both counts Fitz!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
23 July 2016 at 4:32 am #21241That’s perfect, buddy
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby23 July 2016 at 4:55 am #21242That’s awesome! You’ll be UND before you know it! How are you feeling over all can you feel the difference? Also what are cryogoblins?
Love the results!
In good health to you my friend.
Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016Viral count – 3,471,080
4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)
8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)
11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected
December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!23 July 2016 at 5:23 am #21244Hi Sven,
This is a cryogoblin.
Sorry, I’ll let Fitz explain cryoglobulins and cryoglobulinemia.PS per your edit, there can never be too many questions except when they are from a two year old after they kept you awake half the previous night.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
23 July 2016 at 6:43 am #21245 -
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