Viewing 15 posts - 16 through 30 (of 46 total)
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  • #21421
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Sorry to read this unexpected news Coral :( . However, you sound good and strong there and I know you will beat this with a different regime. :+1:
    #love debs X

    #21425
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Coral, I know your disappointment is real and your anxiety level is no doubt up there too, but it’s so wonderful to see that you’re not letting it get mastery over you. Focusing on the next step is the right thing to do and letting yourself grieve for the loss of a friend is a positive step in taking the focus off your own personal reason for grief. You’ve lost a battle and that is sad, but not yet the war.
    It’s been a huge let down after putting so much time and effort and emotion into this last fight. It’s left some scars I’m sure. It’s raised some doubt too, maybe. Do indeed take the time you need to absorb it all. We all understand the necessity of that for you.
    But know that, you’re not letting it paralyze you into inaction is an encouragement to us all as well, and especially those like myself, who are still anxiously looking for svr12. Thank you for that Coral :+1: #love

    Matt


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    #21426
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Oh, and btw coral. Ya know what kills a Terminator?
    Another Terminator! Go get ’em Ms. T!!!! :lol:
    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22-23-24-25-26-27-28-29-30-31-32-33-34-35-36-37-38-39-40-41-42-43-44.jpeg
    SEE! Dead Terminator! :woohoo:


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    #21432
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Thanks for all of your thoughts and suggestions. It really does help. #love

    I’ll start doing my research (thanks for the start Tweakmax) and make plans for going forward.

    Thanks for the visual Matt. When I mentioned the terminator yesterday I was going to invoke Sarah Connor but couldn’t quite get there. Feeling a little more Sarah today. #flower

    #21433
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    Sorry to hear. We WILL beat this. Come on Vel…….


    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    #21434
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Thanks Splitdog and yes we will! #flower

    #21442
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax
    LondonGirl wrote:

    Hi TM, Yes, I was, just the last 4 weeks, well, actually, the last 2 weeks and then 2 weeks plus. Thinking maybe I should’ve done longer, I had a similar response to Coral, but I felt then 26 weeks in total was long enough.

    Sof+dac+asunaprevir?

    #21443
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax
    coral wrote:

    Thanks for all of your thoughts and suggestions. It really does help. #love

    I’ll start doing my research (thanks for the start Tweakmax) and make plans for going forward.

    Thanks for the visual Matt. When I mentioned the terminator yesterday I was going to invoke Sarah Connor but couldn’t quite get there. Feeling a little more Sarah today. #flower

    I just read the updated aasld guidelines 7 july 2016. Sof+vel+riba for 24 weeks is good for retreatment, regardless of ravs, according to studies by prof gane.

    U may wish to consult dr freeman whether u need to add asunaprevir/simeprevir like LG.

    #21465
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    I so hate this virus.

    P

    #21467
    Serg
    • Topics: 4
    • Replies: 66
    • Total: 70
    • Recovery Champion
    • ★★★★
    @serg
    tweakmax wrote:

    just read the updated aasld guidelines 7 july 2016. Sof+vel+riba for 24 weeks is good for retreatment, regardless of ravs, according to studies by prof gane.

    Please be careful there – this study supports 24 weeks of sof/vel/rib after failed 4-12 weeks of NS5A (vel) containing regimen – http://www.natap.org/2016/EASL/EASL_11.htm .

    We need data from studies about retreatment with sof/vel after failure of 24 weeks course of sof/dac or sof/led. If such data will be good, then sof/vel generics may become “second line” therapy for relapsers after 24 weeks course.


    Probably infected in 1977
    2005 – diagnosed with HCV 1b, compensated F4, 15 mln viral load, ALT 320
    2005-2006 – PegIFN/rib 48 weeks treatment, relapse
    2016 – compensated F4, MELD 8-9, ALT 100-160
    2018 – compensated F4, MELD 8, ALT 91

    #21469
    Avatar photosabrecat
    • Guardian Angel
    • ★★★★★
    @sabrecat
    Serg wrote:

    tweakmax wrote:

    just read the updated aasld guidelines 7 july 2016. Sof+vel+riba for 24 weeks is good for retreatment, regardless of ravs, according to studies by prof gane.

    Please be careful there – this study supports 24 weeks of sof/vel/rib after failed 4-12 weeks of NS5A (vel) containing regimen – http://www.natap.org/2016/EASL/EASL_11.htm .

    We need data from studies about retreatment with sof/vel after failure of 24 weeks course of sof/dac or sof/led. If such data will be good, then sof/vel generics may become “second line” therapy for relapsers after 24 weeks course.[/quote]

    Hope so too.

    Sorry for what happened Coral and all the best for a second go.

    You notice any change in well-being during the later stages post EOT??

    Yours

    Jeff

    #21472
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yes TM (in signature, but I know it’s long!)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #21479
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax
    Serg wrote:

    tweakmax wrote:

    just read the updated aasld guidelines 7 july 2016. Sof+vel+riba for 24 weeks is good for retreatment, regardless of ravs, according to studies by prof gane.

    Please be careful there – this study supports 24 weeks of sof/vel/rib after failed 4-12 weeks of NS5A (vel) containing regimen – http://www.natap.org/2016/EASL/EASL_11.htm .

    We need data from studies about retreatment with sof/vel after failure of 24 weeks course of sof/dac or sof/led. If such data will be good, then sof/vel generics may become “second line” therapy for relapsers after 24 weeks course.[/quote]

    Redemption iv or v for velpatasvir!!!!!!!!!

    #21484
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Price – me too my friend. :angry:

    Jeff – thanks for your thoughts. You asked about changes in well being post EOT. I think I knew when the virus cleared at about 10 or 11 weeks because I felt so clear headed, energetic, positive and just better. This continued for a good few weeks after EOT.

    A few weeks ago at about 8 or 9 weeks post EOT I started to recognise some old familiar symptoms i.e. Lethargy, flatness, lack of energy, foggy etc. It felt different than general tiredness or illness or feeling a bit down. I mentioned this to a few close friends and said that I thought that the virus might be back. This was why I went for SVR11 rather than waiting the extra week.

    I’m really conscious while writing this that others are waiting for results. I know that it is an anxious time but I am one of the minority that has relapsed and for the majority these fantastic little pills are doing their job. A few of us just have to find the right combination. #flower #flower

    #21492
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Thanks for keeping it real, Coral


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

Viewing 15 posts - 16 through 30 (of 46 total)
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