Matt Joins the Fray!

This topic has 105 replies, 32 voices, and was last updated 8 years, 1 month ago by mgalbrai.

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14 August 2016 at 11:19 pm #22197
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Hi Matt,

Your doc seems to be lacking a little in the empathy department. Making you wait for your labs is not only unnecessary, but cruel. This doc apparently doesn’t understand the heavy underlying stress during treatment of wondering, hoping, wishing, praying that it will work.Especially after waiting to get on these meds. I really hope your doc has a change of heart and lets you get the labs.

semisweet
15 August 2016 at 12:54 am #22202
Fara
- Topics: 1
- Replies: 82
- Total: 83
- Guardian Angel
@fara
Hi Matt, just in case your MD won,t order your blood tests now, you can order online in US at http://www.requestatest.com. The LFT is fairly reasonable. Good Luck.

HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
16 August 2016 at 3:12 am #22219
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Hi y’all!
Thanks Fara for that link and to you for the kind thoughts, semisweet.
Just updating what’s happening with 4 wk after EOT labs. Got a call from the specialists office today, and they’ve agreed to coincide blood work to cover Hep C indicators. Yippee! The office staff even made a personal call to the lab to make sure it got done.
ALL that worryin’ fer naught. I will definitely have an update here after results are in.
Thanks to alluh y’all for your kind words of encouragement. (don’t ask me why I’ve slipped into the “yokel” lingo … must be cuz I ain’t takin’ those dern pills n’more).
Hey Gaj, mgalbrai! Help me outta this heer mess woodjya????? illy:' />

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
19 August 2016 at 5:26 am #22324
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Hi Matt, I like this quote, you will surely get there hopefully not too long till you receive your results

waiting with you

“Patience and fortitude conquer all things” ~ Ralph Waldo Emerson

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
19 August 2016 at 5:57 am #22326
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
You sure that’s not “patients and fortitude conquer all things”?

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
19 August 2016 at 5:58 am #22327
pat1
- Topics: 5
- Replies: 334
- Total: 339
- Guardian Angel
@pat1
Haha Split

include

the Doc
his team
& forum friends

gt 1a VL 6m
F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
19 August 2016 at 6:28 am #22330
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
Okay……

“Patients and doc Freemans fortitude for generics conquer all things Hep C”.

How’s that?

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
19 August 2016 at 7:07 am #22335
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
I’m likin’ it ALL pat1 n’ splitdog…
Thanks for the thoughts AND the entertainment

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
21 September 2016 at 7:58 pm #23185
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Well dear friends, I finally got to see the words all of us hope to see. 1st time in my case; “NOT DETECTED”
Here it is in black and white

Gotta go log in to GP2U to log SVR4 results
Love to all,

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
21 September 2016 at 9:51 pm #23189
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hey Matt, More good reading this week – Fantastic ! Monkmed’s prediction spot on

I was refused a post tx VL test as I had the audacity to go on holiday, on my return, I was told I would have to wait until 12 weeks post tx – as I wasn’t around for the 4 week one.

Two more weeks of waiting (going rather slowly!) – Reading your news is helping to keep my positive head on Thank-you and my very best wishes for the next results. You certainly got rid of a large amount of those little blighters, looking at your profile. Good on you

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
21 September 2016 at 11:12 pm #23192
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Thanks LG,
I got my svr4 results cuz my Family Practitioner wanted me to do a typical blood test and I had to persuade him and my Hep C specialist to include the test for HVC since my appointments with each of them were scheduled nearly back to back …. go figure???
Anyway, as I was leaving my appointment with the Family Practitioner with my test results I ran into the specialist and he said, “I see you got the good news. I thought we were waiting til week 12 for labs, that’s when I like to test for svr at 12 and 24 weeks.”
I replied, “Well, everything I’ve read says test for svr4 AND 12, and quite frankly I couldn’t wait since my insurance coverage ends before reaching week 12.”
He laughed and said, “Oh yeah, that’s right, you told me that. Well good, I’ll see you at the end of the month. Congratulations, it looks like the generics worked!” So hopefully, I can get insured before svr12 tests or just pay for it myself. They can sure make things difficult can’t they, . Quite the difference between “them” and MonkMed heh? Gotta love it! looking forward to seeing both our svr12’s sis

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
22 September 2016 at 2:23 am #23193
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Great news Matt! UND!!
22 September 2016 at 3:24 am #23195
Hieupham
- Topics: 9
- Replies: 50
- Total: 59
- Recovery Champion
@hieupham
Yay!
Congratulations Matt!

Nishkama Karma
C√πng nhau lo·∫°i b·ªè Vi√™m gan C tr√™n kh·∫Øp th·∫ø gi·ªõi!
22 September 2016 at 4:02 am #23198
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Great news Matt, congratulations!

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
22 September 2016 at 4:28 am #23201
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Happy song and dance happening over here. Congrats bro

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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