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I remember those days Kevin, Glad to hear you’re doing well and dancing like James Brown too
Things have changed for the better so much since those uncertain and exciting days offering hope…
Just awesome .I’m waiting on my SVR 12 results, Hope my next treatment is at the dentist, like you
My best wishes to you from Blighty.
LG
I’m pleased to tell you, Nadia and dointime are both clear
I miss dt on here actually. Lovely person and Nadia too, the UK trailblazer along with Dan , who is now also clear
53 WEEKS SINCE I WALKED INTO DR. FREEMAN’S OFFICE UNANNOUNCED … “Here I am”
Yes, one of the trailblazers. It did feel like being in a scene from the Dalas Buyers Club with patients and medications wandering through the office.
Vororo wrote:What do you say we move all this to a “One Year Later” thread?
Done.
Wow, looking back I realise that this is the week a year ago that I first found FixHepC after reading an article in the paper about a “buyers club”. Reading all of your stories on here was an important part of giving me confidence to take the generic pathway and along the way I’ve learnt so much from all of you.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Sven,
the tip of the iceberg showed ~450 people being treated till April this year, i.e. in the first 6 months
This was the number communicated at ILC Barcelona for the people enrolled in the REDEMPTION trial.
Since then many others joined and …… think also on the fact that many many other people around the world perhaps were just in a need to find reliable information about generic drugs for HCV, so they came here, read about it, used a legal way to source their meds and got treated. And they are not included in any statistics. So .. my guess goes to a number having at least 4 zeros, but could be even more, 5 zeros and …. if not already, soon we will be talking about 6 zeros.Oh, and all these thousands of people know now about the generics and the “lovely” price of the branded drugs. Multiply this number with at least 20 (at least 20 people around me know the story with Big Pharma and the affordable generic drugs
) and you might also get an impression how many people (with HCV, cured and not having HCV) know about the HCV generic drugs. Cheers,
RHF
What a year indeed!
hmy:
A bit over a year ago I was trying to contact Greg J and getting no response. Then the newspaper article about Fixhepc. Then the Australian government shelling out for treatment. Then getting the prescription in my hot little hands (and then nearly being run of the road by an idiot driver talking on their phone #ironic). Then Tx and CLEARING this demon. All this accompanied by a promotion and pay rise and finally getting my ITIL Expert certification (if anyone knows what that is). And swimming with whales.
A rather good year. Grateful.
It was one year ago that I found out I had hepc
Found this place sometime in Dec, only about 500 members at that time if I remember correctly.
Started my generics in Jan, and now almost exactly a year later I am SVR24!
Truely a life changing year!
Forever grateful to have many more healthy years ahead
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