RNA came back positive and going to GP in 2 days

This topic has 33 replies, 12 voices, and was last updated 5 years, 10 months ago by coral.

Viewing 15 posts - 1 through 15 (of 34 total)

1 2 3 →

Author

Posts
9 January 2018 at 2:53 am #27224
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
Got back my RNA results and it was positive (Qualitative)

6.95 E 5 /ml GT 1a

I am waiting on a referral placed about 2 weeks ago by my GP for the Hep clinic to have a liver scan and enzyme test done. Given minimal damage done and DNA test not requiring the inhibitor which treatment and for how long has the most chance at success and getting rid of this ?

Thank you all
9 January 2018 at 4:31 am #27225
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Hello Sharmon,

With GT1a you have lots of options, all good, all with minor pros and cons. If you are low fibrosis then 12 weeks is all that is required with any of them. 8 weeks with Mavyret.

Sofosbuvir Based (in order of preference)

1) Sovaldi (Sofosbuvir) + Daklinza (Daclatasvir) – my personal preference (low sides, good cure rate and cheapest as a generic)
2) Harvoni (Sofosbuvir + Ledipasvir)
3) Epclusa (Sofosbuvir + Velpatasvir)

Non-sofosbuvir based (in order of preference)

1) Mavyret
2) Zepatier
3) Viekira + Ribavirin

Note that, perhaps with the exception of Zepatier, all are expected to deliver 95% cure (20:1 odds).

What country are you in?

YMMV
9 January 2018 at 7:48 am #27226
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
I am in Canada
9 January 2018 at 1:22 pm #27227
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
With Canada, medication coverage is a bit spotty. With any luck you will qualify under the local rules. If not generics can be shipped in directly but go for the free stuff first!

Either way you’re welcome to hang out here. Treatment can get a bit lonely given the stigma.

YMMV
9 January 2018 at 7:04 pm #27229
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
Nope for Ontario , criterion for possible coverage here :

HBV : exposed , cleared and immune, (co-infection makes you eligible)
HIV : No exposure (co-infection makes you eligible)
Liver : F0/F1 (F2 or higher makes you eligible)

I am just waiting for the liver scan and enzyme test and inhibitor check before ordering from here.
9 January 2018 at 11:02 pm #27230
Hazel
- Topics: 45
- Replies: 369
- Total: 414
- Guardian Angel
@hazel
Good plan Sharmon, you have done your homework. Welcome aboard the adventure to wellness. I can report, 2 years later, it still feels wonderful, I still catch myself and compare to the previous 3 decades and think wow.

Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
12 January 2018 at 7:58 am #27252
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
Finished the second GP visit today . He ordered the AST , ALT , Ferritin , (bunch of other stuff that I don’t remember. Went to the lab immediately after for testing , 4 vials and the technician was shocked at the “legit cost of treatment” and thought I was joking until she pulled up the info on her UptoDate treatment screen. 58,500.00 CAD for Harvoni at the subsidized price (for those ineligible for any reductions due to circumstances.).

Liver center called and my apt is for Feb 14 in the afternoon for the fibroscan and DNA and Qualitative baseline testing.

Now I wait
12 January 2018 at 9:07 am #27253
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Yes, the sticker price is pretty out there at the same as a couple of family cars.

With any luck you can access fully subsidized treatment, if not, 12 weeks generic Harvoni is $1600 Canadian.

YMMV
16 January 2018 at 6:04 pm #27261
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
Secondary blood test came back ALT 35 AST 53. I go for a Fibroscan on Jan 29th and should get a prescription on that day. Does the prescription have to be for the generic of can it be for the brand name itself as long as the ingredients and dosage are the same ?
17 January 2018 at 11:10 pm #27262
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
You can use a brand name prescription for generics so either will do fine.

YMMV
31 January 2018 at 8:13 am #27366
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
Fibroscan came back

Fibrosis =5.6 kPA , CAP: 320

Set up an appt with Dr. Freeman next Monday to get the ball rolling
2 February 2018 at 11:11 am #27377
fretboard
- Topics: 10
- Replies: 164
- Total: 174
- Guardian Angel
@fretboard
Good for you! Dr. James is a good doctor and is helping ppl all over the world with HepC tx!!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
2 February 2018 at 1:56 pm #27379
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Hi SHarmon
from the US. You have crossed all your Ts and dotted all your Is. For me, the shock of the diagnosis, the waiting, and the fight for insurance coverage were the worst parts of my Hep C experience. The treatment was a breeze. I felt normal the whole time. 12 weeks of sof/led. The insurance company wanted to do 8 weeks, but 12 is the way to go.
Good luck and listen to the Doc.
Mike

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
6 February 2018 at 6:15 pm #27391
SHarmon
- Topics: 4
- Replies: 37
- Total: 41
- Recovery Champion
@sharmon
Saw Dr. Freeman yesterday and Harvoni was the decision. This site doesn’t take Amex so I ordered a Visa from the bank and am awaiting its arrival in 8-10 days.
7 February 2018 at 10:23 am #27396
Dr James
- Topics: 264
- Replies: 1,968
- Total: 2,232
- Guardian Angel
@fixhepc
Sorry about that.

Our CC processor doesn’t process Amex.

Wire transfer works fine, but so does Visa or Mastercard

YMMV
Author

Posts

Viewing 15 posts - 1 through 15 (of 34 total)

1 2 3 →

You must be logged in to reply to this topic.