Side effects for sofosbuvir/Daclatasvir combo.

This topic has 135 replies, 41 voices, and was last updated 7 years, 7 months ago by Dr James.

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6 October 2015 at 5:00 am #1882
panamajo
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- Treatment Warrior
@panamajo
Can’t wait to have the side effects “Haven’t felt this good in years!” Bonus!
6 October 2015 at 7:31 am #1899
Johnboy
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- Guardian Angel
@johnboy
I can now report that the side effects have subsided to a large degree.

Starting to feel much better and confident.

Had liver function tests and I am WELL UNDER the normal limits. An amazing result after two short weeks.

ALT down from 62 to 11

Very happy chappy here.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
6 October 2015 at 1:44 pm #1920
Vicki
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- Recovery Champion
@vicki
Great news Ann and John Boy, Good luck to us all indeed.
6 October 2015 at 2:50 pm #1924
Alsdad
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- Guardian Angel
@alsdad
Great that you’re feeling so good Ann. I’m sure your four week bloods will make you feel even better!

And great first bloods of your treatment John.
6 October 2015 at 2:57 pm #1925
Joy
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- Guardian Angel
@joy
I’m still waiting for my meds to arrive but getting excited hearing all the positive feedback.
Thanks everyone for the encouragement and all the best with slaying the dragon.
6 October 2015 at 3:19 pm #1926
Johnboy
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- Guardian Angel
@johnboy
Good luck Joy. You may have some pretty ordinary days while your body adjusts.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
7 October 2015 at 12:46 am #1945
Vicki
- Topics: 5
- Replies: 40
- Total: 45
- Recovery Champion
@vicki
I had a similar experience. Ist week the the Sofosbivir smelt toxic. Into the 2nd week I couldn’t smell a them at all.
7 October 2015 at 5:05 am #1957
Joy
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- Guardian Angel
@joy
Yes Johnboy I am prepared for side effects, all worth it to be Hep C freeeeeeeeee. And I might be one of the lucky ones without sides.

I’ve been living with my dragon for over 30 years and very ready to say goodbye to the shame, stigma, and secrecy that came with it.

Received an email yesterday confirming my order has arrived in Australia, awaiting testing and encapsulating, so it won’t be long now. Whoopee.
7 October 2015 at 5:21 am #1964
Johnboy
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- Guardian Angel
@johnboy
I have never had shame, secrecy or stigma over this. I point blank refuse to feel such emotion. I am very open about it and that shocks many I talk to.

Slay away!

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
7 October 2015 at 5:34 am #1966
Joy
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- Guardian Angel
@joy
Good for you Johnboy. I found so much ignorance out there, particularly concerning transmission (the leper effect) that I shut up about it. I couldn’t be honest in my work environment without risking losing jobs or customers. It’s almost as stigmatised as HIV was.
7 October 2015 at 10:12 am #1969
Bloot
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- Recovery Champion
@bloot
I’m reasonably open about it
But i did tell the doctor that i got it from a blood transfusion (I had 2 serious injuries that required transfusions before you could test)
However during my misspent youth i also shared needles with a guy I knew had hepatitis
But it was just an off the cuff comment someone said about him being yellow
I thought it was something you got from eating dodgy food in poor countries and thought no more about it- until i tested positive
whoops
that’s the problem with a war on drugs – it’s a war on education as well

i told the doctor this because i reckon the info goes on a database
And i reckon the more needle users that have it, the more reason no-one needs to care
i reckon there is definitely a stigma of it being a ‘junkies’ disease
We live in a punitive society and i reckon regular punters see Hep c as your punishment for being a fool
That’s my theory anyway

52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263

Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected

2004 biopsy F3
Fibroscan appt Jan 11 2016.
7 October 2015 at 11:15 am #1970
Johnboy
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- Guardian Angel
@johnboy
Sad but true.

The only negative attitude I ever had was from a doctor. He couldn’t find my deadset easy to find veins and then asked if I had ever used needles. I said yes, then he viciously jabbed me in the upper arm to take blood. It was the most disgusting behaviour.

G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015
7 October 2015 at 12:39 pm #1973
emilio
- Topics: 13
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- Total: 381
- Guardian Angel
@emilio
Yep well no blood transfusions here, mis-spent youth banging up and sharing up Afghanistan and Burmas finest. We had no idea, hep c wasn’t even invented lol and nor was needle exchange. Huge regrets now as a grandfather, father and responsible world citizen. Em
7 October 2015 at 12:39 pm #1974
LondonGirl
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- Guardian Angel
@londongirl
I believe there are many in the medical profession who believe they need to be ‘cruel to be kind’ thinking that we may ‘learn our lesson’ if they are cruel to us. It is shocking. Some maybe think we will not ‘endanger’ ourselves again if they make our experience as difficult as possible. Some think it’s our own fault and we are wasting medical resources. Seems to me, many of us are over 50, this has been my experience since diagnosis, they would prefer to have us labelled junkies out of a ‘life-style choice’ I think. It keeps public opinion on the side of no funds for treatment. They also seem to overstate the cost of treatments in the press. Well, English Health Authority do anyway. It’s handy for them to blame NICE.
Johnboy – The blood test thing is interesting ….sorry you had to experience that.
I believe HepC patients all over, are discriminated against.
My personal experience of the medical profession in England regarding this illness has been, in a word, bad.
LG

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
7 October 2015 at 1:54 pm #1976
Life
- Topics: 2
- Replies: 172
- Total: 174
- Guardian Angel
@life
How great!!
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