Home Forums Main Forum Patient Stories DAA Side Effects Side effects for sofosbuvir/Daclatasvir combo.

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  • #1999
    Avatar photoBloot
    • Topics: 3
    • Replies: 65
    • Total: 68
    • Recovery Champion
    • ★★★★
    @bloot
    emilio wrote:

    Yep well no blood transfusions here, mis-spent youth banging up and sharing up Afghanistan and Burmas finest. We had no idea, hep c wasn’t even invented lol and nor was needle exchange. Huge regrets now as a grandfather, father and responsible world citizen. Em

    I’d rather have a dad or a grandpa like you with a few worldly experiences to share than some straighty 180 B)
    We’ve all done things in our youth that are a bit risky – some don’t even live to tell the tale

    As Sid Vicious said (or maybe Cranky Franky before him)
    Regrets, I’ve had a few, but then again, too few to mention

    People will always find something to be prejudiced about
    I think that is just human nature (or society)


    52 y.o. G3a for about 30 years
    Previous tx 2004 interferon/ ribavarin
    2004: ALT 624 AST 263

    Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
    6/11/15: Sof/ dac started
    26/11/15: ALT 41 AST 41
    7/12/15: ALT 36 AST 30 Virus undetected

    2004 biopsy F3
    Fibroscan appt Jan 11 2016.

    #2002
    Avatar photoWishIWasAWombat
    • Topics: 2
    • Replies: 21
    • Total: 23
    • Treatment Warrior
    • ★★★
    @wishiwasawombat

    Hello!

    I’m at three weeks into my medicine (S&D from China).

    Like Bloot 10 years ago I had Interferon & Rib and it was vile.

    Anyway, talking to Dr Freeman was first time in a decade I felt hope and a long standing depression lifted. So my mood lift wasn’t a symptom of the drugs, it was organic to me and that I actually believed Dr Freeman about the realness and closeness of of a cure.

    I’ve had no pain or sickness except once when I had a lot of coffees and smokes and sat up very late. I had horrible aching all over
    My mind is a bit vague, and forgetful, also a bit deaf or hard to understand peoples voices.
    My pooh was soft in a way that I didn’t like for a few years and 3 or 4 days into meds it got firm and felt normal again.
    No lift in energy as people report or smell stuff. But I am restless and not sleeping as many hours.

    My mood flattened out again too as I started to fret I won’t get well. And at same time a bit confronted with what to do with myself if I do get well, start living again and all that stuff. :blink:

    I suspect I am fairly symptom free as I had a low viral load when Dr Freeman tested me before these meds.

    Very interesting to read in this string about taking the meds away from fatty/carby food. Am glad I got that info!

    I will go for blood tests in a week or so to see how I’ve gone.
    And I too wish everyone the very best results!


    Diagnosed in the early 90’s, geno 3, had Interferon 2006, currently on Sofosbuvir & Daclatasvir

    NO VIRUS @ 4 WEEKS of Sofosbuvir & C Daclatasvir

    Still free – SVR4 and at 8 weeks too

    Still free at 7 months, CURED!!

    #2004
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Thanks Boot and Welcome Wombat.

    Many of us will never forget the IFN/Riba treatment, soul destroying stuff and to no avail. I’m on the same gear as you wombat but only 3 days in. Fingers crossed hey. Are you in oz? Em

    #2005
    Avatar photoWishIWasAWombat
    • Topics: 2
    • Replies: 21
    • Total: 23
    • Treatment Warrior
    • ★★★
    @wishiwasawombat
    emilio wrote:

    Thanks Boot and Welcome Wombat.

    Many of us will never forget the IFN/Riba treatment, soul destroying stuff and to no avail. I’m on the same gear as you wombat but only 3 days in. Fingers crossed hey. Are you in oz? Em

    Thank you Emilio!

    I am so glad you’ve accessed it too!

    Yes, I remember with the Interferon, I joined an on-line group I think via my old Dr’s in Sydney– ACON or some guys like that ran it. Some of those people on that on-line group had done interferon riba up to three times… They were great people and a huge support to me as I was in wilderness in Tas while I was on it and really had trouble with it, lol.

    I am still in Tasmania. I think I read somewhere you’re in North Qld?

    Actually my neighbor in Sydney did a year of Interferon & riba AND a year of full time uni together, some people are just so amazingly strong.

    Still stunned how symptom free this is,


    Diagnosed in the early 90’s, geno 3, had Interferon 2006, currently on Sofosbuvir & Daclatasvir

    NO VIRUS @ 4 WEEKS of Sofosbuvir & C Daclatasvir

    Still free – SVR4 and at 8 weeks too

    Still free at 7 months, CURED!!

    #2038
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad
    LondonGirl wrote:

    I believe there are many in the medical profession who believe they need to be ‘cruel to be kind’ thinking that we may ‘learn our lesson’ if they are cruel to us. It is shocking. Some maybe think we will not ‘endanger’ ourselves again if they make our experience as difficult as possible. Some think it’s our own fault and we are wasting medical resources. Seems to me, many of us are over 50, this has been my experience since diagnosis, they would prefer to have us labelled junkies out of a ‘life-style choice’ I think. It keeps public opinion on the side of no funds for treatment. They also seem to overstate the cost of treatments in the press. Well, English Health Authority do anyway. It’s handy for them to blame NICE.
    Johnboy – The blood test thing is interesting ….sorry you had to experience that.
    I believe HepC patients all over, are discriminated against.
    My personal experience of the medical profession in England regarding this illness has been, in a word, bad.
    LG

    It’s one of the first questions they always ask. I always tell them it’s probably from sharing a toothbrush/razor with my brother, who’s been registered as a heroin addict since he was 21, and who had a hepC-related liver transplant last year. Their attitude always noticably improves. But my interactions with the NHS on this have still been mostly sh1t, my GP practice notwithstanding.

    #2393
    Avatar photoLife
    • Guardian Angel
    • ★★★★★
    @life

    I’m having these huge brainfogs…hopefully it will get better!! Goodluck to you Johnboy!

    #2394
    Avatar photoLife
    • Guardian Angel
    • ★★★★★
    @life

    And good luck to everyone!!!

    #2400
    Avatar photoLife
    • Guardian Angel
    • ★★★★★
    @life

    Hello Johnboy!

    How are you now…I’m having deep deep brain fogs…you’re better?

    #2402
    Sir-Paul-Paul-MJ-twitter
    • Topics: 1
    • Replies: 15
    • Total: 16
    • Acolyte
    • ★★
    @sir-paul-paul-mj-twitter

    Insomnia 3 days in but hey that won’t kill me. :woohoo:


    Gen 3a Started Sof Dac 16/10/15
    V/L 20 Mill +
    Hep C pos approx. 27 yrs

    Non responder 2011 BMS (dac) Peg Rib

    #2408
    Avatar photoNadia
    • Guardian Angel
    • ★★★★★
    @nadia

    A few people mentioned joint pain as HepC related issue. I also suffer from it. During the treatment it has worsened and I’m wondering if that’s because I’ve stoped taking fish oil and other supplements. Is it safe to take fish oil during treatment? I hope it would not interfere with the absorption of the meds.


    Virus not detected from 14.10.2015

    #2410
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Hi Life

    Your brain fog will improve and once you are saturated with the meds your body/brain should adjust somewhat. God speed L, talk soon. Em

    #2412
    Avatar photoAlsdad
    • Guardian Angel
    • ★★★★★
    @alsdad
    Nadia wrote:

    A few people mentioned joint pain as HepC related issue. I also suffer from it. During the treatment it has worsened and I’m wondering if that’s because I’ve stoped taking fish oil and other supplements. Is it safe to take fish oil during treatment? I hope it would not interfere with the absorption of the meds.

    My joint pain was also worse periodically in the first few weeks of treatment. It’s eased again recently, and some days it’s better than it has been for the last few months.

    Take the fish oil at the opposite end of the day to your meds.

    #2413
    Johnboy
    • Topics: 16
    • Replies: 75
    • Total: 91
    • Guardian Angel
    • ★★★★★
    @johnboy

    I’ve had plenty of soreness and some strange brain farts .

    Other times I am spot on…. Better than ever.

    Once I get through this I will be a new person. I am convinced of that.


    G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015

    #2414
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    same same johnboy, very tolerable compared to the previous chemicals. Mostly good, occasions of x 2 gravity and fog. Lil nanna naps seems to fix this. Em

    #2415
    Johnboy
    • Topics: 16
    • Replies: 75
    • Total: 91
    • Guardian Angel
    • ★★★★★
    @johnboy

    I’m really on top of it right now.
    Feeling supercharged this morning.


    G1 58yo F1 54,000 viral load Relapser 2003/4 Sof/Dac started 21/9/2015

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