Home Forums Main Forum Patient Stories So, the battle is joined!

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  • #13608
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Just checking in guys – I was discharged today after 3 days in hospital, now minus one half of my thyroid lol
    (pain & swelling was a bit harder to control than normal, is usually an overnight stay)

    Still pretty sore and very tired! and a bad headache, since I’ve not been drinking much. But with one kickarse-looking scar lol

    I rack up 10 weeks on treatment tomorrow, so only a couple to go :) Still getting the occasional liver twinge, so my EOT bloods will be interesting. I’m fighting a losing battle trying to catch up on everyone’s stories here, so a collective good wishes to all, if I miss you somewhere :P


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #13609
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Hi Zhuk,

    Good to hear you are finally home, put ya feet up and try and relax as much as you can :)


    SVR 24

    #13611
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey thanks, Tina!

    Yeah I don’t seem to be able to do much other than sleep atm lol

    So all for the best I guess, healing-wise :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #13615
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    I am glad I received an email notification Zhuk. Three days iin the clink huh, must be great to be home, albeit in pain and sporting a big scar and a bit missing. Hoping your recovery is excellent. I expect you will have bloods done lots for your TSH and so on. You possibly resemble a pincushion anyway…I trust all went well with taking your meds and so on, and now onto week ten great stuff, almost there. I send you warm wishes for a relaxing and speedy recovery and lots of sleep to get over the anaesthetic and all. Love from Ariel #love #flower #love #flower

    #13620
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Good to see you back!
    Now, you can have a second “smile” just like me.
    You probably weigh as much as one of my shoes now…


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #13731
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey cheers Ariel, I really appreciate your kind words :)

    Yep you’re not wrong about the pincushion lol. Always been a bit of a pathologists nightmare heh but luckily they hit the mark first off most times, which was helpful.

    And just for added excitement I ended up in ER most of Friday due to persistent crushingly bad headaches since the op. Turned out (as I suspected) it was dehydration due to not being able to swallow enough to make up the deficit – one bag of IV saline over the 3 days in the clink, I asked for more and they said nope, you have to drink. Yeah, that wasn’t happening heh. So another tour of our fine public hospital system resulted lol

    Did get to educate quite a few health professionals about DAA’s, since they’re going to be seeing a lot more patients on them trickle through the system eventually. So that was a win :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #13732
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Haha Mike :lol:

    Hey very possibly mate! In fact I think I lost a bit of weight while inside :blink: and I don’t wanna see another sandwich any time soon (since they obviously couldn’t think of what else to feed me when I could re-start eating) lol.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #13734
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Zhuk, you sure have a lot on your plate atm. wishing you a speedy recovery, lots of weight gain, double smiles, and the best possible EOT results. #flower #flower #flower

    #13735
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Thanks very much Joy! I appreciate it :)

    Only 1 1/2 weeks to go on tx now, is going to feel strange not being woken at 6am every day by my phone heh. And I guess that is where the real waiting starts – to see if the cure holds out. Strange that even with such an almost unequivocal likelihood of cure, there’s still a small, niggling space for human doubt :P I was amazed enough at the 6 week UND stats lol


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #13739
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hey Zhuk, so glad surgery went well -successful that is – though it sounds like you had a rough time of it. Hope you are recovering well, taking it easy and looking after your dear old Mum #love

    Wishing you all the best as you head to the EOT line! :) #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #13749
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    zhuk wrote:

    Thanks very much Joy! I appreciate it :)

    Only 1 1/2 weeks to go on tx now, is going to feel strange not being woken at 6am every day by my phone heh. And I guess that is where the real waiting starts – to see if the cure holds out. Strange that even with such an almost unequivocal likelihood of cure, there’s still a small, niggling space for human doubt :P I was amazed enough at the 6 week UND stats lol

    I haven’t had surgery mid tx and haven’t had a rough time compared with peginf which nearly killed me but I am also becoming more anxious about EOT Zhuk
    I’m such a laid back person but anxiety snuck in a door during peginf and hasn’t gone. I’m seeing a psych once a week for the last six weeks of tx and the two after for support
    It’s certainly a time of wait and see!
    We can always re-treat if any nasties reappear that’s the good part I find great comfort in, we are so fortunate to have this place and access to meds that actually work and don’t half kill you!
    Good luck you have shouldered a fair bit for sure
    Splashes
    Ariel

    #13750
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Zhuk/Ariel I wish you both all the very best for your EOT……I was so incredibly anxious but as you know my four week SVR was undetected. Now just the wait for the last one….still anxious but not as much :) Zhuk you sure have a had a rough trot…my sister had the whole thyroid thing and she also has a kick ass scar!! Hope you Mum is on the mend too.

    Thinking good thoughts for you both. :+1: :)


    YMMV

    #13752
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Zhuk, Sorry to read you’ve had to endure this, especially on tx. Sending you big get well wishes across the miles #flower #flower #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #13756
    Avatar photoCC2B
    • Guardian Angel
    • ★★★★★
    @cc2b

    Best wishes for no more complications and much improved and quick healing. #love
    EOT getting close :woohoo: good luck on your way to SVR :+1: #flower


    GT2b diagnosed 10/2015
    since: unknown
    11/20/15 VL= 214,070
    12/4/15 ALT=18 AST= 24
    1/16/16 started sof/dac
    2/13/16 @4wks VL=UND ALT=13 AST=22
    3/12/16 @8wks VL=UND ALT=10 AST=18
    4/9/16 EOT VL=UND ALT=11 AST=19
    9/23/16 SVR24 ALT=11 AST=22

    #13757
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    I know the “niggling’ feeling Z,
    23 days until my SVR 12 test. I, like you, responded well to tx and the results should be fine. It just seems to good to be true at times.
    M


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

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