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  • 30 September 2015 at 4:06 pm #1590
    greyhound
    • Topics: 5
    • Replies: 8
    • Total: 13
    • Acolyte
    • ★★
    @greyhound

    Well I went to see my GP, a new Irish doctor only in Oz for 6 months who is not very familiar with HCV and it’s management. My regular GP has retired. She was not willing to prescribe for me. She wants to get advice from my Virologist in Sydney who had already written to my GP stating that I am well educated on available and new treatments in the pipeline, that he did not need to see me again and that I could access treatment through my GP when they became available thru the PBS. So, once again it’s back on the treadmill. My GP did not want to write the prescription because she thought she would be liable if I used the script to procure ‘unsafe’ drugs from overseas. She will await advice from my virologist which could take a month and even then it is possible he is unaware that there is a safe and effective way of accessing these meds through the buyers group.

    30 September 2015 at 4:19 pm #1591
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Greyhound, you’re in Australia.

    You can skip seeing your GP and use GP2U and buy direct from The Buyers Club.

    Go back to the liver clinic and ask for a Fiber scan and some blood work once you obtain the results you can send
    them direct to Dr Freeman.

    In other words you don’t need a prescription from your GP once you have your Hep C information Dr Freeman
    can write your script.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    30 September 2015 at 4:33 pm #1593
    greyhound
    • Topics: 5
    • Replies: 8
    • Total: 13
    • Acolyte
    • ★★
    @greyhound

    Yes, that is exactly what I intend to do. I have already had a Fibroscan done earlier this year through my virologist in Sydney. I’m having updated LFT’s done tomorrow am. I’ll get the results first then make an appointment online with GP2U.

    30 September 2015 at 4:38 pm #1594
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Great stuff:)

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    1 October 2015 at 1:24 am #1605
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    Hi I am a 3a non responder with stage 4 -fibro 23. I got the virus in the 70’s. Also I got the ribavirin with the Indian generics. I am the thinking the riba doesn’t go well with interferon. Try it, the worst thing that can happen is that you stop it. kindly

    1 October 2015 at 3:26 am #1614
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Hi Berinice

    I personally didn’t mind the ribavirin and my RBC and Haemo didn’t tank even when overdosing to 1400mg daily. Em

    1 October 2015 at 9:34 pm #1669
    Avatar photoberrinice
    • Guardian Angel
    • ★★★★★
    @berrinice

    I am a bit dubious about this Indian Ribavirin. I am going to write to the manufacturer to get assurance that its 100%. I have taken ribavirin before and accidently took 1 tablet too much -1200mg in total and I was violently sick for 10 hours. I am taking 1200mg and no effect.
    I am under 75 kilos so 1000mg should be enough for me. So I am suspicious. kindly

    2 October 2015 at 12:33 am #1673
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    I am thinking the riba doesn’t go well with interferon.

    This is exactly what the hep c nurse at Royal Hobart said to me about 2 weeks ago was also their thinking. They actually think the people who are experiencing sides might be getting them mostly from the Sof. I think they’re monitoring a fair few people who have gone through Greg now. I’m going to drill her for as much info as I can when I see her on Monday. Might get to see the specialist too if I’m lucky. Think he works Monday’s.

    Also they did an FBC on me again with my VL so will be able to tell you if there’s any side of anemia yet.

    Did you get my email? I think Greg has good reason to be confident of his sources. I’m not worried about it. I just figure every day without side effects is one less day I’ll have to put up with them if they do suddenly kick in.

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