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Waiting is
so stressfulin my head I think that I know that I am ok
anxiety kicks in though and I acknowledge that my treatment has gone to plan and I am very thankful for that. What is it that throws me these negative and repetitive concerns through out my waiting, waiting moments?
so to a different clinic
last week I visited a gastroenterology clinic in the city recommended to me by a forum friend. I was given a comprehensive path request for a whole range of tests. I was booked in for a fibroscan and ultra sound. I asked my new doctor if I really did need to test for SVR24 and he tilted his head and looking at me said ‘ah no, not really’ and then said ‘ but I haven’t walked in your shoes’
so kindhe told me that 450 scripts had been issued via PBS from this Melbourne hospital so far and I thought to myself that wasn’t really many at all
someone close to me suggested that I might be suffering a kind of trauma of ‘aloneness’ signifying that since diagnosis I had carried this knowledge with me and told no one
so trueI’ve been thinking about this a lot because I was isolated in clinics and by doctors and felt
so traumatised that I couldn’t start my own blog on fixhepc because I was terrified
so many supportive friends here though, thank youSVR24 means 99.9% cure and
and so the doc phoned today
and said ‘I checked 3 times’
I held my breathhe said ‘can you live with out it?’
you are undetected
certainly you are okhowever believe it when I say that I will test every year
I recognize that waiting is a known given for all those of us with HCV and also for those as yet untreated and those retreating. I acknowledge the horrendous interferon experience that people have suffered through previous treatments
I think about the unavailability of these drugs across the world and the consequences
I wish everyone wellbeing and health
Thank you James and Greg and Fixhepc team also GP2U
so then I went for a walk and
Such a beautiful post Pat1, you have such empathy for all and you have been such an inspiration to many. I am so stoked for you. Thank you for helping me through a bump in tx, thank you for your caring manner on this forum, always interested in patient stories and real issues we face. I am so happy for you, Pat1. Thank you for talking about the reality of HCV and the issues worldwide, we are the lucky ones aren’t we……and I am still a few weeks away from my SVR24 but know that we are so lucky here, I agree with everything you say. You made it through this major milestone girl, that is brilliant, and I agree about testing yearly,, I will be after all the shizzle we have been through why not be nice to ourselves by being vigilant, yes yes!
HepC Freeeeeeeeeeeeeee
Love and giant bubbly splashes from Ariel
What a wonderful post from the heart Pat1. I am so very happy for you and what a good doctor to say “I checked 3 times”. It showed that he really did understand the importance of these results to you.
Your next task is to really take it in and enjoy the freedom. Many of us have carried the secret and the virus for so long that I think sometimes that needs to be a conscious thing.
On a personal note thanks so much for your well timed PM. It meant a lot.
Enjoy the day Pat1.
Congratulations Pat1, I’m so glad to hear that you have received such wonderful news!
But of course such news requires a little (three times) happy dance too.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Pat
Your post is lovely, congratulations on your SVR and the freedom that comes with it.
Thanks Sven
with 4 weeks path UND
I look forward to reading your SVR24 mate
Hi Pat1 that is one beautiful post thank you. I am just over 1 week into treatment and feeling somewhat shattered today so reading your SVR news is super emotional and has given me such a lift. It is certainly one huge rollercoaster we are all on not quite knowing where we are heading but hoping its the same end stop
The loneliness you mention in your post is so the reason we all need one another on here. I have come onto the website each day when I get a moment to read a little of everyones posts past and present, as it is quite a bit to take in! There are so many great stories, questions?????? ideas
and so so much more particularly loving the music I find it hard to concentrate on writing too much but reading your post today just had to come and say a big THANK YOU Pat1 for sharing your words and your rainbow 
I hope you do stick around for a good while.
much love and hugs
Nadia xxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!That doctor sounds like a wonderful, compassionate human being.
We all need to practice compassion.
And yes, 450 scripts, that sounds like a drop in the bucket doesn’t it?
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