Home Forums Main Forum Patient Stories Relapse Corner – Next Steps Thank You Doc Freeman

Viewing 15 posts - 16 through 30 (of 53 total)
  • Author
    Posts
  • #25642
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Barry,

    Sounds like your indomitable spirit has survived the surgeon’s knife!


    YMMV

    #25643
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Hi Barry , I think your one of the toughest people to have ended up here.

    Good to see your still in one piece mate …. well sort of :)

    Keep Tough


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #25644
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    You are amazing and must have balls of steel. Admin, just save yourselves some time and stick me in jail now.


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #25684
    Avatar photoSven
    • Guardian Angel
    • ★★★★★
    @sven

    Damn, I’ll bottle your enthusiasm and outlook we’ll make billions! Wow, what a glass 3/4 full person. Increible attitude!
    May God be with you always.


    Contracted HCV 1980’s
    Geno Type 1a
    F3 ( doc says once treated I’ll be F2 maybe F1)
    Meds shipped 6/17/2016 arrived early 7/2016

    Viral count – 3,471,080

    4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

    8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

    11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

    December 19th 2016: Cured!
    Viral count: zero!!!
    2018 viral count: still zero!
    Cured!

    #25700
    Woobia 22
    • Topics: 2
    • Replies: 32
    • Total: 34
    • Treatment Warrior
    • ★★★
    @woobia-22

    Well arrived home Friday Arvo after 12 days in hospital as Surgeon was worried that the guts might open up again or bleed internally. Got my 32 staples out yesterday and have a Ultrasound this Friday for internal bleed or clear. Feel ok but energy levels are down probably from the Glandular Fever I have.

    It is gunna be a slow process getting fit again as I have a corset on and it feels really awkward to walk even without it but he reckons another 4 weeks and Muscles should have healed by then. The Nurse who took my staples out yesterday is the first person I have met that knew of the Fixhepc website and Doc Freeman, I was wrapt as she had really nice things to say about Sir Doc Freeman.

    Saw my Doc locally Monday and he was telling me he has diagnosed 8 patients with either Ross River or Dengue Fever in last week just him and their are 5 docs in his mob and another 10 or so in town plus the almighty hospital. I am still waiting for the Shire to start Fogging at least as there are a heap of kids up here.

    Great to read you are Free London Girl and hope olm8 Archer is going strong.


    First diagnosed Nov 2012 with Hep C 1a End Liver disease
    Failed peg and Sof/dac
    Given 18 mths to live Aug 2014
    Failed sof/dac July 2015
    Sep 2015 given till March 2016 to live as nothing they can do
    Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
    Been in a coma twice 2016 6 stays in Hospital
    Last 4 weeks have been unreal back into life again
    Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

    Barry Ashton

    #25701
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Barry,

    Sounds like tropical strength Rid and mozzie coils are needed.

    Lucky they built you jungle tough!


    YMMV

    #25706
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    You do not cease to amaze. I hope you got the corset in a colour that suits you.


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #25708
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Whats a bit of Glandular Fever amongst friends eh Barry ?

    Given what you have been through the recovery from GT should be a snap mate. B)

    Cheers


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #25745
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Just catching up on your latest adventures Barry. Talk about running the gauntlet but you keep throwing yourself over those hurdles (apologies for mixed metaphors). Good to hear you are out of hospital. Take it easy olm8 (tks for my new word). #flower

    #26293
    Woobia 22
    • Topics: 2
    • Replies: 32
    • Total: 34
    • Treatment Warrior
    • ★★★
    @woobia-22

    Well I have been feeling good but guts still needs exercise but very slowly getting there. Went down to Perth last week for my MRI and get results this coming Wednesday.

    Saw my Nurse at SCGH while I was there and even Receptionist reckon I look healthy, I feel I need to lose about 10kg as I am now 100.01kg which is a bit different to my 74.8kg last April 2016. Nurse is Great and really takes an interest and is very knowledgeable, she updates me when something is wrong or coming up etc.

    I can get around really well it is just the initial 30 secs or so to get blood flowing in the legs after sitting down. My shoulder is still a worry after the op in April and I didnt help it by carrying packs of large coles water bottles and am still sore but luckily all my ailments are only Minor.

    Still only on Rifaximan and Pantaprazole 1 tab twice a day, just waiting on all clear Wednesday and Whafukinhoo back into the Big Game. It is unreal as we only spoke about it the other day when Abia’s 7 year Memorium came up, I was on 27 pills plus injections of that Killer treatment Riba sumthin.

    Hope everyone is going well and hoping to get to meet the Doc one day when he gets to a warmer climate.


    First diagnosed Nov 2012 with Hep C 1a End Liver disease
    Failed peg and Sof/dac
    Given 18 mths to live Aug 2014
    Failed sof/dac July 2015
    Sep 2015 given till March 2016 to live as nothing they can do
    Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
    Been in a coma twice 2016 6 stays in Hospital
    Last 4 weeks have been unreal back into life again
    Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

    Barry Ashton

    #26431
    Woobia 22
    • Topics: 2
    • Replies: 32
    • Total: 34
    • Treatment Warrior
    • ★★★
    @woobia-22

    I just weighed myself and have now blown out to 101.7kg, last April 2016 I was 74.6kg so I am setting myself a new goal. I have been Loving Food again Soooo Much it has to stop.

    So I am Gunna start back on my Sugar Free Lifestyle and light Exercise with plenty of Walking, This will be interesting as I have been lacking Motivation and not sure whether the Glandular fever keeps coming back.

    I spose just another day as other than getting fat and struggling for 2 minutes till I get moving Life is pretty good. Best Wishes to All.


    First diagnosed Nov 2012 with Hep C 1a End Liver disease
    Failed peg and Sof/dac
    Given 18 mths to live Aug 2014
    Failed sof/dac July 2015
    Sep 2015 given till March 2016 to live as nothing they can do
    Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
    Been in a coma twice 2016 6 stays in Hospital
    Last 4 weeks have been unreal back into life again
    Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

    Barry Ashton

    #26433
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Woobia,

    The army will only let 18 yo recruits carry 25 kg because if you load up their young bodies with too much more they wear out.

    You’ve loaded yourself up with that, but you can’t just take it off for a breather!


    YMMV

    #26434
    Woobia 22
    • Topics: 2
    • Replies: 32
    • Total: 34
    • Treatment Warrior
    • ★★★
    @woobia-22

    Yo Doc I am hoping, nah I will not be taking it off for a breather I will be losing it for good, slowly work it off.

    This will test my determination and pig headedness but after being on it for 3 years it really helped me with fitness and attitude.

    Fuk it is so hard to get going though I need a Rocket under my ass.

    Thanks Doc.


    First diagnosed Nov 2012 with Hep C 1a End Liver disease
    Failed peg and Sof/dac
    Given 18 mths to live Aug 2014
    Failed sof/dac July 2015
    Sep 2015 given till March 2016 to live as nothing they can do
    Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
    Been in a coma twice 2016 6 stays in Hospital
    Last 4 weeks have been unreal back into life again
    Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton

    Barry Ashton

    #26440
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    “This will test my determination and pig headedness…..”

    No contest Barry! Now finish that vanilla slice and double cappuccino and go for a walk. :P


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #26457
    gypsy
    • Topics: 0
    • Replies: 57
    • Total: 57
    • Recovery Champion
    • ★★★★
    @gypsy

    Woobia22: Sorry you had such a horrible experience. Hope things are going well for you now.

Viewing 15 posts - 16 through 30 (of 53 total)
  • You must be logged in to reply to this topic.