Home › Forums › Main Forum › Patient Stories › Relapse Corner – Next Steps › Thank You Doc Freeman
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20 March 2017 at 7:22 am #25642
Hi Barry,
Sounds like your indomitable spirit has survived the surgeon’s knife!
YMMV
20 March 2017 at 7:56 am #25643Hi Barry , I think your one of the toughest people to have ended up here.
Good to see your still in one piece mate …. well sort of
Keep Tough
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
20 March 2017 at 3:52 pm #25644You are amazing and must have balls of steel. Admin, just save yourselves some time and stick me in jail now.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby25 March 2017 at 7:35 am #25684Damn, I’ll bottle your enthusiasm and outlook we’ll make billions! Wow, what a glass 3/4 full person. Increible attitude!
May God be with you always.
Contracted HCV 1980’s
Geno Type 1a
F3 ( doc says once treated I’ll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016Viral count – 3,471,080
4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)
8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)
11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected
December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!29 March 2017 at 12:22 pm #25700Well arrived home Friday Arvo after 12 days in hospital as Surgeon was worried that the guts might open up again or bleed internally. Got my 32 staples out yesterday and have a Ultrasound this Friday for internal bleed or clear. Feel ok but energy levels are down probably from the Glandular Fever I have.
It is gunna be a slow process getting fit again as I have a corset on and it feels really awkward to walk even without it but he reckons another 4 weeks and Muscles should have healed by then. The Nurse who took my staples out yesterday is the first person I have met that knew of the Fixhepc website and Doc Freeman, I was wrapt as she had really nice things to say about Sir Doc Freeman.
Saw my Doc locally Monday and he was telling me he has diagnosed 8 patients with either Ross River or Dengue Fever in last week just him and their are 5 docs in his mob and another 10 or so in town plus the almighty hospital. I am still waiting for the Shire to start Fogging at least as there are a heap of kids up here.
Great to read you are Free London Girl and hope olm8 Archer is going strong.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
29 March 2017 at 2:26 pm #25701Hi Barry,
Sounds like tropical strength Rid and mozzie coils are needed.
Lucky they built you jungle tough!
YMMV
29 March 2017 at 10:49 pm #25706You do not cease to amaze. I hope you got the corset in a colour that suits you.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or soEOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby30 March 2017 at 3:33 am #25708Whats a bit of Glandular Fever amongst friends eh Barry ?
Given what you have been through the recovery from GT should be a snap mate.
Cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
1 April 2017 at 7:25 am #25745Just catching up on your latest adventures Barry. Talk about running the gauntlet but you keep throwing yourself over those hurdles (apologies for mixed metaphors). Good to hear you are out of hospital. Take it easy olm8 (tks for my new word).
3 June 2017 at 8:26 am #26293Well I have been feeling good but guts still needs exercise but very slowly getting there. Went down to Perth last week for my MRI and get results this coming Wednesday.
Saw my Nurse at SCGH while I was there and even Receptionist reckon I look healthy, I feel I need to lose about 10kg as I am now 100.01kg which is a bit different to my 74.8kg last April 2016. Nurse is Great and really takes an interest and is very knowledgeable, she updates me when something is wrong or coming up etc.
I can get around really well it is just the initial 30 secs or so to get blood flowing in the legs after sitting down. My shoulder is still a worry after the op in April and I didnt help it by carrying packs of large coles water bottles and am still sore but luckily all my ailments are only Minor.
Still only on Rifaximan and Pantaprazole 1 tab twice a day, just waiting on all clear Wednesday and Whafukinhoo back into the Big Game. It is unreal as we only spoke about it the other day when Abia’s 7 year Memorium came up, I was on 27 pills plus injections of that Killer treatment Riba sumthin.
Hope everyone is going well and hoping to get to meet the Doc one day when he gets to a warmer climate.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
18 June 2017 at 4:11 pm #26431I just weighed myself and have now blown out to 101.7kg, last April 2016 I was 74.6kg so I am setting myself a new goal. I have been Loving Food again Soooo Much it has to stop.
So I am Gunna start back on my Sugar Free Lifestyle and light Exercise with plenty of Walking, This will be interesting as I have been lacking Motivation and not sure whether the Glandular fever keeps coming back.
I spose just another day as other than getting fat and struggling for 2 minutes till I get moving Life is pretty good. Best Wishes to All.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
19 June 2017 at 3:33 am #26433Hi Woobia,
The army will only let 18 yo recruits carry 25 kg because if you load up their young bodies with too much more they wear out.
You’ve loaded yourself up with that, but you can’t just take it off for a breather!
YMMV
19 June 2017 at 12:26 pm #26434Yo Doc I am hoping, nah I will not be taking it off for a breather I will be losing it for good, slowly work it off.
This will test my determination and pig headedness but after being on it for 3 years it really helped me with fitness and attitude.
Fuk it is so hard to get going though I need a Rocket under my ass.
Thanks Doc.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry AshtonBarry Ashton
20 June 2017 at 5:31 am #26440“This will test my determination and pig headedness…..”
No contest Barry! Now finish that vanilla slice and double cappuccino and go for a walk.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
21 June 2017 at 6:41 am #26457 -
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