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  • 12 April 2016 at 2:30 am #15248
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Dr Andrew Hill is a well known and well connected actor on the HIV/HCV “scene”. He is also a co-author of our generics paper for EASL.

    To help stimulated interest in the US media patients with the correct accent are required.

    If you’re up for talking to the media (paper, radio and/or TV) please contact Andrew or I directly.

    ———- Forwarded message ———-
    From: Andy
    Date: 12 April 2016 at 00:25
    Subject: US person to talk with Washington Post?
    To: James

    Hi James,

    Please could we have a treated US person on the FixHepC programme to give a comment to Washington Post? Just had the request

    Thanks,

    Andrew

    YMMV

    12 April 2016 at 5:03 am #15261
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    I wish I could do this for you! But my job is about to be outsourced, and I am aggressively seeking a new one. I can’t afford the stigma associated with this disease. If I can do it with my identity being hidden, I will do it.

    12 April 2016 at 5:12 am #15263
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi GF,

    If you could send an email to Andrew that would be great.

    Although I’m sure we will need someone stateside to put a face to it, even putting an anonymous voice to it – with a familiar accent – should help draw the US media in, so it would be great if you could speak anonymously about it.

    YMMV

    12 April 2016 at 5:20 am #15265
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Doc,
    You know I would do that in a hearbeat, but I finished on the factory stuff. Still, the story is a pretty good one.
    I may not be “generic patient ‘0’” in the U.S., but I have to be close.
    But, for your purpose, I am “tainted” goods.
    m

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    12 April 2016 at 5:27 am #15266
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Hey Doc,

    I sent him an email

    12 April 2016 at 6:24 am #15277
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    I’m out of the country right now. I expect to be back first week of May. If he still needs somebody at that time I’ll do it.

    12 April 2016 at 7:20 am #15281
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll
    mgalbrai wrote:

    southern drawl all over it.

    Put in your LA voice instead. There is a reason why most
    newscasters speak like they are from Cal.

    http://giphy.com/gifs/dance-kJlKrFUbCwgKs

    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    12 April 2016 at 8:27 am #15286
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Go for it Mike, you are a generics importation representative for sure with the blessing of all, no matter what packet you got them out of. I am dreaming of fixhepc, the screenplay. We already have the cast of characters, you write your own dialogue! and we need a young Don Adams to star as you. But until then, tell them about it. You too GF, on your own terms.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    12 April 2016 at 8:49 am #15294
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    :)

    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    20 April 2016 at 1:38 am #15833
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    We have a nurse on treatment. I’ll pass the message to her and to Alex (who’s making the video on treating with generics). She would be perfect. She likes cameras and interviews.

    P.

    20 April 2016 at 1:43 am #15834
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    Mike, that would be conflict of interest, sort of.

    P.

    20 April 2016 at 6:03 am #15845
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    P,
    I think I agree with you, but I’m conflicted.. sort of.
    <img style=illy:' />

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    20 April 2016 at 7:48 am #15852
    Avatar photoPrice
    • Guardian Angel
    • ★★★★★
    @price

    Then do it under one of your other personalities <img style=illy:' />

    P.

    20 April 2016 at 5:21 pm #15879
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    It’s turned out to be academic.

    The Washington Post, New York Times and Boston Globe have all decided NOT to run the story.

    While one view would be the evil hand of Big Pharma suppressed the story it’s probably a bit more pragmatic.

    If we had FAILED that would have been news, but given the lack of failure….

    The problem is that the story was effectively communicated as “Cheaper versions of already proven American drugs have been proven to work by people who are not Americans, treating people who not Americans, reporting to people who are not Americans somewhere which is not in America called Spain, at some conference which is not American called the EASL ILC 2016”

    Getting this story to float in the mainstream media in the USA is going to take work, and quite possibly a blonde hair, big boobs and uber fame celebrity endorsement.

    Sad as it may be if Pamela Anderson had said “I had Hep C, took generics, and got cured” then the US media would be all over it.

    YMMV

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