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Yup, MrMumbai was me
. My first plan was to go to india to get meds. It´s still a plan B if the Redemption medication for some reason don´t get through to the UK adress.
Good news tonight: payment has cleared and meds will be shipped
If no hold up at customs they will arrive by next weekend. Looking foreward to get the tracking number so i can follow the journey
Things are moving in the right direction
Yesterday I met up with a new specialist and had a great experience. He did two rounds of Fibroscan, but no results high enough for putting in a new application for meds from NHS. Then I told him that I was waiting for generic medication organised through FixHepC buyers club. He was quite excited about this, as he had heard of buyers clubs but didn´t know of any patients that had tried it in Norway. He was very supportive about my choice and agreed to let me be followed by the hospital during treatment. As he said “you´ll take the medicines anyway, and it would be unethical not to follow you during treatment”.
I let him have a copy of the concent form from the Redemption trial and told him that he could let other patients curios about genercis contact me. Interesting to see if others will follow.
He also confirmed that once the meds arrive I can start taking them and that there is no danger associated with taking sof/led. I got an updated VL above 9000 and my others results seemed fine.
Today I recieved the tracker code from monkmed and my meds are on their way from India
Keeping fingers crossed they will get trhough customs without any trouble. Must say I´m very impressed with how well organised the Redemption operation is. Both monkmed and fixhepC reply to e-mails quickly and give good info all the way.It´s been a good week
Hey Paulino – That’s great news
So pleased to read of your consultants response too – I have at last found a great consultant who is supporting me this way too – It really does help to restore the faith doesn’t it
and it would be unethical not to follow you during treatment
seems to be the magic phrase that Drs who genuinely care about their patients wellbeing are using to help get their patients ‘duty of care’ – Good for him.
MonkMed are so organised regarding the tracking and keeping in touch, although a little nervous, I also found it kind of fun watching my little package make its way across the world, In fact Debs and I were having a little race !
Today I received the tracker code from monkmed and my meds are on their way from India
– Mine took 4 days – Customs no problem, as you know.Delighted for you Paulino. Yep MonkMed &FixHepC definitely rock !
Here’s to your good health
Great news Pauli!
Both from Monkmed and your specialist.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Great News Paulino, this is the start of the rest of your Life! Good Luck on Tx
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HHi Gerges,
This may also give you additional confidence in Monkmed. It is the U.S. govt’s NIH listing of the Redemption trials.
https://www.clinicaltrials.gov/ct2/show/NCT02657694?term=redemption&rank=1
FixHepC is the sponsor and Monkmed is effectively the international coordinator.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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