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  • This topic has 9 replies, 7 voices, and was last updated 9 years ago by Avatar photozhuk.
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  • 6 December 2015 at 12:52 am #5301
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Any Aussies around try and catch Weekend Sunrise this morning, there should be an interesting piece about hep c just after 9.

    cheers

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    6 December 2015 at 3:22 am #5304
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    Hi Paul it would be great to get a copy of this up on the forum :)

    SVR 24

    6 December 2015 at 3:40 am #5305
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    https://au.tv.yahoo.com/sunrise/a/30271308/the-aussie-dallas-buyers-club/

    Video:

    https://au.tv.yahoo.com/sunrise/video/watch/30286645/australias-own-dallas-buyers-club-initiative/#page1

    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    6 December 2015 at 8:36 am #5309
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    I just watched the Sunrise report and I think it was outstanding in covering the basics – 90-plus per cent cure at a fraction of the Gilead price, 100 per cent pure and legal, who with Hep C would not want that? Dr Freeman and Greg are so obviously credible.
    I hope it encourages more fence-sitters to seek treatment.

    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    6 December 2015 at 9:43 am #5312
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I agree Chapel, good credible report with ample footage from Dallas Buyers Club (go the underdog!).
    Greg and Dr James a fine looking pair.

    6 December 2015 at 10:33 pm #5338
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Here’s hoping, Chapel. For a necessarily short segment it was done pretty well (Sunrise researchers had done their homework!) with all bases covered. Dr James and Greg were great in putting a reasoned and credible face to the club’s endeavour.

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    7 December 2015 at 11:51 am #5382
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    I have many questions, I guess I’m a fence sitter
    Are the drugs tested in Australia? What if they fail the test?
    How many people have used the generics, how many have been tested 3 months after and what percentage is cured?
    If you take the generics and they don’t work do you develop a resistance, and what would happen with future treatments?
    Do you have to compound the drugs yourself?
    I am so pissed off with our government and their stupid miserable penny pinching ways (that’s not a question)
    If anyone can answer those questions I’d greatly appreciate it

    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    7 December 2015 at 12:23 pm #5385
    Avatar photoChapel
    • Guardian Angel
    • ★★★★★
    @chapel

    You don’t have to put anything in capsules, all batches are tested and the answers to most of your other questions are on here. If you go to Getting Treated section above and click through to Buyers Club, there is a lot of detail. Not sure about future resistance.
    (I am genotype 1a, never treated before, now treating with generic Sofosbuvir/Ledipasvir for a month so far with few side effects.)
    I recommend reading as much on here as you can here and also Greg Jefferys site at http://hepatitisctreatment.homestead.com/index.html

    M, 57, Live in Wellington,NZ.
    Genotype 1a diagnosed in 2013.
    Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
    Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!

    7 December 2015 at 12:32 pm #5388
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    JHi Beaches,

    I have taken the liberty of starting a new thread with your post in the Q&A section. Click on the link below to go there.

    http://fixhepc.com/forum/questions-and-answers/405-beachs-new-member-questions.html

    Oops, sorry Chapel. Didn’t see you answering till I’d created new thread via link. :)

    LOL you too zhuk. :lol:

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    7 December 2015 at 12:36 pm #5389
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hi beaches, and welcome

    The Buyer’s club is facilitating us to import the generic API’s (active pharmaceutical ingredient), and on arrival in Aust they are tested and enscapsulated by a compounding chemist. Read a bit on it in the blog section here

    http://fixhepc.com/getting-treated/importing-from-china/chinese-suppliers.html

    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

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