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18 September 2016 at 1:35 am in reply to: NHS funding cuts forcing people to buy medicine through Facebook #23085pat1 wrote:
Dear LG, thankyou for your supportive posts. It was with sadness that I read that you were refused a VL test. Unbelievable! I do and I don’t know why it has to be so difficult. Hoping to read that you have received a continued and clear UND from you in the near future. X
hear hear I second this emotion. Well said Pat1 In terms of a so called ‘easy’ tx compared to the old stuff, LG you have had the most hotch potched non support it is sad and bad and makes me mad. Considering that you have extended, had two combos and still are getting messed around I am so glad you honestly blog the ridiculous goings on in the UK so others can be armed for the ride. Although your story isn’t all sugar coated with daisies blooming and unicorns and rainbows illy:' /> it is REAL, and so important people are aware of what they are facing in your part of the globe. I also wish you UND, SVR and your health. We started out together, and I will be here when you cross the finish line my Northern hemisphere buddy.
Sending you happy splashes from Ariel*edit: “armed for the ride” ***with monkmed/GP2u
I’m responding here to issues with NHS experiences LG had has to overcomeAnd his face is pretty much how I felt when I got my call from my GP on Friday late avo to say I have SVR24 UND…ty beaches. Long live metal heads
18 September 2016 at 1:17 am in reply to: I don’t understand my bloods results, or my viral load…. #23083Good morning Donna from Oz, I am not sure where you are on the globe but it is early morning here
I would like to try to help you understand these results, and will give it a shot from my humble place here (just educated from being a patient for five years) .Platelets range is 150-450 for normal range, (I know that, mine dropped to 80 once). So I think yours at 220 is good.
The Kpa number for the fibroscan 6.4 is where they have declared you as F1/2. It is maybe F1? I think a Doctor needs to second opinion this, I am not a doctor, only another tx recipient, but I do know at 5.6 I was declared F0 that was before tx. I also know that there are friends who have finished tx and their F scores have lowered to F0 from where you are now, that is a hope for your future too, more good news.The ALT, AST, are your Liver functions the main indicators. We call this group of tests LFTs here in Oz. Globulin (Mine is written up as GGT on my reports, Bili and ALP are also in this pathology. HB (haemoglobin) I see on mine the range is 120-155 for normal. RBC is your Red Blood Cell Count. As I understand it, the normal range is between 3.90 to 5.03 trillion cells per litre. Yours seems to be in the middle of the normal range at 4.52.
Your ALT and AST are slightly elevated but I know that is very common with patients it is often how the illness is diagnosed I think, in my experience anyway.. If you check on others ‘signatures” you can see these two numbers consistently start to lower as we each go through the treatment.
There are others here with gen3 who will be able o chat to you about that, I was 1A and cleared easily on sof/led after epic failure on peginf riba.
I am pretty sure there is a genotype specific section somewhere on the forum, you can also put a search in to come up with relevant blogs for you, say pop in Genotype 3 in the search box and see what comes up.
Ferritin is iron, and that number seems in range to me, I think the range is okay if you are >100μg/L. I know that it is helpful to have good B12 levels and wonder if the ferritin test was to check your overall iron levels. I am sure that you would have been told if there was a problem with your iron. But again, I am no doctor, just trying too help you out.
Maybe ask others who have Gen3 about tx duration, and seek a second opinion form GP2U/monkmed if you are concerned too.
I am not sure what VL2.8 means because here it came on my reports in thousands, so you are getting a different type of reading. I also do not know if it is relevant to tx, that again is for a medical expert.
I wish you success, a peaceful as possible time during your treatment and the best thing? You have started now on your path to getting rid of the illness. You are in good company here, many helpful resources are available on this site, and yes there are people to help. I am looking forward to hearing of your journey to cure, sending you happies and best wishes for your questions I hope that I have given you some assistance from my own little journey with these pathologies and so on. I am sure if I have made an error trying to help you here that it will be corrected by a more educated person, so wait and see who responds in case I have not been correct but I hope I have….
Love form Ariel
mgalbrai wrote:ARIEL!!!!!
MGalbrai!!!!!! illy:' />
Have a listen to Apocalyptictica doing Enter Sandman Beaches
AHi Sven
I had dry mouth too and slightly sore teeth on this tx
Post tx I was successfully treated with fungilin lozenges for oral thrush. I didn’t realise I had it until it hurt. I did hydrate during tx and am a healthy lifestyler. I guess the thing is to just keep an eye out for any changes
Hoping you are able to get relief
ArielFantastic!! On the home run now Sven
Wishing you a good EOT and UND to SVR for you
Looking forward to your posts keep us updated on your good news
Happies to you from ArielThanks so much Greedfighter Gaj CC2B and Lynne
My GP rang me personally to share the UND status with me it was very kind of him, so thoughtful, and the PCR RNA took only 48 hours to be read…. I wasn’t expecting it back so fast.
I love those wave rainbows Gaj they were perfect timing
My body is cured it’s an amazing feeling
Wishing all SVR here sending strength and hope to all
AThinking of you Coral
May peace be with you and yours at the time of passing to the ongoing for your father.
Sending you love xxx
ATime for a dity:
Once upon an ocean
A mermaid found a potion
And though her shine had faded
And little scales were jaded
From wild and stormy seas
The bottle read “Be Free”
And now her flippers wiggle
Her tears replaced by giggle
She’s swimming swift and sure
Ariel is SVR24.(Albeit with a sore jaw illy:' /> )
Thankyou to Dr James Freeman, to Emilio who I followed over to this place, to Greg J, to Hieu, to the moderators who have all been supportive,
Thankyou to all the friends here in tx, post tx, post SVR. Thankyou to my outstanding GP.
My final LFTs even with teeth stuff and a lot of anaesthetics etc lately for small side issues are:
ALT 11
AST 16Today is the end of five years of a whirlpool and I am now sliding down the most perfect barrels ever ridden
Shakka
Congratulations Dan
This is FANTASTIC news
I’m stoked for you today is a happy happy day
Wishing you happiness and a wonderful life free and relaxed
Sending happy splashes from ArielLondonGirl wrote:Not the hoverboard for me, too close to the ground and far too wobbly !
I’m so with you lets stay on the ground LG
As a surfer for over thirty years skateboarder as a kid/teen
NO WAY would I try that thing! Great song yes but that device is so NOT on my wish list ha!
Fun share though Chester however my bones are telling me I am not made of rubber anymore lol!
ACowabunga!!!
Yew Beaches
Totes stoked at your SVR12 you babe!
You look fully amped and chargin that tx certainly hasn’t left any dings in that bod!
All those dawn patrols and epic frothin times leave Gidget flappin on the beach like a kook compared to your stylin!I’m goin off over you thrashin that gnarly beast!
Grommies again hey! Life begins anew!
CONGRATS and a glassy soup splash at you
Happies from Ariel!Thanks Coral
I think another tooth is going today!!
It’s not over til the fat lady sings as they say!
SVR24 is certainly on hold while my chompers are sorted.
Ribavirin I have had myself for 43 weeks
I hope you are okay on it please let us know how you feel and I can recommend Dermaveen wash for the skin if you get the rash. Hoping you don’t but I guess you have been educated about the riba. I’m glad you are on a whopper of a cocktail because it’s all about cure and I will look forward to your news as you fight on to the common goal.
Wishing you the best Coral xxx
Splashes of soothing waters from Ariel14 September 2016 at 1:30 am in reply to: Why doctors are a key factor in the generic medication… #22925Thanks Rohcvfighter yes I agree about trust
I’m also thankful to the FHC for restoring my trust and to my new GP here near where I live. A bad experience was hard to recover from after I believed and got hurt before.
We are not doctors and we need to know that the practitioner is doing what is reasonable and in the best duty of care. This doesn’t always happen as I am testament to. But here I have been cured, I have taken charge of my issues and health and have accessed information that’s been invaluable. Bit by bit my confidence is restoring, and bit by bit the impact of poor duty of care previous to this is being fixed up.
A negative experience can definitely affect anyone
At FHC the medicines work, there is never a hopelessness like that which I knew before from the old tx, and here DAA relapsers are priority and so they should be, here a person can ask questions about any fears and others will help.
A GREAT article thanks I so relate to this about trust.
I also try to tell people about trusting the DAAs and that too can be challenging for them, we need to keep spreading good news for sure
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