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Viewing 15 posts - 691 through 705 (of 1,060 total)
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  • in reply to: EOT Viral Load result #14159
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congrats Dab on EOT UND this thread is growing! I can’t wait until this is the longest thread on the site full of all these success stories
    Fabulous :+1:
    Love from Ariel #flower

    in reply to: Questions about going to Hobart to get the meds #14143
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Wishing you good luck Julio to obtain your meds
    Let us know how you go with it all
    Lots of support here
    Regards from
    Ariel

    in reply to: Splitdog in the US #14142
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Big congrats on UND splitdog
    Great stuff, love from Ariel

    in reply to: FixHepC – Party Playlist #14104
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    :+1: love em all
    Great playlist Beaches
    That mermaid clip is a ripper
    #duck #love #duck

    in reply to: Ariel takes the Plunge #14102
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Yay!
    So many people want to hear this news Beaches you did it! Yew
    I have friends waiting on PBS meds too and your story is one to bring hope and positivity where there is definitely a cloud of worry among all who have waited so long for this for whatever reason it doesn’t matter why, the thing is the PBS is coming through and you can testify. Even my liver clinic were sketchy about how many scripts they could allocate and didn’t seem ready just yet when I was in for my four weekly last Friday
    Truly I can see light for two friends who are desperately needing their cure and couldn’t get their meds until PBS now I feel so confident for them
    Thanks so much for your great post
    Splashes of happies for your tx xx
    Good luck it really works
    Ariel

    in reply to: Beaches Treatment – Harvoni (Aus PBS) #14097
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Well done Beaches
    Looking forward to supporting your tx
    Xxx
    Love from Ariel

    in reply to: Ariel takes the Plunge #14096
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    A TOAST TO MY BLOODS

    Little boast
    From the coast
    With the most
    Just repeat after me
    Ariel doesn’t G&T
    Her FBE history
    Says 17 GGT

    WOOHOO first bloods update in from Tuesday
    Alt still a magic 18 blah blah etc and now also the GGT is so good

    in reply to: EOT Viral Load result #14094
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Tina! You are living proof these meds work in mysterious ways
    I’m stoked for you stoked for all of us the first real post trials international tx group
    You have such a fantastic attitude for tx and you got the extra double decadent trifle dessert yay!
    You go girl I am very happy for you, and your buddies and family
    Lots of HUMUNGOUS splashes from Ariel

    in reply to: FixHepC – Party Playlist #14091
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    For a friend #love

    image-2-3-4-5-6-7-8-9-10-11-12-13-14-15-16-17-18-19-20-21-22.jpeg

    in reply to: Ariel takes the Plunge #13952
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Beaches #love
    Gaining weight has been a good thing for me. I have had a rough trot with peginf tx leaving skinny legacy and this is the first time in four years that I have successfully overcome that issue. I was truly skeletal from that tx and despite effort such as sport, growing my own food, taking ensure plus when urgent, eating no sugar, no true appetite suppressant foods, no alcohol and doing yoga etc focusing on weight gain through solid balanced diet, rebuilding muscle deteroriated completely by peginf I was never truly “hungry”, and had to force myself to eat. It was like an induced anorexic state that I had to mindfully fight off, all part of my peginf ride. During that regime I often vomited more than a dozen times in a day. In hospital they worked hard to fatten me a bit so I could get home again.
    So now I am astonished at my appetite it’s returning. Somedays I am absolutely starving no matter how much I eat!!! <img style=illy:' /> I hope it’s a sign of a future full SVR and at present I have external stress in my personal life so that’s going to be a good indication of the appetite trigger of these DAAs
    I’m not really up with this as a general sx for all patients but for me it’s a godsend. At clinic they ask if I had any nausea! Hardly, more like pass the food now thanks :evil:
    We are all different here, and so my happiness over my weight gain is just a personal anecdote, a sign things are working. That’s what is clear about these meds, everyone seems to present with different sx at various times, some have none, but the common thing is that they work and almost everyone is cured. Most people report good progress in many life areas. I think that taking away the anxiety of living with hepC is going to be the best feeling I have had in a long time and I can see the good outcome now. Thanks to this team at FixHepC
    Looking back before I got my meds it’s a different place and I don’t want to go back there. We are so blessed to have access to treatment that really works.
    Sending love
    Ariel

    in reply to: Ariel takes the Plunge #13907
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Hi Gaj the bloods were:
    VL assay range 15-100000000
    PCR RNA
    FBE LFTS

    19 days left and public hospital wrote up only EOT and post tx 12 weeks

    GP doing the extras, better assay than hospital.
    More vigilant too. Just a last full check b4 EOT expected. He will also order same earlier after EOT. Big hospital, lots of people waiting and least monitoring but at least they see me they didn’t have to after all I bought my meds here.
    I’m sure my result will be similar to the one taken at that path on Day 32 after Hosp only wrote up a VL no PCR for the 4 week one which if you check back in my thread came back unquantifiable
    That’s why I went through my GP and he sourced a good path and did both quantitative and qualitative
    Nice day today here
    Cheers
    Ariel

    in reply to: viral load test #13899
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congrats Annasnow lovely to hear that’s a fantastic early result the best you can get
    Xxx
    Yay

    in reply to: Ariel takes the Plunge #13898
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    isaing4 wrote:

    Ariel wrote:

    I cleared to UND early like you too, but as tx nears its end I am having that little voice saying ‘should you extend…”

    I hope you get through your move okay. I helped move my elder daughter last week and had the younger in and out of hospital it can all seem overload sometimes cant it. At the end of it all I visualise you plonked in new digs surrounded by boxes and stuff. Time for a takeout meal lo!

    Yay! EOT is approaching!

    Don’t worry you are a fast responder too, almost 5 weeks UND! And you had little liver fibrosis F1-F2!

    Happy EOT and only UND!
    I wish you and your daughters all the best!
    #duck #love #flower[/quote]

    Thank you so much for your kind wishes
    I’m doing fine around 19 days to go I think
    I had bloods done again yesterday by my GP
    YES the previous UND was taken at Day 32

    Just to say no I have never been F1-2
    I’m 5.6 Kpa last time which is F0
    I don’t want to be written up as F1-2 never have been.
    Highest ever reading was 6.0 which is F0-1
    Here are the charts but it is in my signature the correct and most generous F score even allows for my highest reading
    Ariel

    Not an F2 :( never been one or an F1-2. :(
    Not my signature :(

    http://hepatitiscnewdrugresearch.com/fibroscan-results-the-scoring-card.html

    in reply to: HARVONI FATIGUE #13897
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Reading the sinus thread here
    I had vile sinuses for years too
    Salt water is my medicine I go to the ocean.
    During this tx I had revolting sinuses especially around weeks 2-8
    When surfing they would clear well, so well it was at barfing level haha gross!
    The combination of salt water immersion of the body and increased aerobic activity worked a charm. I still had those fluey feelings some mention here FF and you are just starting but your idea about swimming is great
    Even when tired I just paddled for even a quick 30 mins and it truly helped the sinus issues from progressing.
    Mike I also look forward to no more damned sinus probs now virus free. Oh and picking up any cold virus a student brings along if I bother to return to my day job. I’m still pondering that one ;)
    Cheers
    Sniff sniff
    Ariel

    in reply to: HARVONI FATIGUE #13896
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel
    kenbasman wrote:

    Ooops Zhuk, i see you are F0. I doubt my comment applies to you.

    I have a low Kpa too Ken and only had twinges early on
    Interesting point to note, I surf and I always felt a swelling in my upper abdomen when lying down to paddle and just thought it was the way I was made but NO!! It’s gone. It went in the first three weeks accompanied at night with a ton of sweating which I blogged on my thread I think.
    So yes you probably are right because I don’t have liver pain anymore and that upper tummy is flat there’s no strange feeling of a one sidedness anymore
    I noticed it when it went away I hadn’t really taken it in as a big deal like I said I thought it was just how my body was made!
    Bit off topic from the fatigue question but interesting issue re liver twinges you raised thought I would pop my two bobs worth in as an F0 type of person
    Ariel

Viewing 15 posts - 691 through 705 (of 1,060 total)