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  • in reply to: Generics Late Breaker Accepted for EASL in April #15086
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Me too – just got my SVR12 results today verbally from the Hep nurse. Still UND = CURED! :woohoo: :woohoo: :woohoo:

    She cancelled my appointment for Tuesday since they are flat out and I’m ‘done’.

    I asked for the results to be emailed but we were cut off – will try again tomorrow.

    Congratulations to Bloot and Pat and everyone else who’s reaching SVR. It’s been quite a ride…

    And all the best to the dynamic duo, the Downunder Wonders, Greg and Dr James – hope you knock em out in Spain. May generics gain the acceptance they deserve and go on to save millions of lives and rid the world of this blight. #flower #flower #flower

    in reply to: EOT- Relapse #14577
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Sorry to hear your news Paul and wishing you victory with the extended battle.

    in reply to: So, the battle is joined! #13734
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Zhuk, you sure have a lot on your plate atm. wishing you a speedy recovery, lots of weight gain, double smiles, and the best possible EOT results. #flower #flower #flower

    in reply to: More nausea-inducing news about Gilead’s strategy #13560
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Gilead have spent over $100m on advertising Harvoni in the USA, even with its price tag of $1100 per pill.

    More than 11,000 ads for Harvoni have aired on TV channels from FOX to Animal Planet to the Game Show Network to Syfy… Last year Gilead bought more than $30 million worth of ad space to tout Harvoni in magazines from People to Popular Mechanics to Better Homes and Gardens, as well as more than $5 million worth of ads online… Gilead has heavily pushed a TV spot called “I am Ready,” which features graying men and women declaring that they’re finally prepared to confront, and overcome, hepatitis C. As rain melts into sunshine, off-screen narrators declare, “I am ready to put hep C behind me” and “I am ready to be cured.”

    Inside the $100 million ad blitz for a $1,100-a-pill drug for hepatitis C

    https://www.youtube.com/watch?v=fCAa4bs0OoY

    in reply to: How will the signing of the TPP affect us? #12952
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    For Australians concerned about the TPP – here’s today’s SumOfUs petition calling for an independent analysis:

    Our government is ferociously pushing to pass the Trans-Pacific Partnership (TPP), one of the biggest corporate power grabs in a generation, without any independent analysis.

    This comes amidst the World Bank’s estimates, which have told us that the deal will have practically no economic benefit to our country.

    The TPP will drastically push up the price of crucial life-saving medicines, trash our environment, and threaten our internet freedoms.

    http://action.sumofus.org/a/tpp-aus-inquiry/?akid=17441.4782804.A64TJT&rd=1&sub=fwd&t=1

    in reply to: So, the battle is joined! #12730
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hey Zhuk, good to have you back, and UND – fantastic news.

    All the best with making decisions re your Mum. Not an easy time. #flower

    in reply to: Ariel takes the Plunge #12593
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Flipping fins and flip-flops!

    In spite of all the stress and anxiety, YOU DID IT ARIEL!

    UNDeniably UNDerstandably UNDoubtedly UNDauntedly UNDone by UNDetected…

    Welcome to the UNDerrated UNDies!

    :woohoo: :woohoo: :woohoo:

    in reply to: Quote of the day #12134
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    We used to laugh at comedians and listen to politicians, now we laugh at politicians and listen to comedians.

    Did Donald Trump really say that??

    in reply to: Obama executive order to control drug prices #12133
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Jeffrey Sachs, Professor of Economics at Columbia University, Special Advisor to UN Secretary-General Ban Ki-moon, spoke on Radio National this morning. Although the title is “Growing criticism over Hillary Clinton’s links to military and financial establishments”, go to 8 minutes to hear his criticism of the US paying $1000 per pill for medicines that cost $1 per pill to produce.

    [audio src="http://mpegmedia.abc.net.au/rn/podcast/2016/02/bst_20160218_0815.mp3" /]

    in reply to: Any Post-Treatment Reflections? #11825
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hey Ariel, I was at Snapper Rocks at sunset yesterday – bliss. It was low tide so I could stand on the rocks and get close to the action. Loads of surfers, perfect little break.

    And Dr James phoned me yesterday with good news that my SVR4 test came back UND. :woohoo:

    My post-treatment reflections? More energy, more stamina, more engaged with life, just plain HAPPIER.

    And very GRATEFUL. #flower

    in reply to: Using Milk Thistle whilst on treatment. #10518
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Kathryn,

    Welcome to the forum and all the best with your treatment. Best to give up Milk Thistle.

    Here’s the good doctor’s advice re most supplements:

    http://fixhepc.com/forum/drug-interactions/279-interactions-with-ayurvedic-medicines.html#2357

    Since then vitamins D3 and B12 & a couple of others have been given the nod of approval:

    http://fixhepc.com/forum/supplements/534-supplements-with-evidence.html

    For more info use the search tool at top of page. Plenty of info here. #flower

    in reply to: power of 3 #10293
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Interesting article Tina. Discussed some issues I haven’t seen in the media before. Like:

    “It was impossible for Gilead to sue any of Freeman’s patients because they were protected by patient confidentiality under Australian law.” (Some of us aren’t exactly confidential on this site)

    “Intellectual Property lawyer Sebastien Aymeric said Freeman’s buyers club might be guilty of “contributary infringement” of patent law by giving people the means to get around it.”

    “The secondary drugs were very difficult to make outside of large facilities found in Europe and America” said transplant physician Professor Ed Gane. He’s not very well informed is he. :dry:

    in reply to: Why am I afraid to take the medications? #10292
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Dear Archer, there’s so much pathos in your words it’s hard to find my own.

    But I have to say it. CONGRATULATIONS on becoming UND. #flower

    in reply to: Obama executive order to control drug prices #10229
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yes GAJ, truly gobsmacking. George W’s legacies live on in so many disastrous ways.
    The system is broken.
    And now US Senators asking their public how to fix it.
    So to all our American friends, start writing – time for people power!

    in reply to: Obama executive order to control drug prices #10204
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I sincerely hope Obama can pull it off.

    Things are warming up. Here’s another article about asking US taxpayers for a solution:

    After 18 months spent slicing and dicing 20,000 pages of Gilead Sciences ($GILD) documents and emails, a Senate investigation concluded that the drugmaker put very high price tags on its hep C cures Sovaldi and Harvoni, knowing full well that would keep some patients in need from affording them. Now the Senate sponsors of the inquiry are asking payers and public, based on what was learned, just what can the government do to discourage untenable drug prices without stepping all over pharma innovation.

    The letter from Republican Sen. Charles Grassley and Democrat Sen. Ron Wyden points out that taxpayers should have a say on drug prices since much of the cost of paying for the drugs falls to taxpayer-paid programs which have been strained by their high prices. They are seeking “thoughtful feedback” by March 4 to questions in which they generally asked:

    What is the impact on the market when you have a single source for a breakthrough drug?

    Are payers getting all the info they need to gauge what the costs and patient volume will be and what the potential improvement a therapy will provide?

    Where does the concept of “value” play into the debate on drug pricing?

    How can more price transparency be achieved without deterring innovation?

    And finally, what tools exist or are needed to address high drug costs, particularly for low income patients, and Medicaid programs?

    http://www.fiercepharma.com/story/yes-gilead-put-superhigh-prices-hep-c-drugs-what-can-you-do-senators-ask/2016-01-22

    And here’s the official letter from Wyden & Grassley to the “Healthcare and Patient Community”
    http://www.finance.senate.gov/imo/media/doc/012116%20Wyden%20Grassley%20Sovaldi%20Report%20Feedback%20FINAL4.pdf

Viewing 15 posts - 31 through 45 (of 206 total)