Leslie Rhoades - FixHepC

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29 December 2015 at 5:38 am in reply to: Raymond Schinazi – Rational Pricing & Generics #7480
Joy
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- Guardian Angel
@joy
Thanks V, you are such a good researcher!

I don’t understand a lot of it, but good to see Schinazi is working on even better meds. And fantastic that fixhepc is mentioned.

So ‘Generics account for 78% of all US prescriptions’ ? (Slide 15) Hallelujah.

He has a sense of humour doesn’t he – naming the ultimate C-Pak SCHINAZIVIR? (Slide 31).
27 December 2015 at 3:37 am in reply to: Video of Hepatitis C Virus Life Cycle #7354
Joy
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- Guardian Angel
@joy
Thanks Vororo, it’s a work of art.

Almost meditative…
27 December 2015 at 2:08 am in reply to: Dan’s Twinvir story #7350
Joy
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@joy
Hi Dan, this thread might help:

http://fixhepc.com/forum/experts-corner/164-resistance-and-treatment-failure-mechanisms.html?limitstart=0
27 December 2015 at 12:37 am in reply to: Is a good idea to take some probiotics on sof/led #7346
Joy
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@joy
Oops, just reread your signature Enkel – your ALT is down to 17, not VL. Well, that’s still good news!
27 December 2015 at 12:33 am in reply to: Is a good idea to take some probiotics on sof/led #7345
Joy
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@joy
Hi Enkel, I see your viral load has dropped from 5 mill to 17 in only 2 weeks. CONGRATULATIONS!

Any change with your anxiety?
25 December 2015 at 2:31 pm in reply to: HCV-Related Nervous System Disorders #7276
Joy
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@joy
Concering nervous system disorders – latest news is that those with Hep C have 30% more chance of developing Parkinsons.

http://www.medicalnewstoday.com/articles/304405.php

I am going to treat this news like it’s a cockroach and I’m the waiter.
24 December 2015 at 9:11 am in reply to: Australian PBS Listing – Almost Heaven #7208
Joy
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- Guardian Angel
@joy
They certainly put Tassie on the map.
24 December 2015 at 6:42 am in reply to: Australian PBS Listing – Almost Heaven #7196
Joy
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@joy
Yes Tina, I agree. An outstanding negotiation, thank you to whoever was responsible. (Does anyone know their name(s)?)

No doubt what Dr James and Greg Jefferys have been doing helped.

Merry Christmas to all.
23 December 2015 at 9:47 am in reply to: US Moderator announces our drugs are ILLEGAL #7145
Joy
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@joy
Land of the free – where pharmaceutical companies act more like hedge funds.

http://www.nytimes.com/2015/12/18/business/martin-shkreli-arrest-gives-drug-makers-cover.html?_r=0
22 December 2015 at 2:52 pm in reply to: Merry Christmas!!!! #7079
Joy
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@joy
Good news IRMA and Neilo.

Ho ho ho hope for all.
22 December 2015 at 4:04 am in reply to: Background info on Sussan Ley’s announcement #7034
Joy
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@joy
Seymour wrote:

Many people do not actively engage in their health care. Helping themselves is not a concept they understand. People like this will need to have their hand held every step of the way and that will be an important role for all of us once we have been cured.

So true Seymour. Some are on disability pensions because of Hep C – curing would mean losing that, along with an identity that may have been decades in the making. Shifting from not having a future to having one does require some hand-holding.

I am ecstatic about the announcement and sincerely hope it doesn’t become a political bun fight.

Agree with you GAJ – some educational publicity on our collective usefulness and diversity would be beneficial. Some have ‘come out’ already, kudos to them, may there be many more. “Once a junkie, always a junkie”… who said that anyway?? Have to dispel that one. How about “Once a junkie – now a teacher, lawyer, writer, garbo, nurse, actor, artist, grandparent, philanthropist, politician…
21 December 2015 at 4:32 am in reply to: Australian PBS Listing – Follow the Money #6857
Joy
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@joy
Yes Dr Russell sounds very enthusiastic about the news and is busy preparing for 1 March. He wants his region Hep C free asap.
Hope he’s right.
20 December 2015 at 1:35 pm in reply to: Australian PBS listing in March! #6822
Joy
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- Guardian Angel
@joy
One billion dollars CAN treat 230,000 Australians – IF GENERICS ARE USED.

Excuse my simple-mindedness, but why is this not possible? Why can’t the Australian government just step outside the box?
20 December 2015 at 7:27 am in reply to: Australian PBS listing in March! #6782
Joy
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@joy
Greg Jeffery’s scathing blog today:

Firstly if you go past the headlines and read the details it is actually one billion to be spent over 5 years, about $200 million a year, or what was being spent already each year on treating people with Interferon. This means in real terms that the PBS scheme will treat about 4,000 people each year, or less than half of the 10,000 new cases every year.

http://hepatitisctreatment.homestead.com/IndianheteroHarvoni.html
20 December 2015 at 6:56 am in reply to: Australian PBS listing in March! #6781
Joy
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- Guardian Angel
@joy
Health Minister Sussan Ley interviewed on Channel 9 this morning:

http://www.9news.com.au/health/2015/12/20/08/14/federal-government-to-spend-1b-to-subsidise-breakthrough-hepatitis-c-cures

She reiterates treatment availability for EVERY SINGLE PATIENT. (2:30 mins onward)

I expect we’ll be hearing more from Dr James about what’s really going on…
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