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1 February 2022 at 11:18 am in reply to: WHO acknowledges the work of Dr James Freeman and Hazel Heal #30203
Good to see the tenacity in dealing with hepatitis with all those involved.
Given my checkered history with Hep C, compared with my good luck (with a little help of AstraZeneca) missing out on getting COVID, I think these efforts are well worth the praise.
Jeff
11 September 2019 at 2:18 pm in reply to: My doctor is insisting on another Ultasound. Treatment 8/16 #29428Hi beahaven,
I was F3 from memory in 2012 when my G.P. found high AFP levels and a subsequent ultrasound a HCC.
Post liver re-section I was getting CT and ultra sounds every 6 months – now just ultrasounds. I think I progressed to F4 in the years following until treated successfully with DAAs.
I don’t have to pay, but would if I had to. Just like servicing a car and probably cheaper too.
I understand that paying and getting the ultrasound done is inconvenient, but so was the HCC for me.
Hope this helps
Jeff
I am another ‘hoverer’ too.
I tend to dip in and out of this forum for a look see occasionally.
After being on this forum over so any years, and through the days when people like me were trying to get better using new meds after having been jaded a bit by interferon and the like, I found a lot of people showing humanity’s better side.
Hep C took many things from me, but it gave me this experience and in a perverse way, balanced the books.
Many thanks for the support from the Dr James, Gaj’s and other forum members.
For those considering starting on the the final chapter of Hep C, the journey of getting treated and becoming well, please don’t mind me hovering.
Jeff
Hello Hazel,
I did a bit of a zoom job on the magazine photo and many things I read remind me, and I expect many other members here, of the journey through life managing our unwanted freeloader.
You say it all,
many thanks
Jeff
Hi Rockhard,
my first treatment with Sof/Dac went well with no side effects and I felt great. But some time after end of treatment the virus came back.
Second time around did the same with Riba added. I had the same concerns about side effects because I had the experience with Riba years before when I was on interferon. Still think the stuff is in some ways like a hangover – at least what I remember of one before I had to go on the Hep C wagon. Heaps less so with DAAs. I was using Sof/Dac as well which side effect wise may be different to what you are using?
I tolerated the stuff as best I could, and it is difficult as life and work goes on, but I found it manageable. I am cured now as well and all things equal, the Riba did make the difference.
I don’t know what the doctor will suggest to you Riba wise, but I hope knowing that Riba is manageable and others here are supportive, may help any decision you make with your doctor. I like a simple life and just do what I am told.
All the best and hope to see you posting your SVR soon.
Jeff
Hi Tototo
“Dr. Dahari said that in addition to cutting costs, shorter treatment regimens would make it easier to treat hepatitis C patients who have limited health insurance benefits.”
Crikey, says a lot about the state of medical care in that neck of the woods if this is the direction of medical research now.
I would think that this study would have limited benefits for people who can afford the DAAs at a reasonable price.
Hope the good days continue for you – the being undetected after treatment is well worth it, even with some bad days on the way through (thoughts of Ribavirin for me).
I was stoked when undetected first time round, and after needing to be retreated, stoked the second time as well.
Still stoked after being bug free for some time now.
Yours
Jeff
Can’t remember what mine was.
In the end I got treated and got rid of the virus.
Can’t remember now if the viral load is/was that significant for treatment in my case – GT3??
Made a difference though when it become undetected!
It’s funny that this is all a distant memory now I am free of Hep C.
All the best with your treatment,
Jeff
7 October 2018 at 3:24 am in reply to: Greedfighter’s Generic Epclusa or Harvoni to USA Journal #28612beaches wrote:Greedfighter wrote:Don’t think this is a non-issue, I was F0 and not technically sick, but now that I am cured, I think much clearer, and have more stamina and energy. This disease can progress quickly, F0 to F4 in a matter of months, this is not something to take lightly.
Now I know that I will never get sick and die. My future is bright; I was sick for 30 years, and now it’s over! Contact Parvez
I can back up what Greedfighter says here. My fibroscan consistently came back as F0 but I was 60 years old and knew I was on borrowed time.
I believe my treatment has given me an extra 10 years of healthy life[/quote]Just adding my two bits:
1. with HCV, I expect all things being equal, F0 will likely progress to F4.
2. I was told many years ago that something else will probably kill me before Hep C did.
It turned out that ‘something else’ was a HCC courtesy of …Yours
Jeff
Hi Glenn,
just adding my hello as one of the many who have beaten Hep C.
Part of the journey of getting rid of the bug is discovering that there are many good people in the world – they just go a bit unnoticed.
Jeff
Good result after a long time!
Jeff
13 August 2018 at 1:05 pm in reply to: DAA use clearly linked to reduction in death rates in Australia #28436“Fewer people have died from liver failure caused by hepatitis C since the government started subsidising new drugs in 2016”.
And probably a few less too since someone started making prescriptions for generics before that?
Quoting Mar:
The cure rate with modern medications (called DAAs) has been proven to be about 95%, so yes, after 3 months of treatment, you have a 95% chance of being completely cured. For the remaining 5%, re-treatment is entirely possible with extremely high success rates as well.
I was also one of the 5% and have been clear since June 2017. The costs here in Australia are different as the DAAs are now basically free, but first time round I went through GP2U (Dr Freeman) and the price was very affordable and very reasonable given the way this virus can mess up your liver – see my signature below.
Yours and hope you can start treatment,
Jeff
“Computed Tomography) uses Xrays to look at the liver. Triple phase contrast scans are usually conducted to look cancer. Doing one from time to time is low risk, but CT is not ideal for regular follow up in cirrhotic patients at high risk of liver cancer.”
They have really backed off with the CT scans with me and I now get by with ultrasounds. I understand that CT produces up to 200 times radiation of normal x-rays?
Risk benefit wise how do doctors weigh up whether another one is worth it?
Is having a large gap between them mean a reduction in risk, but there still is a cumulative effect?
J.
P.S.
for anyone reading this and still considering starting treatment, include these calculations in your thoughts – don’t wait for your liver to become cirrhotic.
deleted post – youtube link to arnie schwarzenneger “saying do it, do it now” got a bit out of control.
thought that counts.
jeff
‘Maybe, just maybe, the investigation will give clarity and choice of generics which the NHS would not give me because I was not “ill enough”!‘
From The Hippocratic Oath:
“I will respect the hard-won scientific gains of those physicians in whose steps I walk, and gladly share such knowledge as is mine with those who are to follow.
I will apply, for the benefit of the sick, all measures [that] are required, avoiding those twin traps of overtreatment and therapeutic nihilism.”
Would have thought if generics cured HepC, then they fitted in with this Oath somehow?
I suppose one irony is that you will never be ‘ill enough’ as you used generics and got cured.
Yours
Jeff
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