Joan Started treatment

This topic has 62 replies, 22 voices, and was last updated 8 years, 11 months ago by Debs.

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7 November 2015 at 1:48 am #3428
Joan
- Topics: 3
- Replies: 68
- Total: 71
- Recovery Champion
@joan
Hello All
My meds arrived yesterday and I have just taken my first dose. All the pretreatment anxiety left a few days ago and I am feeling really good about treatment and the next few months ahead and finally a cure!!

GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
7 November 2015 at 2:13 am #3431
Joy
- Topics: 12
- Replies: 206
- Total: 218
- Guardian Angel
@joy
Go Joan!

In my experience any side effects are temporary, and a sign that things are changing.

Enjoy the journey to health and liberation.
7 November 2015 at 2:18 am #3432
Tina-Hill-facebook
- Topics: 28
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- Guardian Angel
@tina-hill-facebook
That’s awesome Joan, I look forward to reading about your journey.

SVR 24
7 November 2015 at 2:19 am #3433
Joan
- Topics: 3
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- Total: 71
- Recovery Champion
@joan
Thanks Joy..and thank you to all who post their experiences. I feel the support and identification which really helps with breaking the isolation. Also Thank you to Dr. Freeman and the Team who have created this opportunity for all of us the be cured.

GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
7 November 2015 at 4:32 am #3443
zhuk
- Topics: 5
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- Total: 548
- Guardian Angel
@zhuk
Great news Joan Glad to hear you are finally on the treatment road now, hope it will be smooth sailing for you.

With a bit of luck I will be joining you in a few weeks.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
7 November 2015 at 11:23 am #3465
Sean
- Topics: 1
- Replies: 10
- Total: 11
- Acolyte
@sean
Well done Joan ! Wishing you a smooth side-effect free journey. From what I have read, some people can feel a bit flu-ee ( is this a word ? ) for the first few days and then it lifts. Good luck Sean.

Gt. : 1a. VL : 2m. Fibro : F1.
Dx : 2008.
Previous Tx : Squalamine : ’08
Ozone Therapy : ’09
Int. & Riba : ’10
Sof. & Dac. since 9th Nov.’15
UND @ week 4
12 week SVR at end of April ’16
7 November 2015 at 12:06 pm #3469
Nadia
- Topics: 1
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- Guardian Angel
@nadia
Good luck, Joan,
I’m waiting to hear positive feedback from your treatment!

Virus not detected from 14.10.2015
7 November 2015 at 12:13 pm #3471
Life
- Topics: 2
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- Total: 174
- Guardian Angel
@life
Congrats Joan!!
7 November 2015 at 1:12 pm #3475
LondonGirl
- Topics: 16
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- Guardian Angel
@londongirl
Go for it Joan and wishing you well

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
10 November 2015 at 2:12 am #3582
Joan
- Topics: 3
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- Total: 71
- Recovery Champion
@joan
Hello
on day 4 and so far I haven’t had and side effects. Wow..I am really surprised and relieved..as I have food intolerance’s and chemical sensitivities. There were a few mild symptoms like on second day very very fatigued, a bit of nausea but I have put it down to emotional exhaustion and I have these symptoms anytime.
The meds feel very mild and its mind boggling that they are knocking out the virus. Bring it on I say!! I was prepared to be out of action for awhile..stocked up on books and DVS’s but hey looks like this is not going to happen..well today anyway..taking it day by day.
Thanks for all the well wishes.

GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
10 November 2015 at 3:04 am #3585
zhuk
- Topics: 5
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- Total: 548
- Guardian Angel
@zhuk
That is awesome, Joan, so glad its been trouble-free so far! Hope it continues to be good, must be a real relief since you have other secondary issues. Hope I’mjust as lucky when the time comes.

GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 26
15 November 2015 at 1:41 pm #3999
emilio
- Topics: 13
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- Total: 381
- Guardian Angel
@emilio
Wishing you good health and god speed throughout Joan. Em
16 November 2015 at 1:38 am #4007
Joan
- Topics: 3
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- Total: 71
- Recovery Champion
@joan
Hello
Today is day 10 and I am about to take my morning meds. Sof/Dac. The main symptoms I have are insomnia and fatigue. I go to sleep for about 3 or so hours and then go into a very light sleep like half awake half asleep. But I am starting to wake up feeling ok. Not too tired.

Last week I was impacted with fatigue and rested when I had too and pushed myself to do some social outings which really helped.
I am basically living my life as I would with a strange sleeping pattern and a different type of fatigue which comes and goes.

All in all these side effects are minimal. I was really expecting to be ‘wacked’ by these drugs and so far that hasn’t happened. I am not bedridden and I can socialise, cook, go shopping walk the dog etc. And I am starting to feel better in myself. Like I am not dragging body around. Feel a little spacey and thought this may be what people feel like without a sense of overwhelm 24/7. The absence of overwhelm/anxiety is a relief. No nausea the last few days and thats amazing and I have a ravenous appetite and am enjoying food.
My diet is pretty simple. Steamed veggies, chicken casseroles, lentil stew, Quinoa and fruit. Drinking lots and lots of water. No alcohol or sugary foods. Whats called a clean diet.

Thank you all for the well wishes…this is a really huge thing to do and I appreciate your support. Taking my life into my own hands has empowered me and every day I am reminded what and amazing thing I am doing and how different my life is already. I have no doubts that I will be cured…I just know that I am on a new trajectory and how exciting life is. Who would have thought 6 months ago I would be on the ‘New Treatment’ embarking on this path and with the help of Dr. Freeman his team and many others this is all possible.

GT2B Diagnosed 1989
Started Tx 6.Nov.2015
F3 Fibroscan 17: April.2015
Alt PreTx: 186 Ast PreTx: 157 VL PreTx: 733,000 27.10.2015
Alt Week 4: 14 Ast Week 4: 28 VL Week 4: UND 7.12.2015
16 November 2015 at 3:40 am #4017
Dr James
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- Guardian Angel
@fixhepc
That’s awesome news Joan So glad your side effects are minimal. I am on day four and have had insomnia from the first dose. Legs feeling a bit “rubbery” today but that’s about all. Tend to get tired in the afternoon due to lack of sleep the night before but am hoping that will ease as I only have this week off work then back to normality next week.

My nervous system is a bit shot at the moment but that, I am sure, was the build up to getting and taking the medication. I am going to take myself out to lunch (with my better half) as I need to do something other than sitting in the lounge watching telly.

Stay well and I look forward to seeing your posts, they are very encouraging.

YMMV
16 November 2015 at 4:00 am #4021
Paul-Jarman-facebook
- Topics: 8
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- Guardian Angel
@paul-jarman-facebook
Sounds like all is good Joan the drugs are working and i’m sure you will start to feel better shortly. I’ve only had a couple of really crap days when my liver got very painful but thankfully thas passed and I now have more energy than before. Wife has noticed I have a spring in my step that I didn’t have before.

cheers

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
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