Home › Forums › Main Forum › Patient Stories › Ariel takes the Plunge
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1 January 2016 at 7:27 am #7669
Well the day is almost here my meds arrive shortly thank you to those who have affirmed this choice to take my own life into my own hands and with the fantastic work by James and his team here, the vibe, the understanding of the anxiety of a relapser, I feel like I have landed in the right place..not much support out here in the wilds so I will defs blog my tx story, I hope to inspire others to take this important decision. I am Gen 1a, have a low viral load, F0 so a good little liver still in the ol bod, had a rotten time on intfn/ribva, like many so let’s not go there done and dusted and all….I am starting this today seeing it is New year. Already feeling the love here. Love without boundaries is my phrase for the New Year. I hope to achieve my SVR and to be free as a result. Love ya all! cannot wait to post my first update into tx and thanks again to the FixHepC peeps for this all of it.
Attachments:1 January 2016 at 7:47 am #7671There is no such thing as failure.
There is only low aim.
Props for being your own messiah and saving yourself. Wishing you all the best, Ariel.
1 January 2016 at 8:07 am #7672Great stuff, Ariel…congrats on making the decision to get proactive and take your treatment into your own hands.
Looks like we will be tag-teaming on this huh. I am GT1a as well and like you (both fortunately and amazingly enough), have managed to stay at F0 over the years…and despite the new good news re the PBS I think those in relative good health like us will be down the public queue. All the more reason to act to shoot for SVR before our status worsens, IMO! Strangely enough I also have PTSD, will be interesting to see if the hep had any influence on that as tx progresses.
Look forward to following your progress
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 261 January 2016 at 8:17 am #7673All the best Ariel……..looking forward to seeing your test results down the track.
YMMV
1 January 2016 at 9:40 am #7682Hi Ariel,
Want to wish you luck, you’ll be fine, how exciting for you.
Please keep posting.xo
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!1 January 2016 at 9:43 am #7684You will be ok Ariel most people seem to cruise through the treatment without too many issues, the nerve wracking bit is waiting for them to arrive but shouldn’t be much longer.
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
1 January 2016 at 1:49 pm #7704One blessing regarding this horrible situation we find ourselves in, is the wonderful people we meet along the path
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC1 January 2016 at 3:31 pm #7714Hi Ariel the mermaid and welcome,
Wish you good luck and let us know your journey!
With these new medicines it will be an easy one.
HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com1 January 2016 at 3:47 pm #7716Hi London Girl, You are almost there, beginnig of the treatment.
I am sure it will be an easy one for you too.
The only side effect I noticed is that I am gaining weight! I must pay attention to what and how I eat!
HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com1 January 2016 at 6:00 pm #7724hi Ariel, just wanted to wish you all the best & symptoms-free tx,
What a fantastic way to start New Year, the year to get out of hcv prison & be free for so many here.
I too was a relapser on the old tx, please don’t forget that it was the old toxic tx that has failed us, not the other way round, we did not fail, we fought the battle as advised.The new DAA tx is just not comparable with the old tx & with hardly any fibrosis at all, you’ll be fine,
Congratulations of taking charge of your own health & life,
Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND.1 January 2016 at 6:02 pm #7726Victorious warriors win first and then go to war, while defeated warriors go to war first and then seek to win
Sun Tzu, The Art of War
Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtxG 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 241 January 2016 at 6:10 pm #7727Ariel – Good Luck!
Lots of support here!
Debs X2 January 2016 at 1:40 am #7750isaing4 wrote:Hi London Girl, You are almost there, beginnig of the treatment.
I am sure it will be an easy one for you too.
The only side effect I noticed is that I am gaining weight! I must pay attention to what and how I eat!
Well I can’t wait to add a few kgs to this carcas That said I do have other pals who are battling a weight gain whilst beating Hep so I hear you
Somehow I lost half my reply because I was writing from my iphone not my laptop, isaing4, but you have made me feel really happy with your posts about sx on the new drugs xo11 January 2016 at 8:17 am #8628Hey Ariel
So good that you came over to the bright side. Best of luck to you with tx and sx. You will be okay and be UND and SVR b4 you know it. Lots em
11 January 2016 at 9:49 am #8646 -
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