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Hi Ariel,
I haven’t logged on for quite a while, but decided to see how everyone’s going.
Firstly, glad you’re SVR 24 wks.
I can relate to how you feel tired & the tinnitus thing, I also suffer from these since my last horrible Interfirin tx,
I’m sure it caused me many post tx symptoms.Because you had the IFN tx, if you had hep B it probably would have cured it , the tx, as that happened to me.
It’s easy to check with a blood test, but I bet you’re OK, but for peace of mind maybe best to just check?The loud screeching in the ears is bad, it got worse since taking my son J to see Black Sabbath!!
hmy:
But you can kind of get used to it.I went to a specialist about it & there’s no real cure unfortunately, but he did recommend Yoga! also if you can afford it, sometimes special hearing aids can help, as he said it’s caused form hearing loss.
Also “white music” when trying to go to sleep helps divert the mind from it, he recommended.Nobody understands how exhausted I feel most of the time….although my young J IS 16, so a bit of a handful.
One day I dream of getting out of the City with its noise & stress, & hiding away in a relaxing environment….lush rainforests & beaches come to mind…. But yes, I agree, the IFN tx did leave it’s mark on all of us who went through those tx times.
So I understand how you feel Ariel, I really do, it’s not fair. That bloody IFN tx was a real bugger.
If it’d help at all, PM me & I’ll send you my number , sometimes it helps just to chat to someone else who understands.
I’m just in Sydney so not too far away?Sending hugs,
Love Cindi xI
Ariel, Congratulations on SVR 24 sweetie!!
Hi Ariel,
You have been fighting so hard to overcome the things that life has thrown at you that your exhaustion is understandable. I think many of us are starting to realise the real cost of this disease to our lives over the past decades. You also have the added burden of a failed IFN treatment and the ongoing health consequences of that which just makes my head spin.
You have put out so much support and kindness to others on this site (including me) that I hope you know that we are sending it back to you in buckets and spades. You’re juggling a lot here Ariel so one day at a time but be kind to yourself along the way. We hear you.
xxHi Ariel,
so sorry to hear about all the crap you’re experiencing. Makes it hard when you are hoping for just the opposite after tx. Reading your posts is like going on a rollercoaster ride with you just sad it has left you feeling so low just now. Having said that I am hoping along with all your friends on here that you will be riding away from this bad patch to a more upbeat one. Am truly impressed that your wonderful sense of humour still shines through regardless!My partner suffers from Tinnitus too and sometimes he can almost forget about it and other times it drives him totally nuts so I have seen how people suffer deeply from it first hand. My heart goes out to you and wish there was a magic wand out there to make this shit all go away.
Teeth Brrrrrrrrrrr won’t even go there! At least you can count on being pain free once the tooth is out just horrible to lose them. Hope things start to get better real soon. One day at a time is great advce from Coral. Thinking of you and sending lots of hugs
Nadia xx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Ariel,
I’ve sent you my email contact so we can chat.
….I think
My memory’s so stuffed from all the Interferon tx I’ve had in the past that I get muddled a bit, having trouble with my private messaging, sorry.
Keep strong girl
Love Cindi x
Hi Ariel, So sorry to hear the things you are going thru. I hope you feel better soon, and your situation will turn around.
I still have the fatigue, joint inflamation, and headaches, but to a lesser degree since my EOT. I never went thru the Peg/inf as you did, but would have only my MD warned me against it
since I went thru breast cancer tx earlier. I also have tinnitus, that comes and goes, but not severe.
I was saddened to hear you might have to sell things at this time. Hope you can manage and hold on to what has given you comfort and peace.
Take care,… Wishing you the best with good health and blessings for the future…..Fara
Hi Ariel I am so sorry to read that you may have to sell your home. Would payment plans be an option for your bills? Your health battles have been enormous, you deserve a stress free life from here on in.
I’m happy to hear you have SVR24! One positive in your struggles.
I have suffered tinnitus for as long as I can remember…..whether it is “caused” by Hep C I don’t know however since finishing my treatment it abated (a bit quieter) for a while but is now as loud and raucous like it used to be. My hearing is not so good but mainly because of the tinnitus I would imagine. I do find that stress and illness make it worse.
You have always been so encouraging, funny and supportive to everyone on this Forum and seeing the posts of others just shows how many lives you have touched. I wish you well and hang in there…..Xxx
Hey Mermaid, Sorry to read you’ve got some ongoing life issues, It’s such a relief to be SVR and we have been so focused on that for so long, the good news comes and then we have to face the other realities of life ….
Been so busy with otger life issues myself, will be in touch soon and sending BIG
ps We have overcome this and now we must overcome that xox
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