Get treated now zhuk. Doctors telling you it’s ok to wait because you’re F0 should be ashamed of themselves. Hep C is a global infectious disease epidemic. When a cure comes along regardless of the infectious disease, we used to know how to deal with it ie. Treat everyone asap. We did it with polio. We did it with smallpox. Maybe because of the effectiveness of vaccines we’ve forgotten how to address these problems.

I think there are compelling reasons for everyone to get treatment. They just differ from individual to individual. So the decompensated cirrhotic needs to get treated so they don’t die. For me, borderline F3/4, I needed to get treated before I developed full blown cirrhosis. You, like all of us will never got the years of lost quality of life back. But your compelling reason is that you can walk away from this with virtually no lasting liver damage if you get treatment now.

IMHO doctors like yours who are peddling false hope to people about their chance of treatment are completely irresponsible. If and when the drugs go on the PBS, I’ll be very, very surprised if you can access them. Hell, I was told ages ago I’d only have a pretty good chance of getting them.

I’f you have the cash to get the generics I would do so now Zhuk, as Dr John Freeman said in the radio national interview they are living in cuckoo land if they think the new meds will be listed in the PBS anytime soon !

I’ve been getting the wait it’s coming for years now and just been getting sicker and sicker. There is no difference between the generics and the “genuine” meds. The generics work and you will get rid of the disease unless your very lucky and won’t have to speak to your specialist again.

cheers

Hi Chester, many thanks for your comments and encouragement.

Yes it doesn’t make any sense, does it? This is what I couldn’t seem to get across to the doc yesterday – that I am unlikely to come under the criteria for treatment, if it does go through. Yet she insisted in a rather blase way that no everyone would have access to it, If we look at the two comparable countries who have certified these drugs for use, Canada & the UK, they have a triaged system of need deciding who gets treatment – its not a free for all there, so how someone can believe that it would be so here, well its a bit beyond me really lol

I am very glad that you were able to get treated, being at that borderline fibrosis stage! Hope you are continuing to do well

I think the Twinvr might come in cheaper than the current generics Zhuk, where do you live ?

Hi zhuk, your disease pattern (genotype, vl,f3 etc). I am sick of feeling crap and its just getting worse. I agree that free meds aren’t close enough and anyway I would be a low priority
For all these reasonsI am just going to go for it with the buyers club. Have my script and just need to arrange payment . onwards and upwards!

I think it’s time to start reporting doctors who lie to their patients to their regulatory body.

I couldn’t agree more Alsdad ,although just naming them might be suffiecient.The regulatory body would side with them.
But in essence they are” well meaning killers”,slaves to the propaganda line put out by HepC Aust ,and doctors receiving research grants from Big Pharma etc.or whatever else overseas.
It appears more and more doctors that were once reticent are changing their views,and all encouragement should be accorded them.

Re symptoms which is the essence of this thread.
I did not really take them seriously until 3 days into the sof when they dissappeared like magic.Muscle aches,sleep disturbances,a nightime pain in the chest once or twice,which I thought was a heart attack and wasn’t .Bouts of tiredness, a chronic toothache once that my dentist could find no reason for and wrote me off as neurotic.I just thought they were all part of the ageing process and to cut the crap and live with it.
I have overall never felt so good since starting tx although the riba drags me back a little.
I had the” wait wait “from my GP,and had to bully him into writing some scripts.He now freely writes them out for others and is a convert.
If you can afford it,there is absolutley no sense in waiting.If they were put on the PBS tomorrow there would still be a long queue,form filling and more waiting.