Day 1... here we go

This topic has 85 replies, 27 voices, and was last updated 7 years ago by erica.

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18 August 2017 at 12:03 pm #26781
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Fantastic news Edge.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
18 August 2017 at 6:38 pm #26782
Edge
- Topics: 1
- Replies: 19
- Total: 20
- Treatment Warrior
@edge
coral wrote:

There are so many different side effects that you may not be hit with the insomnia stick.

I was thinking about this thread during the night as I lay awake yet again from about 2am to 4am. I had forgotten we were discussing insomnia! For the past few weeks I’ve been racking my brain about why I’m not sleeping. Hopefully it wears off soon! I’m about 16 weeks post EOT now.

Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
19 August 2017 at 10:10 am #26783
rightsaidfred
- Topics: 8
- Replies: 86
- Total: 94
- Guardian Angel
@rightsaidfred
Hi Edge,

Delighted to hear your news.

All the best,

RSF

G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
19 August 2017 at 1:34 pm #26788
nads
- Topics: 4
- Replies: 70
- Total: 74
- Recovery Champion
@nads
Hi Edge
great reading your posts. Sounds like you are nearly there, just a short step away. That insomnia stick has a long reach doesn’t it? !!!
love Nadia

Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder ( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016. )
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!
20 August 2017 at 3:11 am #26789
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hi Edge,

Hoping your insomnia resolves soon, mine has improved considerably since I completed treatment. I linked this before but here is Dr Freeman’s blog again about it which you and others may find helpful.

http://gp2u.blogspot.com.au/2015/02/how-do-i-fix-my-insomnia.html

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
20 August 2017 at 3:01 pm #26794
Kate G
- Topics: 0
- Replies: 3
- Total: 3
- Novice
@kate-g
Hi everyone
I Want to thank you for this forum as it really helped me when I was diagnosed in April. I was in total shock as I didnt know what hep c was. I was ready to join redemption trials but thankfully in Ireland they had just opened up DAA for everyone. They stopped new people getting approved in August as the budget was used up so I was very lucky I was diagnosed when I was. this forum kept me sane and helped me take a positive outlook on the situation. I am starting week 8 of my 12 weeks and all is going well. Main side effect has been fatigue but thankfully no insomnia or stomach problems. Good luck to all who are starting treatment the time goes by very quickly.

Diagnosed 1a April 17
Started viekirax exvirra &Ribavarin July 17
VL 2m ALT 180 fibroscan 4.75
2 weeks VL 48 ALT 30
22 August 2017 at 9:44 am #26800
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Hi Edge,

Congratulations – that’s fantastic news.
Our old friend insomnia and why is it always 2am to 4am?!! I had it for years on and off which was probably due to the virus. Then it ramped up quite a lot with the Ribavirin but I have to say that sleeping is much easier for me post treatment. Hoping it will ease for you too soon.
22 August 2017 at 9:58 am #26803
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Hi Kate,

Good to see you are at Week 8 – not long to go now. Hang on a little longer and that fatigue will disappear
22 August 2017 at 6:14 pm #26806
Edge
- Topics: 1
- Replies: 19
- Total: 20
- Treatment Warrior
@edge
Hi Kate – good luck with your treatment. You are nearly there!

Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
24 August 2017 at 3:16 am #26807
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Congratulations Edge on SVR 12! Next stop is SVR 24!
29 August 2017 at 8:49 pm #26808
Edge
- Topics: 1
- Replies: 19
- Total: 20
- Treatment Warrior
@edge
Can’t come soon enough, Greedfighter!!!

Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
30 October 2017 at 8:24 pm #26964
Edge
- Topics: 1
- Replies: 19
- Total: 20
- Treatment Warrior
@edge
SVR 24!!

To all on the forum, and especially Dr Freeman and Dr Devsam, thank you for your support and for making this possible.

My only question now is what happens next?? Do I take it that achieving SVR24 is a cure? Do I need to get tested again regularly? Just so relieved that this seems to be over.

Genotype 1B

SVR 24 (10/17/17): VL UND / ALT 25 / AST 17

SVR 12 (7/25/17): VL UND / ALT 21 / AST 14

SVR 4 (5/31/17): VL UND / ALT 21 / AST 19

EOT (5/1/17): VL UND / ALT 32 / AST 22
T+19w (3/27/17): VL UND / ALT 23 / AST 20
T+4w (12/12/16): VL UND / ALT 31 / AST 24
T+0w (11/19/16): VL 343,484 / ALT 36 / AST 28

Previous treatment in 2012: 48 weeks peg-interferon/riba, relapsed at some point in the 24 weeks post treatment (around 2014). Found redemption trials and applied in Aug 2016.
31 October 2017 at 1:51 am #26965
Dr James
- Topics: 264
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- Total: 2,232
- Guardian Angel
@fixhepc
Hi Edge, wonderful news!

You are officially cured. If the virus was still present it has had 24 weeks to grow back and during 23 or so of those weeks you have had no useful levels of medication in your system so there has been nothing to stop it.

It has not come back because it is gone… for good.

You can still catch it again, but short of that it is officially over.

Well done and thanks for your faith in us!

YMMV
31 October 2017 at 3:10 am #26966
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Congratulations Edge on SVR 24!

Cured baby!
31 October 2017 at 4:58 am #26967
splitdog
- Topics: 5
- Replies: 374
- Total: 379
- Guardian Angel
@splitdog
Awesome to you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
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