Thanks Sabrecat
Dr Freeman is up there with Dr Nitschke
Doctors who think outside the box and use common sense, guided by what is best for the person rather than sticking doggedly to rules

What I particularly like about the buyers club is that you are your own ‘man’ (person)
It’s up to you how you want to do it, hence the conjecture over combo’s and duration (plus the evidence is limited being so new)
It’s not ‘you’ll do 12 weeks on this combo’ end of story
I hate being told what to do unless it is explained to me why I have to do it and why that particular way
That is why the Buyers Club sounded too good to be true when I first read about it
It is thankfully the exception that proves the rule ‘if it sounds too good to be true, then it usually is’

Good luck with the 24 weeks mate
Believe me, for the last 12 years I’ve not treated my liver with kid gloves, yet it seems I’m still not cirrhotic (F4)
So you may find you are still F3 – anyhoo, good luck yourself and hope to hear positive news of a negative result for you

Hey Life
Well, I definitely don’t feel better
I’m very happy that I am VMD at 4 weeks and all is on track so I’m not complaining at all
I’m just a bit, I don’t know, perplexed as to how I feel no better and if anything I feel worse

Any symptoms I do have are subtle
My guess is that my symptoms previously were less than the symptoms of the meds
Others who had bad symptoms, the meds help to alleviate those and any med symptoms are not noticeable

Anyhoo, it doesn’t really matter as I know I’ve done the right thing and grateful for it
And hoping for SVR24 and get back to feeling at least as good as I did previously, if not better

Merry hep free Xmas everybody

I don’t get a notification of PM’s
Answered you now – good luck with everything!!

Woh, hardtail to a Nomad! Now that’s living!
A Nomad or a Bronson with my own build would be a dream, and it will probably stay that way
I spend way too much money on bikes as it is hmy: I’m a bit of a bike geek

I’m pretty clean at the moment – probably why I feel so down lol
You’re lucky with the low score – when I got the F3 12 years ago I was shocked
But after i thought about it, it was hardly a surprise really – it was a near death hangover that alerted me to something being wrong
I look back on all the things I’ve done to myself as a young feller, and while I can see why, it still shocks me – such a waste

My wife saw that I was on the forum and asked how things in the hep world were going
I fessed up that I’ve been feeling pretty low – like why did I bother trying to prolong my life rather than just let it be
I’ve previously been pretty happy and generally healthy and fit, but now when I should be feeling great, I feel low and unmotivated
She feels it’s because it is all in my face now – again. I’ve dealt with my demons previous to this and moved on, but now they seem to be back
I’ve been thinking a lot about my life which never helps, and while i love this forum, I’m not sure how good it is for my head
I read about how peeps have suffered with the hep, but the meds have given them a new lease on life
This is pretty much the exact opposite to how I feel

Maybe it’s just Christmas and I have to spend time with my zombie mother in a high care home and watch her dribble and ramble
Everyone thinks I’m a hard bastard and should feel some compassion, but I find it difficult.to muster any beyond just a show
I would have nothing to do with her except for my alien like brother and I had a massive argument and I conceded to help on my terms
So she has remained an emotional burden pretty much my whole life – a real piece of work
And here i am at 52 on hep treatment again, and I’m supposed to feel sorry for her! Sorry, no can do

Anyway, I’m starting to ramble on about myself and i need to stop throwing my baggage around
I don’t really have anywhere else to vent, so thanks for giving me the space to do it

By the way, I’ve had a hell of a lot of counselling and don’t need more – i actually think that would be counterproductive
I just need to see the tx out, get the focus off myself and get on with life like before

Ride on! Bloot out

Hi Bloot,

“I read about how peeps have suffered with the hep, but the meds have given them a new lease on life
This is pretty much the exact opposite to how I feel”.

I started treatment 25 years and two and a half weeks after I became infected. I think I get the gist of what you are saying.

Physically I have much improved since about 2 weeks into treatment; no side effects worth noting – physical that is.

How I feel though? Well:

a) happy about getting a potential get out of gaol card health wise; maybe even delay the next HCC?
b) perplexed as to how I can fill the days with new energy when before I was too tired to give a f….
c) scared that the promise of health may not work SVR wise and the process was like interferon and riba minus the side effects.
d) angry that I felt like I was an ignoramus and generally told to go away and cope/be healthy/loose weight/soldier on and the constant fatigue was something I could do something about. Refer point b. above, its the illness that causes the fatigue methinks.
e) never had a lot of people to share the emotional burden with – get sympathy, suggestions about diet, and quite frankly I don’t want feel I have to share everything about myself to feel good anyway. BUT reading this forum is sometimes painful, but more often good.

How do you manage all this after 25 years of having life dictated to you by some virus? I don’t know. This forum is good and it is great to see people doing what is needed to get better and SALVAGE what for many of us is the remaining part of our lives.

Don’t know how I am SUPPOSED to feel really; I might have to ask someone released from 25 years of prison for a crime they did not commit?

How I will manage if I get better – FIIK. In for another rolla-coaster ride – maybe? I have read a few of your posts and I expect you will work it out too. I know I have to. Again my gratitude to those who gave me the opportunity.

yours

J.

Well, nice to have found this little corner Honestly, I’ve been on this site for a few months and still keep finding areas I didn’t know existed.
Anyway, I’m 52 yo female, G3a, diagnosed 1980. Started Sof/Dac 13/01/16. Earlier Doc had suggested 12 weeks but by the time I had my GP2U consult further research suggested 16 weeks would be better.
It’s only been 4 days and I have been feeling –
* speedy, heart racing, intense sweating, highly animated, energetic bursts – all ’round ‘hyper!
* doing lots more during day than ever normally capable so I’m ‘crashing hard in arvo and going to bed utterly ‘trashed’;sleeping solidly but waking suddenly ‘alert’ and mind ‘wired’.
* appetite normal, not 1st day, very dehydrated from sweating profusely.
* normally drink a few wines a night but stopped to start Tx; haven’t had hard drugs for many years and not smoked pot for about a year (miss that though )
* having a roller-coaster ride with emotions/moods; I feel joyful and energetic at times, sadness and grief + crying spells and generally overwhelmed.

I was thinking about what Bloot was describing with how he’s feeling. It’s all in my face now too. When writing my ‘history’ elsewhere, a lot of it really hit me hard. Looking at my timeline I realised I was younger than I’ve ‘thought’ when i got infected, therefore also my Bro and cousin. I was diagnosed Summer, late 1980, which means I was only 17 when we went on this ‘Drug Bender’, I was still violently ill when I turned 18 and didn’t celebrate big time. I was living at my Dad’s with my little bro, 9 yo, looking after me. I remember him cooking me my favourite meal and baking a chocolate cake for me . He died suddenly, ‘drug misadventure’ (gotta love the way the cops deliver that news!), 2013 only 41 yrs. My Dad died at 51 yrs, nearly 20 yrs ago – cirrhosis; my cousin (him and my other bro intro’d me to the hard shit) died 2012, 51 yo – beaten to death in Cambodia; my surviving bro, also HCV G3a, cirrhosis doing badly because he won’t stop alcohol/drugs, 51 yo, given 2 yrs to live nearly 5 yrs ago, so that’s something. All this loss has been hitting me.
I’ve been ‘sick’ for so long and worse in past couple of years, I don’t even know what ‘normal’ should feel like. Past 4-5 yrs the Specialists telling me to wait for new Tx but also telling me if I didn’t get Tx soon I wouldn’t see my 60th! So, I assumed I would die from this virus and never really know what it was like to have energy and do things without severe pain, feeling unmotivated, anxious and depressed to the end.

Now, the past few months have been a whirlwind of change for me and I think my head is still trying to catch up, I’m feeling overwhelmed.
I’m grateful for this site because I have absolutely no-one I can talk about this with.

Thank you all for sharing and I truly appreciate the support, info and life experience given here

Started my sof dac 29 JAN for genotype 3. First viral load test at 3 weeks 3 days <12 iu/ml. RESULT!