Hello to all my future friends

This topic has 28 replies, 17 voices, and was last updated 8 years, 4 months ago by Greedfighter.

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9 July 2016 at 5:59 am #20734
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Welcome Semisweet. I remember Day One – it’s fabulous! Look forward to hearing from you along the way.

Coral
9 July 2016 at 11:03 am #20740
rightsaidfred
- Topics: 8
- Replies: 86
- Total: 94
- Guardian Angel
@rightsaidfred
Hello Semisweet and welcome,

Day one is a great feeling.

All my best wishes for a good outcome.

G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
9 July 2016 at 11:07 am #20742
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
I had water in the car. Left the chemist, back to the car and downed the first one right away.
On the road to a new world of feeling good

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
9 July 2016 at 9:28 pm #20759
fretboard
- Topics: 10
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- Total: 174
- Guardian Angel
@fretboard
Good for you semisweet and welcome to the forum! Glad to hear you got your Harvoni!!

G1a dx’d in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn’t last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
11 July 2016 at 4:56 am #20786
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Thanks to all and glad to meet you!!!

I thought I’d be posting on my first day. but I found myself needing some quiet time to really take it in – what this means, how long I’ve been waiting, and how I had resigned myself to not getting treatment….. and how scary that was. And now that it’s here it seems too good to be true! Surreal….

I’m about to take my third one. So far, no sidesl, so different from the IFN/Riba poison. I’m elated, and in awe of this tx!
12 July 2016 at 2:48 am #20838
Matt-Kenney-google
- Topics: 1
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- Guardian Angel
@matt-kenney-google
Well! Hello semisweet! Love that monicker
See what happens … a guy takes a couple of days off (away from this crazy world of electronic gadgets and such) and up pops another American hmy: we’re kinda like weeds in the land of OZ.
Truly happy you discovered this place. You’ll find you can’t stay away. It’s my home away from home. As you’ve already seen, they treat ya like family here and EVERYONE has a story. Thanks for sharing some of yours with us. Congrats on starting tx and TG for Dr. James and Fixhepc indeed! I know like the rest of us here, you’ll want to spread the word to those of us whose “grains of rice” had to come from that rice bowl, because Gilead was too greedy to share from theirs.
Looking forward to following your progress sis

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
13 July 2016 at 12:00 pm #20894
CC2B
- Topics: 2
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- Guardian Angel
@cc2b
Welcome SS and best wishes for a quick UND and SVR. Keep us updated
You can add your stats under your profile.
Best wishes for few or no sides!

GT2b diagnosed 10/2015
since: unknown
11/20/15 VL= 214,070
12/4/15 ALT=18 AST= 24
1/16/16 started sof/dac
2/13/16 @4wks VL=UND ALT=13 AST=22
3/12/16 @8wks VL=UND ALT=10 AST=18
4/9/16 EOT VL=UND ALT=11 AST=19
9/23/16 SVR24 ALT=11 AST=22
18 July 2016 at 12:14 am #21012
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Hi Matt-Kenney and CCB2! Sending virtual hugs!

I’m on day ten. I had a really hard workweek…I’ve been working four ten hour days with three days off, by choice. i don’t know if it was from the meds, but I just couldn’t fall asleep for hours, and also had the dreaded wake ups and couldn’t get back to sleep. I was crushingly tired all week, especially my last day. i really don’t know how I made it through. So, I’m changing to four nine hour days and a 1/2 day on Friday. I think that extra hour at night will help me wind down. I’ve felt better over the weekend (got in some good sleep). Waiting for my burst of energy!!!
18 July 2016 at 4:38 am #21015
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Hey Semisweet

I’m not a doctor but I do believe people who have gone through the previous regimes of Tx have a harder time of it initially. Your experience is certainly different to mine but hopefully the good bits will kick in for you very soon.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
18 July 2016 at 5:46 am #21018
Gaj
- Topics: 29
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- Guardian Angel
@gaj
Hi semisweet,

Apparently insomnia is an issue for about 6% of patients while on Harvoni. https://fixhepc.com/forum/experts-corner/786-official-foi-fda-side-effect-reports.html#12379

Hopefully for you like many others it will just be until you get over the novelty/excitement of commencing treatment. Giving yourself more time to wind down each night should help as you say (switch off the computer ) and depending on other factors you may be able to look at adjusting the timing of your medication. Here are some suggestions from Dr James.

https://fixhepc.com/forum/experts-corner/598-how-do-i-fix-my-insomnia.html#8330

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
18 July 2016 at 2:09 pm #21027
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Hi Semisweet,
Sounds like what my doc calls “broken sleep”. Work you ass off, go to bed and sleep great for a couple of hours and wake up at 2:00 am with a tired body and a mind in overdrive and toss and turn until its almost time to get up and drop off to sleep again. It was hell for me and left me tired, listless and cranky. About every fourth night I would simply pass out from exhaustion.
This started happening to me during the stressful fight for treatment and continued until about week 3 or 4, when my first great labs came back.
I have no tips on how to deal with it. I would say relax, but that sounds stupid.
Age, for me, is another factor. I just don’t sleep as well as I used to..
The days get longer.
The years get shorter.
The sleep comes harder.
Then there’s the peeing…..
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
19 July 2016 at 11:55 pm #21089
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Yup semisweet,
What mgalbrai said …

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
14 August 2016 at 11:39 pm #22201
semisweet
- Topics: 2
- Replies: 11
- Total: 13
- Acolyte
@semisweet
Well said mgalbrai!

And for me, add hot flashes to the list! Sigh……
16 August 2016 at 4:17 am #22222
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Hi semisweet,

I’m happy you are starting treatment. You will be fine, your energy level should increase! On your way to the cure!
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