Home Forums Main Forum Patient Stories ‘In which LG seeks Redemption & makes new friends’

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  • #23595
    Avatar photonads
    • Topics: 4
    • Replies: 70
    • Total: 74
    • Recovery Champion
    • ★★★★
    @nads

    Hi LG, really hope not long to wait for your results to come in so you can finally chill and feel job well done!!!!! :cheer:

    I am with you on everything you say about this site and you re such a big part of it. You are always there ready to welcome someone new and offer advice from personal experience. Your support is mega important to us who follow in the footsteps of everyone who has taken this journey before!! If Karma exists (have to say at times I am cynical about it) but regardless you deserve a great outcome! Its what I wish for everyone.
    Mega huge hugs
    love Nadiaxxxx.


    Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder :-(( Meds stopped after 4 or 5 months.
    Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
    May 2015 ALT 59 AST 56
    21/7/2016 ALT 36 AST 44 BIL14
    VL 939000
    thanks FixhepC +Monkmed started Sof/Led 16/8/2016. :-))
    OCT 3 AST33 VL UND
    OCT 11 ALT 29 AST 36 VL UND
    NOV 10 ALT 27 AST 37 VL UND
    JAN 30 2017 ALT 23 AST 29 VL UND
    SVR12 ALT 23 AST 27 VL UND!!
    SVR 24 UND!!!TY EVERYONE!

    #23600
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thak-you Sven, RFH, Matt & Nads :+1: #love

    Meanwhile, Dear Mr/Mrs Labtester , Let’s get it over with !

    ;)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #23603
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    The Kinks :)


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #23658
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    We are waiting with you lovely LG
    bring on those labs
    Sending hugs #love #flower
    A x

    #23659
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    It’s the end of the world as you know it. Hep C free for LG

    https://m.youtube.com/watch?v=AzqiPvGrkTo

    The key lines…..

    Save yourself, serve yourself
    …..
    ….. and I feel fine


    YMMV

    #23665
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you Dr F & Ariel #love

    My bloods weren’t included in the Friday tests, still waiting, fingers crossed next week!

    LG xx

    ps is there a period of time they need to test within?


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #23669
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    ps is there a period of time they need to test within?

    Technical

    No, the bloods are frozen within a few hours

    Temporal

    No, SVR4 ~= SVR12 ~= SVR24 and see frozen


    YMMV

    #23677
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    A quick word of encouragement, LG.

    Went in to see my specialist last week after SVR4 results. It was pretty clear from the results and our conversation that she pretty much considers her work to be finished with regard to my Hep C treatment. We talked briefly about the odds for long term SVR after acheiving SVR4, and they’re excellent.

    She said to go ahead and have EOT +12 labs done as they have already have an order for it, but that she wouldn’t need to see me for another year.

    She then gave me the standard required warning abut reinfection (actually laughing a little when she had to do the bit about IV drug use). It was music to my ears though, because I knew what it meant. She believes I’m cured, just as I believe you are cured.

    Looking forward to confirmation of your SVR12, LG. I know you’ve got this!

    #23681
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Fitz :+1:

    I haven’t tested since EOT, but at 10 weeks, LFTs were all within range and Alt good.

    I’ve kept myself busy this weekend, but every now and then, a feeling of excitement followed by a feeling of panic comes into my head :ohmy:

    #love to you and wishing you the very best of health and continued excellent results LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #23682
    Avatar photoSven
    • Guardian Angel
    • ★★★★★
    @sven
    fitz wrote:

    A quick word of encouragement, LG.

    Went in to see my specialist last week after SVR4 results. It was pretty clear from the results and our conversation that she pretty much considers her work to be finished with regard to my Hep C treatment. We talked briefly about the odds for long term SVR after acheiving SVR4, and they’re excellent.

    She said to go ahead and have EOT +12 labs done as they have already have an order for it, but that she wouldn’t need to see me for another year.

    She then gave me the standard required warning abut reinfection (actually laughing a little when she had to do the bit about IV drug use). It was music to my ears though, because I knew what it meant. She believes I’m cured, just as I believe you are cured.

    Looking forward to confirmation of your SVR12, LG. I know you’ve got this!

    I’m so proud for you fitz, enjoy your new found health my friend. Make plans, Go where you want to and do all the things we put off because we were really sick…visit all your dream places. Just because we have new found health doesn’t mean we can sit around and do nothing. Note: that last sentence was especially for me too! :)


    Contracted HCV 1980’s
    Geno Type 1a
    F3 ( doc says once treated I’ll be F2 maybe F1)
    Meds shipped 6/17/2016 arrived early 7/2016

    Viral count – 3,471,080

    4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

    8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

    11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

    December 19th 2016: Cured!
    Viral count: zero!!!
    2018 viral count: still zero!
    Cured!

    #23693
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz
    LondonGirl wrote:

    Thanks Fitz :+1:

    I haven’t tested since EOT, but at 10 weeks, LFTs were all within range and Alt good.

    I’ve kept myself busy this weekend, but every now and then, a feeling of excitement followed by a feeling of panic comes into my head :ohmy:

    #love to you and wishing you the very best of health and continued excellent results LG

    We all know that feeling, LG, and we’re all SO proud of you,

    You are a true warrior and a rebel, and you’ve done it all with extraordinary courage, and tremendous compassion.

    LFTs within range 10 weeks after EOT…. You are crushing it!

    #23706
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    You got this lady.
    Can’t wait to hear your good news

    pyjamas.gif


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #23710
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thank-you fitz & beaches :+1:

    Not wanting to sound like a drama queen :blush: – I guess my fear is, I was one of a very small % – ie being in the slow lane on tx, so I think am ‘protecting’ myself until I get the result, as It’s possible I could still be in the small %.

    Heard this morning test is saying ‘ incomplete’ – ie hasn’t been done yet. Will be keeping myself busy with work shortly <img style=illy:' /> :P

    #love you guys, your support means so much


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #23713
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi LG,

    it is like being on a roller coaster :).

    Hang in there!
    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #23727
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Hi LG,
    I know what it’s like to wait! Ups and downs! :unsure: <img style=illy:' /> :woohoo:

    But there’s so little until you have a written confirmation in black and white. ALT is excellent, a good predictor!

    I wish you to be a member of the club SVR12 with more and more members.

    All the best and good health!

    hug_80_anim_gif-2.gif


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

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