new member from south korea

This topic has 44 replies, 14 voices, and was last updated 8 years, 5 months ago by dacngvn.

Viewing 15 posts - 1 through 15 (of 45 total)

1 2 3 →

Author

Posts
17 March 2016 at 8:14 am #13992
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
hello.

I m jinsung kim(you can call me jay kim) from south korea.

Many korean hep-c patients are using hopetavir(incepta’s generic sovaldi) and Twinvir(incepta’s generic harvoni).

i am GT1a. I tried hopetavir and rivabirin for 12wks before twinvir came out. results was good during treatment, but didnt get SVR4 though..

now i am on 2st week of twinvir.

In korea, we have simillar community like fixhep-c. but there is few GT1a. so i want to share treatment stories and tell you korean stories too(many koreans, especially GT1b, GT2, are getting close to SVR).

Thanks for having me in.

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
17 March 2016 at 9:03 am #13994
Gaj
- Topics: 29
- Replies: 1,402
- Total: 1,431
- Guardian Angel
@gaj
Hello jay kim and welcome,

I see from reading that there are mostly 1b & 2a genotypes in Korea? I look forward to hearing of your community and treatment process over there.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
17 March 2016 at 9:22 am #13997
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
oh i didnt know where to write me intro.

looks like i had better introduce myself on another thread.

thanks Gaj.

Yes. we koreans mostly have 1b, 2a.

those who get treatment by sofosbuvir+interferon+ribavirin(1b) and sofosbuvir+ribavirin(2a) hit SVR12 even SVR24 alrealdy.

but still no SVRs by sofosbuvir+ledipasvir(1a, 1b) due to the time issue.

In korea, most people use incepta’s products.

let me put my post in adequate topic thread.

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
17 March 2016 at 10:34 am #14005
isaing4
- Topics: 2
- Replies: 237
- Total: 239
- Guardian Angel
@isaing4
Welcome jay kim!

I wish you easy treatment and keep us posted with your journey!

I took also Twinvir, but GT1b. I am feeling well and no side effects.
I finished the treatment and I am waiting four week after EOT blood tests.
All good till now. Hope to reach SVR4!

HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com
17 March 2016 at 10:51 am #14008
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
Thanks isaing4.

i have questions about twinvir.

i tried to catch up all the information in this forum, but still not used to how to navigate this website.

is it true that Dr. Freeman have conducted the tests to see if twinvir is identical with original harvoni?

actually korean patients are still scary that twinvir is not effective as original one.

if there is a test result, please let me know where to see that.

thank you in advance.

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
17 March 2016 at 11:41 am #14009
Chapel
- Topics: 7
- Replies: 112
- Total: 119
- Guardian Angel
@chapel
Yes of course Dr Freeman has tested it before prescribing it to many patients. Please search forum for “27th of August 2015′ or click here: http://fixhepc.com/forum/questions-and-answers/665-prof-ed-gane-s-remarks-implications-for-twinvir.html#9932

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
17 March 2016 at 11:47 am #14010
Chapel
- Topics: 7
- Replies: 112
- Total: 119
- Guardian Angel
@chapel
Jay, have the South Korean patients or their doctors been buying the Twinvir directly from Incepta or some other party?

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
17 March 2016 at 12:34 pm #14012
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
Thank you so much for your kindness.

Now I am very relieved that I am taking right medication.

Actually, there is a problem about koreans getting twinvir.

One who bought the incepta’s product(generic sovald) got help from korean guest-house owner in Bangladesh’s captal, Dhaka. The guest-house owner still buys incepta’s medications for korean patients. I heard he is close to someone in Incepta.

Since there is a language barrier between Bangladesh and Korea(moreover, most hep-c patients who need to be treated are old and don’t speak English at all), I think it is inevitable to get medication from him.

I don’t think that he is making a lot of money since koreans buy 12wks Twinvir for around 1600 USD from the guest-house owner.

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
17 March 2016 at 12:37 pm #14013
Chapel
- Topics: 7
- Replies: 112
- Total: 119
- Guardian Angel
@chapel
Oh US$160 for 12 weeks of Twinvir. Are you sure this is correct, not 1600?

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
17 March 2016 at 1:00 pm #14015
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
Oh. My bad.

it is 1600 USD, not 160 USD.

it is reasonable price, isnt it?

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
17 March 2016 at 1:04 pm #14017
Chapel
- Topics: 7
- Replies: 112
- Total: 119
- Guardian Angel
@chapel
Well in this case better to pay too much than too little, which would mean it was fake. I suggest you communicate with the forum member Parvez from Incepta. He can do a better deal I am sure.

M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!
17 March 2016 at 1:12 pm #14018
LondonGirl
- Topics: 16
- Replies: 1,348
- Total: 1,364
- Guardian Angel
@londongirl
Hi jay kim, Think we ‘met’ on chat last night?
Good to see you registered, as you can see, there is plenty of help here
Meanwhile, there are lots of patients doing very well on Twinvir here and I wish you the very best success with your treatment.

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
17 March 2016 at 1:21 pm #14019
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
Thanks Chaple.

I think that korean patients need to get the medications directly from incepta for several issues. However, korean patients think it hard to take a process and communicate with English. That is why we dont have many patients who buy Indian medications. Moreover, the guest-house owner is believed to be very reliable gate to get medications among patients.

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
17 March 2016 at 1:24 pm #14020
jay kim
- Topics: 3
- Replies: 48
- Total: 51
- Recovery Champion
@jay-kim
Hi LondonGirl.

Sorry for missing your kind chat. I went to bed

I feel FixHepc is very helpful and kind place to get my anxiety relieved of treatment process.

Thanks for having me in, again

hep-c for 20yrs.
GT1a. Started twinvir(sof-led) 05/03/16.
Before tx: VL=1.7mil. AST, ALT in normal range
2nd week of tx: VL <15. AST, ALT in normal range
6th week of tx: VL < 15. AST, ALT in normal range
18 March 2016 at 4:27 am #14058
Greedfighter
- Topics: 28
- Replies: 582
- Total: 610
- Guardian Angel
@greedfighter
Hi Jay Kim,

I am taking Twinvir. I paid $1400 for 12 weeks. I live in USA. After 6 weeks I am Undetected on PCR QN test. (<1.18 ml/IU)
Author

Posts