Well, now I finally got to talk to the Clinic Hep nurse – that the Specialist told my GP for me to contact if I wanted to proceed with the generics – and I’m more confused than ever!

I gave her the whole rundown of what’s happened since my last visit there. She knows of this club and people getting tx but no other details, hasn’t actually been on the site. She wanted to know WHY was I calling her? She didn’t know what she was supposed to do and the Specialist hadn’t spoken to her about my case. I asked if she could arrange a Fibroscan – she wanted to know why I needed that, was it a requirement to buy from the Club? I told her it was to see if I had cirrhosis because tx was different re the script. She wanted to know how ‘recent’ the results needed to be, since I had one in March 2013 – score of 4.7 – my liver was obviously fine and couldn’t possibly change that significantly in that time. If it had of been an 8-9+ then yes, it would be advised. I told her that the Specialist who did the Fibroscan told me it was a good score BUT ‘a lot can happen in 2 yrs given your age and length of infection.’

She told me it was looking good for the generics to be available ‘early 2016’ but that the Specialists/Dr’s would know by the end of December what the plan is – will GP’s be able to write scripts, will there be priority listing etc. So, she suggested waiting to find out! I told her I’m sick of being told to ‘wait’! Why was the Specialist insistent I don’t put it off? He even said he didn’t believe the Gov were going to put it on PBS.

Then it got interesting because what she did say was, ‘I believe everything your saying… I’ve been in the clinic and heard these things said. The problem is …let me put it this way, he doesn’t always follow through with what he says. I can tell you this – there has not been ONE script written for these drugs from this Clinic!!’

She suggested, ‘I would imagine, ideally for you, given your location and situation with your son, that we get the script written and sent to you and you can go through this club and your GP should be able to monitor you. We’d see you at some point during your tx. But, how does he even know how to write the script? Which medication/dosage?’
I told her the info was on the site.

Since he is only there on Fridays, she said she would speak to him and call me when he’s in the room.

So, now I ‘wait’ until Friday. Looking more and more like I will have to do the GP2U route…

Does anyone know if the GP2U process requires a Fibroscan more recent than 2013, or probably just the bloods to calculate the Hepascore?

Beautifully put Zhuk – ‘headdesking’ – that’s exactly how I felt afterwards and still today, lol.

I too was shocked that she didn’t think there could be any change in my liver. My LFT’s always elevated, sometimes 2-5 x the max range. I’m on a range of medications and i do drink wine. Yes I know I shouldn’t drink at all!!!! I try but I’m still working on my coping strategies with anxiety.

Yes, I have been too patient ahhhhh I was trying to save $$ being bulk-billed for visits and blood tests – thinking it would have been simple – the way he put it initially!
I’m in the middle of my son’s assessment/report writing for homeschooling this week, I can wait until Friday. I’m quite sure the nurse will be frank with me if he’s back-pedalling. Either a script done then or a Green light for me to GP2U.