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Yes Sonix i’ve just spent $1739 this past week for consult, Path and Meds – not begrudging it at all! My Health can’t have a price tag, just having this opportunity means so much to me. I’m truly grateful.
I was reading the news article on Egypt’s deal with Gilead and a 52 yo man, now cured, said,’I felt like I was dying and now I feel like I’m 35 again …..’ It brought tears to my eyes because I’m 52 and shouldn’t feel as bad as I do. So, I’m looking forward to how I’ll feel on my 53rd next April!
Not complaining about $$ at all, just surprised!
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HI moved my Tx blog over to “My parcel of Magic Pills has arrived.”
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HHi am new here Rob is my name – live in ireland- have had hep c at least 30 yrs gen 3a did peg intereron and riba 6 month hs back in i994 undectectable at 12 wks then relpsed at end of treatment– have been seeing a n excellent accupuncturist herbalist in london for many years which has helped alot -i practice qigong – have been well considering – gastrocopy revealed end of last year tht i hsd 4 varice in lower oesophagus 2 were grade a and 2 were grade b– mild duodenitis- portal gastrocapathy- came as quite a shock ! fibroscan is F0-F1 mild fatty liver- platelets low 60.000 wbc count low 2.4– alt 60 ast 40 – luckily heath services here ok the new treatment as i wss considered priority on account of swolen spleen/varices etc – just started triple therapy dac / sov/ and the dreaded ribavirin(1200mg daily) for 6 months– cant say that i really like the idea of riba at all — question i have is : what increase in per cent would the addition of riba make — / if i take it which i am — could i stop it when undetecable and then start it again near the end of the treatment — alot of people whove done this combo ended up not bothering with the riba and got clear… then i am a relapser and have mild fatty liver– any feed back appreciated
am taking b complex/betaine/zinc vit d have stopped taking chines herbs and reishi/cordyceps mushrooms also have stopped supplemting with lugols iodine (something i found very useful on many levels ) good to be here -thanks for support in advance Rob
Welcome Rob,
I’m on the same treatment as prescribed for you. Like Sir, I’m not qualified to answer your riba question but can share my experiences.
Our cases do differ in that I have compensated cirrhosis and HCC occurrences but no fatty liver or varices. I also had very active HCV creating a lot of inflammation which gave high ALT/AST over an extended period. I did discuss discontinuing riba with my specialist at my 12 week checkup last week. He couldn’t guarantee continuing would help but thought that in my case there was probably a couple of percent advantage in my continuing it to end of treatment given my previous relapse and other factors. As I’m looking for any leverage I can get I will continue. So not sure how or even if that translates to you though.
Something else to consider is that I also seem to handle riba quite well, no anaemia or rage with only insomnia, dry skin and itchiness as noticeable sides. I always felt that the Peg was the worst part of my prior treatment and that has proven to be the case with the DAAs.
You should also read this thread which includes links to some of the latest data on Gt3 patients treated with Sof/Dac +/- Riba as presented at AASLD conference 2015 http://fixhepc.com/forum/gt3/369-gt3-high-svr-rates-with-daclatasvir.html
Best wishes for your successful SVR whichever path you take.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Welcome Rob, this is a great place to get info and support.
Glad Gaj has directed you to some info, the question of adding Riba or not comes up a bit.At the top of the site’s page the ‘Search’ section if you type in “add ribs” or something similar you will find lots of posts about this topic and the references to the latest studies suggesting no benefit to + Riba.
Look for section Genotype Specific – genotype 3 – lots of discussion more specific to treating each genotype.
I suppose since all this is still pretty new using DAA’s, you could print out some of the research papers and show your Specialist and discuss the pros and cons of adding Riba to your Tx. it’s your body, your health and wellbeing and you ultimately should be the one making an ‘informed’ decision.Wish You all the best with your journey
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16Dec ’15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb’16 VL UND
AST 24
ALT 26
GGT 50HWelcome and wishing you all the best for tx Rob from Australia
These meds are wonderful they actually work
Regards ArielWelcome cbg,
For most of us the treatment will be easier to live with than the disease and it is only 3 to 6 months rather than a lifetime. Personally I feel confident that I will clear the virus and be able to live a full life again, as I’m sure you will too.
Thankfully FixHepC and all the wonderful people behind it have made that possible and affordable for many more of us around the world than previously while providing this open forum to share our experiences and the latest news on continuing developments in HCV treatments.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
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