Home Forums Main Forum Patient Stories End of Treatment – EOT Rohcvfighter reached EOT

Viewing 15 posts - 1 through 15 (of 52 total)
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  • #20992
    Avatar photoMeg
    • Topics: 3
    • Replies: 92
    • Total: 95
    • Guardian Angel
    • ★★★★★
    @meg

    Wow roshvfighter thank you soooo much for writing your story and sharing it with us. I enjoyed reading every word of it! #love
    I’d like to share it elsewhere too as it brings a very important first person experience as well as very useful links.
    Thank you also for your impeccable work translating texts to your language. You have inspired me to do the same and although not with the same “professionalism” I am slowly spreading the word about generics in my country as well. I agree once we are cured we automatically become activists as we want to share this blessing with as many people as possible. Congratulations on your brave journey and my heart felt wishes to your SVR! I will meet you there. #magic
    Big hug from Brazil. :kiss:


    Blood transfusion in 1992 – Diagnosed in 2007
    Tx naive -G1b – F1
    VL 2.270.000
    ALT 40
    Start tx June 4th/2016 with DAAs – Sof/Led from India
    Bloods on two weeks of tx (June 18th)
    AST 17 – ALT 10 – GGT 19
    Virus UND
    Bloods on six weeks of tx (July 16th)
    AST 17 – ALT 8 – GGT 12
    Virus UND
    EOT on August 8th (did 9 weeks and 3 days)

    SVR 4 Virus UND (September 7th)
    AST 13 – ALT 5

    SVR 14 Virus UND (November 12th)

    #20993
    Avatar photoSven
    • Guardian Angel
    • ★★★★★
    @sven

    I read every word of your post, I feel you feel very blessed to have met this team of Angels and rightfully so. I know all of us feel that way. I am very appreciative of your post and making it from another country that freedom does not seem 100% it is that much more impressive. I know your great journey will continue as you seem to be a leader of people and I hope your persistence will make opportunity a reality for others and will bring you the prosperity you desire in all avenues of life. Thank you again for your post, it did as you intended it to do.
    In good health my friend.


    Contracted HCV 1980’s
    Geno Type 1a
    F3 ( doc says once treated I’ll be F2 maybe F1)
    Meds shipped 6/17/2016 arrived early 7/2016

    Viral count – 3,471,080

    4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

    8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

    11 week PCR RNA Qualitative bloods: September 26th 2016 – Undetected

    December 19th 2016: Cured!
    Viral count: zero!!!
    2018 viral count: still zero!
    Cured!

    #20994
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    A heartfelt post reading it has brightened my day, wishing you an infinite SVR for the future from me. #flower


    SVR 24

    #20995
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Congratulations on EOT, rohcvfighter! Thank you so much for telling your story :)

    You are an activist in the truest and best sense of the word, and in the best way possible.

    Respect!

    Fitz

    #21001
    ADAM14
    • Topics: 0
    • Replies: 5
    • Total: 5
    • Novice
    @adam14

    Felicitări pentru EOT, rohcvfighter!

    #21004
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Dear Meg, Sven, Tina, Fitz, Adam,,

    Reading your messages today brought me a lot of joy, I do not know what else to say, apart from THANK YOU! (and #love )


    @Meg
    : I am really impressed about how easy and natural you may use the words and express your thoughts in such a candid way. If you think it might help others, for sure you may use the information. :)

    I wish you all a nice Sunday!

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #22069
    Avatar photoMurr
    • Topics: 4
    • Replies: 18
    • Total: 22
    • Treatment Warrior
    • ★★★
    @murr

    Thank you for your post Rohcvfighter!

    I really can relate to your story, I was born in Bulgaria 1966.I also don’ t know how I got hep C, you made me thinking about that in a different angle…… this about the vaccination in School, I didn’t realize till now this how they did it at that time!!! So most likely the same was happening in Socialist Bulgaria when I was a child. I’m speechless.

    Anyway, better to focus on the positive that we are here, and we doing our best to get healthy and live our life!
    Congrats on your successful EOT and I wish you UND SVR @ 12 weeks!! and forever!

    BIg :+1: :+1: Stay strong!


    Genotype 1b, VL before TX:325 000,ALT41, AST41, F2
    2004 INT/Rib,stopped after 5 months, due to severe side effects
    SOFOSBUVIR+LEDIPASVIR from India Hepcvir-L /generic Harvoni
    beginning of treatment :12/07/2016, Feeling OK
    4 weeks AST 22, ALT 23 VL undetected
    8 weeks AST 29, ALT 22.VL undetected
    3/10/2016 EOT
    EOT + 4 Weeks, LFTs Normal, VL = UND

    #22073
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hi Murr,

    Thank you for your wishes. On my turn I wish you an easy journey through the treatment and to reach the happy finish lines SVR12 and SVR24 :).

    I am now almost 4 weeks after EOT and I am physically OK. The anxiety of waiting another 8 weeks till the next VL blood analysis is somehow difficult to handle, so I keep reminding me that other people reported similar things. My level of enthusiasm is quite low these days, so I was thinking to apply a placebo strategy : to take some Calcium pills, place it in some appricot jam to get the brown color like the generic drugs that I took during the treatment and then to start taking 1pill/day at 10:00pm :) Just kidding, despite the fact my sense of humour is in vacation these days and away from me.

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #22627
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    A reflection from today…..
    Someone asked me recently how has it been for me to get treated with HCV generic drugs.
    Honestly, I found it quite hard to answer to this question in just a couple of words/sentences, as there were so many things to tell… I gave a couple of explanations (which I hope were of a good quality), however the question was repeating and repeating in my head (“How could I describe my experience ???”…..).

    In the end, I decided to illustrate my experience as it follows:

    HCVGenericmetaphor.png

    Why is that?
    – it was not a simple journey and to many it (still) seems impossible – but to me and others from here, we know it is a “possible” journey;
    – I had to learn many things about the HCV generic drugs. And all this in a “hostile” environment for generic drugs;
    – I put my trust in people I never knew before (@fixhepc) and I listened to their belief that “GENERICS WORK!”.
    – the trip on the water to get rid of HCV by generic drugs had many turbulences (finding reliable sources of information, supply chain, overcome the fears), but with the brave people from here and an overdaring doctor, the “scaring” journey turned to be one full of adrenaline and fun!
    – talking about HCV and the generic drugs (here but also with my friends) helped me in better understanding my situation and gaining more confidence :)

    Cheers,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

    #22660
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Awesome illustration. Awesome advice RHF. You ROCK, brother! :+1:

    #22678
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Congratulations ROHCVfighter
    Great reading of your reflection at EOT
    Wishing you a great future too and will be waiting for your updates with good wishes from here in Oz
    Happies to you
    Ariel #flower #flower #flower

    #22681
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches

    Hi Rohcvfighter
    Not long to go mate.
    Hoping for the best results for you #flower #flower #flower :+1:


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #22739
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    Hi Rohcvfighter

    I have read all your posts. #flower They were an inspiring and honest revelation of your thoughts and stories. I have experienced many of the same situations and feelings that you so aptly describe. I applaud your determination to source your treatment in a similar manner as many of us have done, holding onto trust and belief on the way. I sourced my meds from China before fixhepc transitioned to a partnership with other o/s pharmas ie India and Bangladesh.#love

    and now we wait for news of SVR12
    #woohoo!


    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    #22745
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Congratulations Rohcvfighter!
    You already had a happy EOT so I wish you a happy SVR12 with UND!

    rainbow_80_anim_gif-2-3-4-5-6-7.gif


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    #23250
    Avatar photorohcvfighter
    • Guardian Angel
    • ★★★★★
    @rohcvfighter

    Hello Everybody,

    I am now 10 weeks after EOT and reading lately so many wonderful news about people here reaching SVR12 or SVR24, I decided to make a blood test for the liver enzymes.
    The results show that TGP and TGO got even better (couple of units lower) than those from EOT (which were already very good – at the middle of the normal range). I would take this as a promising result.

    In 2 weeks time I will make the VL blood test,hopefully SVR12 will be confirmed.

    P.S. last night there was an earthquake in Romania around 2:11 am, quite strong 5.6 on a Richter scale. Luckily no casualties, but some people got scared.

    Cheers and a nice week-end,
    RHF


    In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
    HCV kills more than 500000 people every year. HCV generic drugs work. Don’t become a statistic.
    By sharing this Youtube video you might save someone’s life!
    My TX: HEPCVIR-L[generic Harvoni]-India
    SVR52 achieved

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