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  • #7600
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    Are you in Australia?


    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    #7601
    Avatar photosonix
    • Guardian Angel
    • ★★★★★
    @sonix

    Yes, Melbourne.


    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    #7602
    Avatar photosplitdog
    • Guardian Angel
    • ★★★★★
    @splitdog

    I’m in the US. I just ordered Sof/Dac from Kingswood as well. Waiting for the postman………:)


    splitdog@roadrunner.com

    Genotype 3
    VL 4,100,000
    ALT 101 AST 71
    Treatment Naive
    Started Sof/Dac Jan 12, 2016
    VL= <15 4 weeks in. AST/ALT normal.
    VL=UNDETECTED 8 weeks in.
    SVR4= Virus back. 3,300,000

    Started generic Epclusa Sep. 23, 2017

    4 weeks in <15 *Detected.
    12 weeks in <15 *Not Detected.
    16 weeks in <15 *Not Detected.
    Finished 24 weeks treatment 3-17-18
    SVR5 <15 Not Detected.
    SVR 20 <15 Not Detected.
    SVR 44 <15 Not Detected.

    Thank you Jesus.
    Thank you Dr. James

    #7603
    Avatar photopoodle
    • Guardian Angel
    • ★★★★★
    @poodle

    Hi Sonix Thanks for posting all the info. Iam also 1a 30 plus years. Can I ask why you decided on sof/dac and not sof/led ? Cheers, and Happy new year. Jill


    Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
    24weeks mesochem sof/led as unsure of fibrosis status.
    currently UND. No bad side effects
    Have svr12 … waiting for svr 24
    I now have SVR 36 weeks.

    #7604
    Rich-Kohler-facebook
    • Topics: 0
    • Replies: 1
    • Total: 1
    • Novice
    @rich-kohler-facebook

    Did you need a script for that?

    #7605
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Sonic I live in Bendigo and can relate to the hot weather Phewww

    I am in week seven on Sof/Led and also have the insomnia and still do but sleeping a bit longer than when I first started. I take my meds at around 8.30pm and find now that I am not tired in the mornings when I get up (work full time) and energy levels improving also. I turned 60 this year and have no idea when, where or how long I have had the virus but I am forever grateful for Dr Freeman and the Buyers Club for the opportunity to be able to take my meds now rather than waiting for an appt at the Liver Clinic at the Base Hospital here (10 months and counting so far)! My four week blood tests came back HCV undetectable :)

    Have a great New Year and I look forward to hearing your results.

    Cheers Lynne


    YMMV

    #7607
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Hi Sonix thanks for posting your Tx details, especially previous symptoms – i have all of those:) I’m G3a but still interested in hearing how you go. Waiting for my meds to arrive – email 18/12/15 – said 3-4 weeks!

    Good Luck!


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #7608
    Avatar photosonix
    • Guardian Angel
    • ★★★★★
    @sonix
    poodle wrote:

    Hi Sonix Thanks for posting all the info. Iam also 1a 30 plus years. Can I ask why you decided on sof/dac and not sof/led ? Cheers, and Happy new year. Jill

    Partly because of the $700 price difference, but confirmed by Dr James that Sof/Dac should be at least as effective as Sof/Led, and possibly better but trials have been small so far.
    And yes, you need a script.

    Happy New Year to all!


    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

    #7609
    SueHealth
    • Topics: 1
    • Replies: 5
    • Total: 6
    • Novice
    @suehealth

    Hi Sonix,

    Thanks for your info and experiences I am in Melb too! I have Geno 1a, I have been on Sof/led for 1 month
    10 days and have been suffering with anxiety for years.I have noticed I am less anxious and my energy is better
    in that I can do an exercise program though I still need to rest in the afternoon.

    Have a Great New Year
    SueHealth

    #7612
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey sonix, good to hear your story and great news that you’re handling tx so well and seeing those improvements. I’m also 1a (27 yrs) and have had all those hep symptoms, complicated by hormonal problems and chronic pain (plus recently an at least semi-failed shoulder op) Awesome that so many have been relieved for you.

    I will be on sof/dac as well from tomorrow, Dr J’s rationale was the same he as advised you – could well be better than Led due to a slightly higher logkill ratio (albeit small trial sample as you say)

    All the best for the rest of your treatment, and wishing everyone here a great start to a healthy new year. We couldn’t have been given a better chance :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #7614
    Avatar photoCJ
    • Guardian Angel
    • ★★★★★
    @cj

    Good luck Sonix.
    Hope the new year brings you SVR :)

    Hey zhuk,
    Tomorrow! exciting! hope it goes well for you. :cheer:
    x


    J the young dragon slayer is:
    HepC 1a since birth
    Male aged 15
    VL 2000000
    Started Twinvir/ 10-11-15-then Sof/led.
    NO sides so far !
    after one week VL : 37
    after 4 wks VL : UND !
    EOT 2/2/16 UND.!
    4 wks. post tx results….pending….
    7/3/16 VL result : 4 week post tx: SVR !
    12 weeks SVR !
    24 wks SVR yeeaa!!

    #7617
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey cheers Cindi!

    Been a long time coming heh, but I am so ready for it now :)

    7-day phone alarm is set lol


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    #7637
    Avatar photoisaing4
    • Guardian Angel
    • ★★★★★
    @isaing4

    Hi Sonix,
    Thanks for sharing your tx story!
    Happy for your improvements. :lol:
    Undetectable as soon as possible and stay so forever.
    Happy New Year to all!


    HCV since I don’t know. Diagnosed in 2010.
    GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
    started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
    virus not detected 06.02.2016 & SVR24
    isaing4@gmail.com

    #7639
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Sonix, Warm wishes for the best possible outcome from another 1a


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #8212
    Avatar photosonix
    • Guardian Angel
    • ★★★★★
    @sonix

    Three weeks down, nine to go. I still feel a bit fuzzy in the mornings but generally more clear headed and energetic. I swim 3-4 times a week and have done 600 metres almost non-stop! Previously that would have been a struggle and would need a few rest breaks to swim that far.
    Still have that speedy feeling but not quite as intense. Sleep is still less than I’d like, average about 6 hours with intermittent waking some nights but not all. I sometimes try for a siesta but usually doesn’t work. Occasionally I will have 10-15mg oxazepam or a couple of puffs of pot to ensure sleep if I have a big day ahead. Pot is actually better for this as the oxazepam seems to take longer to wake up and clear the brain the next morning.
    I’m not noticing much difference in the other symptoms originally posted. Skin is still prickly, seborrheic dermatitis unimproved, although my general mood is better overall. We had another heatwave in Melbourne just before New Year which knocked me around as usual, and I think I slept badly on New Years Eve causing subluxation in my neck but that’s from the osteoarthritis/fibromyalgia which is likely not completely HCV related. And my osteopath is on holiday till next week. :(

    TL;DR – Some great improvements but still not 100% healthy.

    Looking positively to the future, 4 week blood tests next week.. B)


    M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
    SVR4 at 7Apr16 ALT 22 AST 22
    SVR12 at 9Jun16 ALT 23 AST 25
    Melbourne, Australia

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