Home Forums Main Forum Patient Stories Geopolitics Sorry, but Australia is going to have to be Geoblocked

Viewing 15 posts - 31 through 45 (of 131 total)
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  • #17933
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Don’t be sad people and thanks for the support to those o/s for your kind words to us in Australia and yes here it is again: (louder) EVERYONE HAS NOT GOT THE PBS LIKE A BAG OF LOLLIES HANDED OUT IN AUSTRALIA WE NEED GENERICS TOO. Ty.
    Now I have said that for the hundredth time…..

    Re this internet access issue, I hinted at it in my reply when I said VOIP and mentioned Netflix, ie; there are ways around everything it’s a matter of spending time working it out.
    Beaches virtually explained how without listing the names of the best proxys, VPNs.
    We can get around this.
    Aussies get someone to assist you if necessary because this is our forum yes we deserve access. There’s information out there available to non IT geeks with how to info.
    Some charge a monthly fee some are free. You can stream just about anything from just about anywhere.

    And then hope that we don’t get into trouble for breaking some silly law. Covering James back is most important. I urge us to all be mindful of his integrity and be circumspect.

    As to this interesting question “who complained”
    It could easily be anyone on this forum; reality check. I’m well aware of the risks of this forum. It’s fantastic yes, but it also contains personal stories and I recall the times very lovely people have been hassled just for no reason by other members. So who complained? Well likely an Australian. But we don’t really know who is behind the words and it could be anyone. It could be Gilead. It could be a Govt run Org. We don’t know

    I feel the main thing to remember is that we need to be respectful of Dr J.

    Ariel

    #17934
    Avatar photoMatt-Kenney-google
    • Guardian Angel
    • ★★★★★
    @matt-kenney-google

    Nicely put Ariel, sometimes, as with almost all of us humans there’s a knee jerk reaction and we / I need to vent the frustrations and sadness felt at the prospect of losing touch with such newly found friends like yourself and the other “Awesome Aussies” we OS’ers have come to know and care about as much as they care about us on this forum.
    … Thanks for that optimistic outlook, don’t ever lose it. :)
    You’re right about Dr. J, we need to support him, whatever he needs to do, just as he has supported us all.

    Matt


    GT1a; Got it some time in the 70’s; Diagnosed @1976
    Tx naive
    METAVIR: A2-F2
    SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
    3 weeks after SOT: AST 27 ALT 31 VL 138
    Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
    Hep C RNA NOT DETECTED”

    #17939
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Like I said earlier, the content of this site can be posted anywhere, and as GT elaborated there are ways around the geoblock. It’s interesting to me, because in USA we get ads on prime time TV from the pharma companies. Harvoni is advertised almost daily!

    I’ll just say this, and let me preface this remark by saying I hope I am completely wrong, but I think once TPP goes through there is going to be a real shit storm over these generics.

    I see my blog here has over 4000 views, I hope that maybe 200 people in USA were able to feel confident enough to get generics from that. So at a discounted rate of $50,000, that means Gilead lost out on $10 million in revenue. They are not going to stand pat and not try and do something, and multiply my efforts by 1000 from this site and that is $10 billion USD they lost.

    Fuck em! :cheer: :+1:

    #17942
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    Clearly the TGA have had their heads up Big Pharma’s arse for too long and now they’ve got shit for brains.

    This isn’t advertising TGA.

    THIS is advertising!

    [video width=425 height=344 type=youtube]fCAa4bs0OoY[/video]

    So is Greg being hassled too or are they just directing their energies at easy targets? I want to fight this.

    Not because of hep c.

    Just because I’m over being told what to think.

    Seriously, fuck off!

    I didn’t go to all this effort to be told what to think.

    #17943
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    So if I write to the TGA they’re going to have to geoblock all Gilead’s ads like the above aren’t they?

    #17944
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Wait a minute…do you get these ads for Harvoni on TV or online in Australia? If so you should organize protests! Why is that not considered advertising? That ad is on TV in USA every day!

    #17945
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    Online. You’re in the US aren’t you GF? Yeah, make no mistake about it. This is pure censorship.

    #17946
    Avatar photofitz
    • Guardian Angel
    • ★★★★★
    @fitz

    Well, here’s a thought. Monopolies are supposed to be illegal in most “free” countries. I really don’t see how having a monopoly on a lifesaving medication is much different than say having a commercial monopoly on emergency telephone calls. If you could only use one telecom carrier to dial in for a life threatening emergency, the price of the call was $94,000, and you couldn’t pay for the call up front – you’d die. Ridiculous, right!?

    It is ridiculous.

    So world governments, how much will it cost in terms of gross national product and lost revenue NOT to treat hundreds of millions of citizens who will eventually stop producing anything except skyrocketing medical costs?

    Why not simply save hundreds upon hundreds of billions up front, negotiate a reasonable settlement to buy the rights to the medications, and pay off the sordid corporate pirates in a lump sum? Note: You can borrow the money from China if you have to. They’ll end up producing the medications anyway.

    #17947
    Avatar photoChester
    • Guardian Angel
    • ★★★★★
    @chester

    I’d been thinking what a stretch it is to call talking about Sofosbuvir advertising when, ATM, there is no competition.

    Well other than having HepC.

    How come I never see any ads telling me why chronic HepC is so much better than Sofosbuvir?

    #17948
    Avatar photoGreedfighter
    • Guardian Angel
    • ★★★★★
    @greedfighter

    Chester, yes I am in USA. We get these ads for Harvoni and everything else you can think of on TV, print and online. It’s all legal here.

    Fitz, I agree but here is the truth in USA, the pharma companies charge whatever they want. Insurance companies either cover it, or they don’t. The cost of illness is forced on the government, but also on the individual. For example:

    Gilead has a program for people who are not covered by insurance. It’s called ‘Support Path’ You apply to them for care, because you have no insurance. They want you to apply for medicare, and be denied for coverage. Under medicare you need to be destitute and have under $5000 net worth. If you have more than $5000 then you need to use the money or assets for treatment. Then they will pay for Harvoni.

    If you are poor, and qualify for grants like I did, they still want you to pay. I qualified for $73,000 in grants, Gilead wanted me to get a loan for $23,000 and then I could get Harvoni.

    #17950
    Avatar photoGT2
    • Guardian Angel
    • ★★★★★
    @gt2

    The TGA is Australia’s equivalent to the FDA

    FDACartoon-2.png

    Unfortunately, in the modern world of murky large political donations by vested interest groups, whoever pays the piper calls the tune … <img style=ick:' />


    1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
    22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
    10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
    09/05/16: ALT 34, VL: NOT Detected :cheer: 🙂 , FBG 11.9 :huh:
    17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
    🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂

    #17951
    Avatar phototweakmax
    • Guardian Angel
    • ★★★★★
    @tweakmax

    Kim Jong un took over aussie?

    #17952
    Avatar photobeaches
    • Guardian Angel
    • ★★★★★
    @beaches
    Greedfighter wrote:

    Wait a minute…do you get these ads for Harvoni on TV or online in Australia? If so you should organize protests! Why is that not considered advertising? That ad is on TV in USA every day!

    I have not seen the ad but then I don’t watch much commercial TV


    Genotype 1a
    Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
    Harvoni treatment, started 19 March 2016
    4 week results Bilirubin 12 down from 14 pre treatment,
    Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
    VL <15 down from a lazy 6 million or so

    EOT Results
    Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

    12 Weeks post EOT
    Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
    Cured baby

    #17954
    Avatar photoPaul-Jarman-facebook
    • Guardian Angel
    • ★★★★★
    @paul-jarman-facebook

    Wait all is not lost we still have the notice board at the local liver clinic :woohoo: :woohoo:

    On a more serious note Dr Freeman has created a wonderful resource to assist with treating Hep C and to aid in the procurement of safe and reliable meds to treat this virus for people worldwide. Given that Aussies now have access to PBS meds it’s only logical that Fixhepc has become more relevant to overseas sufferers. The ball is in and has for some time been in the court of our overseas members I guess when it comes to furthering the cause that the Doc has started.

    Cheers


    Two time relapser.

    SVR 4 achieved 12/16 at last
    SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

    GT 3 – about 28 yrs with HCV

    #17955
    Avatar photoklhilde
    • Guardian Angel
    • ★★★★★
    @klhilde

    I’ve been running variously themed diatribes in my mind for hours now, but it won’t help the immediate situation. So for now I’ll only make three points and move on to the real issues we need to address.

    1) This is about as clear cut an example of Regulatory Capture as I’ve seen in a long while.

    because

    2) There can be little doubt that this is taking place due to pressure brought by either the pharmaceutical lobby directly (read that as “Gilead”;) or by some butt hurt gastro doc or other specialist within the establishment. No member or former poster on this forum would go to these lengths to damage this forum … (not even the one that immediately pops into your and my mind, Ms. Chester :whistle:)

    3) The current Vice-President* Secretary of State of the United States of America, John #&*%!ng Kerry, is, and has long been, advocating for the entire internet to be placed under the regulatory authority of the United Nations. I’m not even going to bother trying to explain why this would be one of the worst disasters ever to befall mankind.

    *I guess I was still too worked up to be thinking clearly.
    In my own defense, Biden is completely forgettable … lol.
    Thanks Matt :blush:

    ________________________________________________

    On to the immediate issues. I think the solution may be simpler than is being currently contemplated.

    James, some immediate questions to explore …

    1) Is WebMD geoblocked in Australia? (or any other website in the US, UK, France, Germany, etc. where medical discussion/promotion are allowed) Does Australia block access to HepMag and its forums and blogs? Are Google searches of such information filtered in Australia as they are in China?

    I’m pretty sure the Australian authorities recognize that their authority stops at the border. And I can’t imagine them introducing draconian (Chinese) web blocking technologies.

    2) Would there be any penalty available to the Australian authorities to punish you if you were to write articles for WebMD or similar sites outside of Australia? (Whether your article itself advocated particular drugs/procedures or if other writers on the site did, or if the site allowed ads to appear … Gilead’s ads are ever-present on most web forums or medical advice sites whenever “Hep C” is put into the search.)

    I’m pretty sure any work done outside of their physical authority boundaries are beyond their reach, but this one needs to be determined clearly. Can you, or can you not, produce content for sites outside of Australia that would not be allowed within Australia?

    3) Would there be any Australian laws disallowing you to take an ownership interest in WebMD or its parent company? (Or similar sites.)

    4) Would there be any Australian laws disallowing you to have a management or other decision making position at WebMD, its parent company, or similar sites?

    After determining the answers to those questions the solutions become clear, and likely don’t require any form of geoblocking.
    _________________________________________

    Solutions:

    I suspect all that’s necessary to remove their authority is
    a) to physically place the server outside their reach, and
    b) place the ownership vehicle, the corporate entity, outside their authority.

    If they can still prosecute you for being the web site manager, then hand off technical authority to some trusted party outside of Australia … Alsdad maybe.

    If they can still get you for having an ownership interest then hand off ownership to some other entity … maybe Doctors Without Borders … and require them to leave either you or your hand chosen person in administrative authority of the site.

    Really, I don’t think Gilead’s little gambit here of putting a thumb on Australian regulators is all that bright. I have long suspected that Gilead is run by a bunch of snotty nosed, silver-spoon, Ivy League idiots. You can out maneuver them.

Viewing 15 posts - 31 through 45 (of 131 total)
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