The second wait!

This topic has 56 replies, 17 voices, and was last updated 7 years, 5 months ago by coral.

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19 February 2017 at 3:43 am #25353
Paul-Jarman-facebook
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- Guardian Angel
@paul-jarman-facebook
Going to have bloods taken for SVR 12 tomorrow and hopefully will be getting confirmation that the bastard virus is dead later in the week !

Fingers crossed for the others having retreatment right now and getting close to the end.

cheers

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
19 February 2017 at 5:01 am #25355
splitdog
- Topics: 5
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- Guardian Angel
@splitdog
You will. It’s your turn.

splitdog@roadrunner.com

Genotype 3
VL 4,100,000
ALT 101 AST 71
Treatment Naive
Started Sof/Dac Jan 12, 2016
VL= <15 4 weeks in. AST/ALT normal.
VL=UNDETECTED 8 weeks in.
SVR4= Virus back. 3,300,000

Started generic Epclusa Sep. 23, 2017

4 weeks in <15 *Detected.
12 weeks in <15 *Not Detected.
16 weeks in <15 *Not Detected.
Finished 24 weeks treatment 3-17-18
SVR5 <15 Not Detected.
SVR 20 <15 Not Detected.
SVR 44 <15 Not Detected.

Thank you Jesus.
Thank you Dr. James
19 February 2017 at 11:08 am #25358
rightsaidfred
- Topics: 8
- Replies: 86
- Total: 94
- Guardian Angel
@rightsaidfred
Poor little virus. I’m feeling quite sorry for it!
RSF

G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
22 February 2017 at 10:45 am #25385
Paul-Jarman-facebook
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- Guardian Angel
@paul-jarman-facebook
The text from the Doc said The fat lady is singing …. and so it is SVR 12

This has been quite a ride over the last 16 or so months but in reality it started much earlier with my first quest for treatment in about 1997.

Dr Freeman , Fixhepc, this forum and some facebook members have made this final phase much easier to deal with.

James stuck his neck out for us as a group early on with the import assistance of generics it probably gave him a few sleepless nights given whats at stake. For that I thank him from all of his Heppers.

cheers

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
22 February 2017 at 11:13 am #25391
rightsaidfred
- Topics: 8
- Replies: 86
- Total: 94
- Guardian Angel
@rightsaidfred
Oh that is good news Paul, and I’m very pleased to hear it. That is almost certainly that.

Hope you have a really good day and if possible some fun,

RSF

G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
22 February 2017 at 2:07 pm #25392
Gaj
- Topics: 29
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- Guardian Angel
@gaj
Oh Yeah!!! The fat lady needs some accompaniment for this song.

Great news Paul, so glad to see this.

G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
26 February 2017 at 9:33 pm #25406
mgalbrai
- Topics: 28
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- Guardian Angel
@mgalbrai
Very, very, very happy for you!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
2 March 2017 at 1:08 pm #25453
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
Paul – hugest congratulations to you. It has been a long fight for you my friend but you made it.
3 March 2017 at 11:18 am #25484
LondonGirl
- Topics: 16
- Replies: 1,348
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- Guardian Angel
@londongirl
Yay Paul – Fantastic news to brighten a rainiy morning – So absolutely delighted for you
It was the long hall for you but as RSF says, I hope you feel better every day and yes, have some fun – You deserve it my friend
LG

GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
5 June 2017 at 3:08 pm #26323
sabrecat
- Topics: 2
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- Total: 260
- Guardian Angel
@sabrecat
Paul-Jarman-facebook wrote:

Going to have bloods taken for SVR 12 tomorrow and hopefully will be getting confirmation that the bastard virus is dead later in the week !

Fingers crossed for the others having retreatment right now and getting close to the end.

cheers

Had mine done today and see specialist next week for results.

Second time around for me. First treatment started in Oct 2015 and this second lot commenced in Oct 2016 – something of a yearly thing for me which I hope I don’t have to repeat again.

I did notice that all the way through, including time after I relapsed, AFP was normal and LFT’s were bad only off treatment. First time ALT was up above normal; second time ALT was fine – so here is hoping the fat lady is about to sing.

Yours

Jeff
6 June 2017 at 6:24 am #26326
Paul-Jarman-facebook
- Topics: 8
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- Guardian Angel
@paul-jarman-facebook
I reckon you got this mate , fingers crossed for a good outcome

Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated

GT 3 – about 28 yrs with HCV
6 June 2017 at 9:06 am #26331
coral
- Topics: 8
- Replies: 598
- Total: 606
- Guardian Angel
@coral
This all sounds so good Jeff. I think I can hear her warming up
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