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24 September 2015 at 11:55 pm #1468
Hi guys,can anybody recommend a doctor that is willing to prescribe generics in the uk?
25 September 2015 at 1:17 am #1469This is a known barrier (see http://hepatitisctreatment.homestead.com/generic-harvoni.html) See Getting Treated/How to do it and `Doctors’ above. A foreign script might do it.
M, 57, Live in Wellington,NZ.
Genotype 1a diagnosed in 2013.
Treating for the first time since October 31 with Buyers Club Sof/Led. Thanks so much guys. Minimal side effects apart from sore throat at the start..
Viral load 5.4m when treatment started, Undetected at 4 weeks, 8 weeks, End of Treatment and 12-weeks post EOT. Yay!25 September 2015 at 6:18 am #1470Hi David,
If you have access to the North West, and are prepared to pay a private consultant, contact Pall Mall Medical Clinics (only Manchester or Newton-le-Willows: the consultant at these two is prepared to help) on 0161 832 2111.
25 September 2015 at 2:14 pm #1471Just so that anyone getting an appointment with a doctor other than their regular one is prepared.
The doctor will want to see your baseline medical info:
1) A full set of blood tests. The consultant at Pall Mall Medical is very thorough on this, and will insist on you getting done any that are missing. Because my NHS Hepatology clinic were being utterly obstructive to my attempts to go down the generics route (I’m still waiting for my case notes which I purchased several weeks ago under the freedom of information laws), I got a full set of tests done at Pall Mall Medical which cost me nearly £300. I’ve attached a copy of the results to give an indication of what’s required.
2) A recent biopsy or fibroscan result, though an ultrasound scan result may be accepted (it was in my case).
3) Any previous or current medical issues, including any current medication. You shouldn’t need documentary evidence of these, just a verbal explanation.
26 September 2015 at 1:54 pm #1480This Doc is most helpful, thanks Alsdad
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC28 September 2015 at 12:51 pm #1513if you need to get upto date bloods done i just booked on line full blood count at privatebloodtests.com. full blood count done at your nearest nuffield hospital. this is for uk. for £70.
gt3 started sof dac jan 2016 now 48 wks svr. not the real wilko johnson just have the same real name. shropshire uk
28 September 2015 at 1:00 pm #1514Thanks Wilko, yes I have been communicating with them, it’s more like £145 if you want to include Hb & AST though and quoted £206 at Nuffield. Full comprehensive blood test inc. Hb offers free AST as an option, but when you try to add that it won’t do it. Trying to sort out today.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC28 September 2015 at 1:42 pm #1515thanks London girl.do you know if hb is in full blood count test? if not i will need to get that added. also do you know how up to date your bloods need to be for the doctor at pallmall. i have liver function test results done on 19 june. genotype and viral load only a few weeks ago.ime going for fibroscan tomorrow at london clinic.then i can make my apnt with doc at pallmall and get script.wilko.
gt3 started sof dac jan 2016 now 48 wks svr. not the real wilko johnson just have the same real name. shropshire uk
28 September 2015 at 2:01 pm #1516I’d be surprised if blood tests from June were unacceptable to the Pall Mall Consultant, Wiko, unless your health has taken a noticable turn for the worse since then. When I saw him for the first time at the end of July, he didn’t have a problem with my viral load test which had been done in April.
28 September 2015 at 3:07 pm #1518I am going to get the whole lot done. For Drs and for me too – It’ll be handy for a vriety of reasons. It is quite expensive and can’t really afford but not as expensive as going through a private Dr if they request more testing when you are there.
Wilko – The Comprehensive PlusV including Hb :
http://privatebloodtests.co.uk/Comprehensive-PLUS-V-Blood-Test-and-hba1cThis is what they told me : “The Comprehensive Plus V at the Spire Hospital does not include AST. We can add this on as your free test though if you would like it”. – I tried to add this as suggested online and it didn’t work (wouldn’t add AST for free) – awaiting response but may just call. The Nuffield wanted around £200+ but Spire hospitals are ofering the deal from the same website as above.
(Edit) My last fibroscan was July 2014, nxt appointment around 6 weeks away, but may be further wait for a new fibroscan. I don’t want to pay for one as it seems they are not always correct.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC -
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